To provide funding for lyme and tick-borne disease treatment and research, while delivering tick education and awareness around the globe.

63¢ of each $1 spent went to programs.
Run by 10 volunteers.
Mission: Form 990 Part I, line 1 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2022 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
Revoked
IRS exemption revoked
Concern: the IRS revoked its tax exemption.
IRS Auto-Revocation List
Latest return
FY2022
latest Form 990
Worth a look: the latest return is for FY2022, 4 tax years back; more than 3 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 4
filings with a surplus
Average surplus $2K a year · under 1% of revenue · last 4 filings
Worth a look: a surplus in 2 of the last 4 filings.
Pt I · Ln 19 · 4 filings
Spent on programs
63%
of spending
Worth a look: 63% of spending went to programs; under 65%.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$48K
to officers and key staff · 18% of spending
Fine: pay to officers and key staff is 18% of spending; 15% to 20%.
Pt VII · Sec A
2 mo
of spending, in cash
Fine: 2.5 months of spending in cash; 1 to 3.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $20K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$3K
5% of total assets
Looks good: liabilities are 5% of assets; 50% or less.
Pt X · Ln 26
Independent board members
5
of 8 voting members
Looks good: 5 of 8 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$105K
-58% vs prior year
Spent
$272K
To programs
63%
Net assets
$61K
By yearFY2019–FY2022
Revenue
$105K
FY2022▼ -58%
Tap a bar for its year
Revenue by fiscal year
FY2019$356K
FY2020$253K
FY2021$249K
FY2022$105K
Expenses
$272K
FY2022▲ +202%
Tap a bar for its year
Expenses by fiscal year
FY2019$358K
FY2020$236K
FY2021$90K
FY2022$272K
Net assets
$61K
FY2022▼ -73%
Tap a bar for its year
Net assets by fiscal year
FY2019$52K
FY2020$69K
FY2021$228K
FY2022$61K

From the FY2022 Form 990 · see the original

990 PDF Claim
IRS revoked this organization's tax-exempt status on May 15, 2026

Is it real?

No. The IRS revoked its tax exemption. Latest filing on record: FY2022. IRS ruling in Mar 2017.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

63 cents of each dollar spent went to programs.

Program services 63% · $172K Management & general 37% · $100K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Something off? Claim to add context

Who runs it and what they're paid

8 people listed on the 990; $48K paid to officers and key staff.

Part VII, Section A · reportable compensation
$48,000Pt VII · Sec A
Secretary
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Holiday Goodreau’s $48K as Director is at the 33rd percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

See Livlyme Foundation executive salaries →

On this list? Claim this org

Something off? Claim to add context

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo
  • Loans to or from officersSch L · Pt II1 listed

Programs and updates

Funds Lyme disease research and treatment, and educates people globally about ticks.

Questions for Livlyme Foundation

Tap to ask. Livlyme Foundation sees how many people are interested.

Your first name shows with your question. Livlyme Foundation answers here, for everyone.

Provided by the organization

Know this org? Add your story

3 programs · $172K · in their own filed words · FY2022
01

Improved technology offerings and paid operational expenses in accordance with terms required under cohen foundation grant received in 2021

$103Kprogram expense
02

Provided financial support for 24 children with lyme disease to receive needed medications and treatment

$42Kprogram expense
03

Upgraded tick-tracker web site and smart phone app

$28Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 1 funder$20K
Grants paid · 5 grants · $152K · 2019–2022
Unitemized GrantFY2022$37,259
Unitemized GrantFY2021$7,464
Unitemized GrantFY2020$25,993
Unitemized GrantFY2019$31,072

By the numbers

The FY2022 990, line by line.

1The main four
Money inPt VIII
$105K
Ln 12
Gifts and grantsLn 1h$118K
Investment incomeLn 3$94
Money outPt IX
$272K
Ln 25
Programscol B$172K
Managementcol C$100K
Owns and owesPt X
$61K
net assets · Ln 32
Cash and savingsLn 1–2$57K
Total assetsLn 16$64K
LiabilitiesLn 26$3K
PeoplePt VI, VII
8
listed · VII A
PaidVII A1
Voting boardVI 1a8
IndependentVI 1b5
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$118K
Fundraising eventsLn 1c$24K
Investment incomeLn 3$94
Total revenueLn 12$105K
Assets in detailPt X, end of year
CashLn 1$57K
Cash and savings togetherLn 1–2$57K
Land, buildings, equipmentLn 10c$0
Total assetsLn 16$64K
LiabilitiesLn 26$3K
Net assetsLn 32$61K
OperationsPt I, VI
EmployeesI 50
VolunteersI 610
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY22End FY22
Cash and savingsLn 1–2$236K$57K
Land, buildings, equipmentLn 10c$0$0
Total assetsLn 16$237K$64K
LiabilitiesLn 26$9K$3K
Net assetsLn 32$228K$61K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic individualsLn 2$37K$37K
Legal feesLn 11b$5K$5K$617
Accounting feesLn 11c$5K$5K
Other fees for servicesLn 11g$83K$48K$35K
Advertising and promotionLn 12$13K$3K$10K
Office expensesLn 13$4K$294$4K
Information technologyLn 14$8K$424$7K
TravelLn 17$30K$18K$12K
Conferences, conventions and meetingsLn 19$7K$7K
InterestLn 20$15$15
Depreciation, depletion and amortizationLn 22$606$606
Other expenses (24a–d)Ln 24$83K$60K$22K
All other expensesLn 24e−$4K$501−$4K
Total functional expensesLn 25$272K$172K$100K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2022 Latest Viewing $105K$272K−$167K$61K 990 PDF
FY2021 $249K$90K$159K$228K 990 PDF
FY2020 $253K$236K$18K$69K 990 PDF
FY2019 $356K$358K−$2K$52K 990 PDF

