Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Feb 2001.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
68 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Who runs it and what they're paid
19 people listed on the 990; $165K paid to officers and key staff.
Christy Casey-Moore’s $215K as CEO is at the 79th percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Christy Casey-Moore | $215,230 | $196,849 | $173,987 | $164,827 | $156,307 | $148,423 |
| Kristi Jones | $167,942 | — | — | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Provides lifesaving heart surgery to children needing specialized care.
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Provides lifesaving heart surgery to children from around the world where specialized medical treatment is either scarce or nonexistent. Major program costs include the cost of the medical treatments and the transport and care costs for the children and their family during treatment.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $2.3M | $2.6M |
| Land, buildings, equipmentLn 10c | $0 | $0 |
| Total assetsLn 16 | $2.3M | $2.6M |
| LiabilitiesLn 26 | $34K | $0 |
| Net assetsLn 32 | $2.3M | $2.6M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $465K | $465K | ||
| Grants to domestic individualsLn 2 | $76K | $76K | ||
| Pay of current officers, directors and key staffLn 5 | $177K | $96K | $23K | $58K |
| Other salaries and wagesLn 7 | $483K | $263K | $62K | $158K |
| Other employee benefitsLn 9 | $103K | $56K | $13K | $34K |
| Payroll taxesLn 10 | $45K | $25K | $6K | $15K |
| Other fees for servicesLn 11g | $143K | $48K | $43K | $53K |
| Advertising and promotionLn 12 | $15K | $3K | $4K | $8K |
| Office expensesLn 13 | $129K | $29K | $32K | $67K |
| Information technologyLn 14 | $80K | $17K | $17K | $46K |
| OccupancyLn 16 | $29K | $9K | $10K | $9K |
| TravelLn 17 | $24K | $10K | $5K | $10K |
| InsuranceLn 23 | $42K | $13K | $13K | $15K |
| Other expenses (24a–d)Ln 24 | $347K | $346K | $7 | $79 |
| Total functional expensesLn 25 | $2.2M | $1.5M | $226K | $472K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $6.1M | $5.5M | $556K | $5.0M | 990 PDF |
| FY2024 | $5.4M | $3.7M | $1.7M | $4.5M | 990 PDF |
| FY2023 | $3.1M | $2.9M | $213K | $2.8M | 990 PDF |
| FY2022 Viewing | $2.5M | $2.2M | $364K | $2.6M | 990 PDF |
| FY2021 | $1.7M | $1.7M | $5K | $2.3M | 990 PDF |
| FY2020 | $1.7M | $1.6M | $82K | $2.3M | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (4 parts)
Part VIII · Statement of revenue $2,520,947 across 7 lines filed
Part IX · Statement of functional expenses $2,156,760 across 14 lines filed
Part X · Balance sheet $2,630,479 assets, 11 lines filed
Part XI · Reconciliation of net assets $2,630,479 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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