Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Oct 2017.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
90 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
6 people listed on the 990; $113K paid to officers and key staff.
Julia Vitarello’s $113K as President is at the 77th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Julia Vitarello | $113,470 | $110,000 | $110,000 | $104,583 | $100,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Funds research and clinical trials for cures for Batten and other neurological disorders.
Questions for Milas Miracle Foundation INC
Your first name shows with your question. Milas Miracle Foundation INC answers here, for everyone.
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Expansion of Individualized Medicines
At present, the foundation is focused on helping to grow the new field of individualized medicines, which mila's story first opened up. Alongside mila's doctor (DR. Timothy yu) and his team at boston children's hospital, we are working collaboratively with leaders in the field to rethink the drug development process so we can safely and…
Basic Science Research
To date, the foundation has funded three (4) basic science research projects for batten disease in the us, europe and australia. By supporting scientists working to crack the CLN7 gene (as well as other variants of batten disease) through meetings with researchers and physicians, and grant funding to labs working on biomarker discovery…
Clinical Trials & Programs
To date, the foundation has funded two (2) clinical trials and one (1) clinical program for children with batten disease: 1.) an antisense oligonucleotide (aso) clinical trial - the foundation partnered with boston children's hospital to fund, develop, and administer milasen, the first-ever individualized medicine designed for one…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $270K | $483K |
| Total assetsLn 16 | $270K | $484K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $270K | $484K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Other salaries and wagesLn 7 | $185K | $166K | $8K | $11K |
| Payroll taxesLn 10 | $15K | $13K | $576 | $810 |
| Accounting feesLn 11c | $7K | $7K | ||
| Other fees for servicesLn 11g | $246K | $242K | $4K | |
| Advertising and promotionLn 12 | $9K | $1K | $8K | |
| Office expensesLn 13 | $632 | $23 | $491 | $118 |
| TravelLn 17 | $18K | $18K | $554 | |
| InsuranceLn 23 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $10K | $2K | $7K | |
| Total functional expensesLn 25 | $493K | $443K | $38K | $12K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $707K | $493K | $214K | $484K | 990 PDF |
| FY2023 | $21K | $270K | 990 PDF | ||
| FY2022 | $650K | $661K | −$12K | $641K | 990 PDF |
| FY2021 | $264K | $505K | −$241K | $653K | 990 PDF |
| FY2020 | $194K | $792K | −$598K | $893K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $706,872 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, 2 to look at
Part VIII · Statement of revenue $706,872 across 5 lines filed
Part IX · Statement of functional expenses $493,007 across 9 lines filed
Part X · Balance sheet $483,957 assets, 9 lines filed
Part XI · Reconciliation of net assets $483,957 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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