Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Mar 2019.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
83 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
9 people listed on the 990; $345K paid to officers and key staff.
Robert Mackay Jimeson’s $150K as Executive Di is at the 38th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Robert Mackay Jimeson | $150,000 | $8,333 | — | — | — |
| Teressa Wilcox | $110,000 | $110,000 | $41,667 | $125,000 | $133,750 |
| Joseph D Keenan | $85,100 | $85,000 | — | — | — |
| Rachel Derby | — | $75,872 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
- Loans to or from officersSch L · Pt II1 listed
Programs and updates
Advocates for the rights of patients with chronic and life-threatening illnesses.
Questions for Patients Rising INC
Your first name shows with your question. Patients Rising INC answers here, for everyone.
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The patients rising policy center is the driving force behind our mission to champion patient-centered policy and advocacy. As the central hub for policy strategy, this center merges the expertise of our former patient access & affordability project with the government affairs functions of patients rising now, creating a unified platform…
The patient empowerment center at patients rising is dedicated to recruiting, developing, and mobilizing patients and caregivers to become effective healthcare advocates. At its core, the empowerment center offers the advocacy masterclass, training participants in advocacy skills needed to navigate and influence healthcare policy at the…
Patients rising studios is built on the belief that stories have the power to change perspectives, drive action, and shift the narrative of american healthcare. By amplifying the voices of patients, we aim to reshape the healthcare conversation, bringing authentic experiences to the forefront of policy debates and public awareness.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $3K | $356K |
| Total assetsLn 16 | $183K | $1.1M |
| LiabilitiesLn 26 | $1.4M | $1.5M |
| Net assetsLn 32 | −$1.2M | −$406K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $260K | $130K | $65K | $65K |
| Other salaries and wagesLn 7 | $127K | $127K | ||
| Pension plan contributionsLn 8 | $11K | $7K | $2K | $2K |
| Other employee benefitsLn 9 | $40K | $27K | $7K | $7K |
| Payroll taxesLn 10 | $30K | $21K | $5K | $5K |
| Legal feesLn 11b | $5K | $5K | ||
| Accounting feesLn 11c | $29K | $29K | ||
| Other fees for servicesLn 11g | $410K | $404K | $6K | |
| Advertising and promotionLn 12 | $191K | $191K | $13 | |
| Office expensesLn 13 | $3K | $3K | $535 | $30 |
| Information technologyLn 14 | $32K | $19K | $12K | |
| TravelLn 17 | $50K | $48K | $171 | $2K |
| Conferences, conventions and meetingsLn 19 | $79K | $79K | $289 | |
| InterestLn 20 | $6K | $6K | ||
| Other expenses (24a–d)Ln 24 | $16K | $15K | $849 | |
| Total functional expensesLn 25 | $1.3M | $1.1M | $138K | $81K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $2.1M | $1.3M | $770K | −$406K | 990 PDF |
| FY2023 | $2.0M | $2.1M | −$113K | −$1.2M | 990 PDF |
| FY2022 | $703K | $1.7M | −$1.0M | −$1.1M | 990 PDF |
| FY2021 | $1.0M | $989K | $23K | −$32K | 990 PDF |
| FY2020 | $1.1M | $999K | $51K | $88K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $2,059,744 revenue, 12 lines filed
Part VI · Governance 6 of 7 board members independent, 3 to look at
Part VIII · Statement of revenue $2,059,744 across 5 lines filed
Part IX · Statement of functional expenses $1,289,807 across 15 lines filed
Part X · Balance sheet $1,076,796 assets, 11 lines filed
Part XI · Reconciliation of net assets −$405,611 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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