Status and standing
Is it real, and can you give to it?
Where the money goes
What each dollar paid for.
Statement of Functional Expenses
Financial health
Is it on solid ground?
Summary of the Filing
| FY2020 | $300K |
|---|---|
| FY2021 | $329K |
| FY2022 | $317K |
| FY2023 | $301K |
| FY2024 | Not on file |
| FY2025 | $295K |
| FY2020 | $100K |
|---|---|
| FY2021 | $88K |
| FY2022 | $76K |
| FY2023 | $62K |
| FY2024 | Not on file |
| FY2025 | $46K |
Balance Sheet
Statement of Revenue
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 80% | — | — |
| Overhead ratio | 12% | — | — |
| Fundraising cost ratio | 35% | — | — |
| Revenue growth | 50% | — | — |
| Investment management fee ratio | 0% | — | — |
| Legal fee ratio | 0% | — | — |
| Accounting fee ratio | 5% | — | — |
| Fundraising fee ratio | 0% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Leadership and pay
Who runs it, and what are they paid?
Officers, Directors & Key Employees
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Susan Ellis | $3,600 | $3,900 | $4,000 | $27,500 | $31,400 | $36,750 |
| William N Fox CPA | — | — | — | $7,350 | $13,000 | $12,500 |
| William N Fox | $4,800 | $3,600 | $5,400 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Governance & Policies
- 6Voting board membersPt VI · Ln 1a
- 6Independent board membersPt VI · Ln 1b
- Conflict-of-interest policyPt VI · Ln 12aYes
- Whistleblower policyPt VI · Ln 13Yes
- Document retention policyPt VI · Ln 14Yes
- Top official’s pay independently reviewedPt VI · Ln 15aYes
- Family or business ties among leadersPt VI · Ln 2No
Mission and programs
What it does.
Funds research and treatment for Cystic Fibrosis.
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Where the work happens
Research and treatment of Cystic Fibrosis
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
Filing history
Every return on file.
| Year | Revenue | Expenses | Change | Filing |
|---|---|---|---|---|
| FY2025 Latest | $51K | $60K | -56% | 990 PDF |
| FY2024 | $117K | — | +76% | 990 PDF |
| FY2023 | $66K | $68K | -61% | 990 PDF |
| FY2022 | $170K | $169K | -46% | 990 PDF |
| FY2021 Viewing | $317K | $276K | +50% | 990 PDF |
| FY2020 | $211K | $211K | 990 PDF |
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Schedules filed Part IV
Full filing: Form 990 for FY2021
Part IX · Statement of functional expenses $275,939 across 31 lines filed
Not shown yet: ratings, outcomes, and peer benchmarks. A Form 990 doesn’t report them.
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Sources
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