More to add? Claim this org

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2022 990 (6 parts)
Part I · Summary $105,282 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $249,636$118,050
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$94
I-11 Other revenuePrior year −$374−$12,862
I-12 Total revenuePrior year $249,262$105,282
I-13 Grants and similar amounts paidPrior year $7,464$37,259
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $82,710$235,171
I-18 Total expensesPrior year $90,174$272,430
I-19 Revenue less expensesPrior year $159,088−$167,148
Part VI · Governance 5 of 8 board members independent, 2 to look at
VI-1a Voting members of the governing body8
VI-1b Independent voting members5
VI-2 Family or business relationship among officers or directorsYes
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $105,282 across 6 lines filed
Lines not itemized here account for −$143 of total revenue; see the IRS return.
VIII-1c Fundraising events$23,560
VIII-1f All other contributions, gifts and grants$94,490
VIII-1h Total contributions, gifts and grants$118,050
VIII-3 Investment incomeUnrelated business $94$94
VIII-8 Net income from fundraising eventsExcluded from tax −$12,719−$12,719
VIII-12 Total revenueRelated to mission $0 · Unrelated business $94 · Excluded from tax −$12,862$105,282
Part IX · Statement of functional expenses $272,430 across 13 lines filed
IX-2 Grants to domestic individualsPrograms $37,259$37,259
IX-11b Legal feesPrograms $4,591 · Management $617$5,208
IX-11c Accounting feesManagement $5,283$5,283
IX-11g Other fees for servicesPrograms $48,000 · Management $35,170$83,170
IX-12 Advertising and promotionPrograms $2,864 · Management $10,410$13,274
IX-13 Office expensesPrograms $294 · Management $3,758$4,052
IX-14 Information technologyPrograms $424 · Management $7,395$7,819
IX-17 TravelPrograms $18,154 · Management $12,103$30,257
IX-19 Conferences, conventions and meetingsManagement $6,574$6,574
IX-20 InterestManagement $15$15
IX-22 Depreciation, depletion and amortizationManagement $606$606
IX-24 Other expenses (24a–d)Programs $60,289 · Management $22,359$82,648
IX-24e All other expensesPrograms $501 · Management −$4,236−$3,735
IX-25 Total functional expensesPrograms $172,376 · Management $100,054 · Fundraising $0$272,430
Part X · Balance sheet $64,147 assets, 9 lines filed
Asset lines not itemized here account for $7,376; see the IRS return.
X-1 Cash, non-interest-bearingStart of year $236,485$56,771
X-10c Land, buildings and equipment, netStart of year $0$0
X-14 Intangible assetsStart of year $606$0
X-16 Total assetsStart of year $237,091$64,147
X-17 Accounts payable and accrued expensesStart of year $3,817$3,000
X-26 Total liabilitiesStart of year $8,796$3,000
X-27 Net assets without donor restrictionsStart of year $228,295$61,147
X-32 Total net assets or fund balancesStart of year $228,295$61,147
X-33 Total liabilities and net assetsStart of year $237,091$64,147
Part XI · Reconciliation of net assets $61,147 net assets at year end
XI-1 Total revenue$105,282
XI-2 Total expenses$272,430
XI-3 Revenue less expenses−$167,148
XI-4 Net assets at start of year$228,295
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$61,147

Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File

Similar organizations you could support · Compare with another nonprofit

Names, privacy, and removal requests More

The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.

Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.

We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.

Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.

If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.

Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.

If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.

Your org? Add context

Made it to the end? Claim this org

All figures are derived from public IRS Form 990 filings and are presented without evaluation of any organization. philanthropy.org does not rate, score, or rank organizations, including the pay comparisons above.