Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Feb 1977.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
41 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
14 people listed on the 990; $53K paid to officers and key staff.
Kathie Michael’s $60K as Executive Director is at the 44th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2024 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Kathie Michael | $60,252 | $58,433 | $53,271 | $49,044 | $48,000 | $48,000 |
| Thomas Orth | — | — | — | — | — | $5,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Helps people with epilepsy in West Central Florida live better lives.
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The organization provides information and referral services, education and awareness programs in schools and for school nurses, mentoring programs, hospital visitation programs for families of children newly diagnosed with eiplepsy and a program to help CHILDREN/YOUTH with epilepsy and their families partner with their primary care…
Provides assistance to attend special summer camp for persons with epilepsy.
Awarded college scholarships of $500 each for a total of $3,500 to persons affected by epilepsy.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $117K | $112K |
| InvestmentsLn 11–13 | $497K | $523K |
| Land, buildings, equipmentLn 10c | $418K | $401K |
| Total assetsLn 16 | $1.0M | $1.0M |
| LiabilitiesLn 26 | $8K | $12K |
| Net assetsLn 32 | $1.0M | $1.0M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic individualsLn 2 | $8K | $8K | ||
| Pay of current officers, directors and key staffLn 5 | $53K | $19K | $33K | $1K |
| Other salaries and wagesLn 7 | $5K | $0 | $5K | $0 |
| Payroll taxesLn 10 | $4K | $4K | $490 | $212 |
| Investment management feesLn 11f | $4K | $0 | $4K | $0 |
| Office expensesLn 13 | $408 | $7 | $81 | $320 |
| OccupancyLn 16 | $4K | $3K | $304 | $194 |
| TravelLn 17 | $537 | $473 | $38 | $26 |
| Depreciation, depletion and amortizationLn 22 | $17K | $3K | $14K | $251 |
| InsuranceLn 23 | $2K | $2K | $171 | $122 |
| Other expenses (24a–d)Ln 24 | $7K | $4K | $1K | $2K |
| All other expensesLn 24e | $562 | $231 | $18 | $313 |
| Total functional expensesLn 25 | $106K | $44K | $58K | $4K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 | $123K | $169K | −$46K | $1.1M | 990 PDF |
| FY2023 | $91K | $164K | −$73K | $1.0M | 990 PDF |
| FY2022 | $124K | $125K | −$379 | $1.0M | 990 PDF |
| FY2021 | $84K | $90K | −$6K | $1.1M | 990 PDF |
| FY2020 Viewing | $81K | $106K | −$25K | $1.0M | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $81,240 revenue, 12 lines filed
Part VI · Governance 14 of 14 board members independent, no flags
Part VIII · Statement of revenue $81,240 across 6 lines filed
Part IX · Statement of functional expenses $105,859 across 12 lines filed
Part X · Balance sheet $1,037,679 assets, 13 lines filed
Part XI · Reconciliation of net assets $1,025,964 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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