Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 2015.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
100 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
7 people listed on the 990; $78K paid to officers and key staff.
Lakiea Bailey’s $55K as Executive Director is at the 5th percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Lakiea Bailey | $54,700 | $53,133 | $46,500 | — | — |
| Dr Lakiea Bailey | — | — | — | $42,317 | $8,250 |
| Doris Bailey | $31,000 | $25,900 | $23,000 | $13,000 | $5,500 |
| Sharonda Hudson | $25,950 | $15,300 | $5,950 | — | — |
| Dominique Goodson | $16,500 | — | — | — | — |
| Dr Ramona Lawrence | — | — | — | $12,167 | — |
| Janeen Jv Greene | — | — | $6,500 | — | — |
| Ramona Holloway Lawrence | — | $6,333 | $750 | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Empowers sickle cell community groups with essential infrastructure, support, training, and resources.
Questions for Sickle Cell Consortium INC
Your first name shows with your question. Sickle Cell Consortium INC answers here, for everyone.
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8th Annual Patients and Family Educational Convention: The 2021 agenda focused on topics from concerns for men and worriors women, sickle cell education and the path to financial independence. We covered topics on curative therapies, sickle cell holistic health and nutrition.
Inaugural Sickle Cell Caregiver Summit
Focused entirely on caregiver needs. The summit was dedicated 100% to equiping caregivers to take better care of their loved ones who live with Sickle Cell disease. It is a place for caregivers to connect and encourage one another on a larger scale.
7th Annual Patients and Family Educational Convention: The 2021 agenda placed heavy emphasis on becoming Expert Patients, while learning to advocate, educate, and encourage ourselves and each other. Sessions included tracks designed specifically for adults, teens and children.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $104K | $247K |
| Total assetsLn 16 | $104K | $247K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $104K | $247K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic individualsLn 2 | $2K | $2K | ||
| Benefits paid to or for membersLn 4 | $9K | $9K | ||
| Pay of current officers, directors and key staffLn 5 | $74K | $73K | $1K | |
| Other salaries and wagesLn 7 | $32K | $32K | ||
| Advertising and promotionLn 12 | $114 | $114 | ||
| Office expensesLn 13 | $14K | $14K | ||
| Information technologyLn 14 | $21K | $21K | ||
| TravelLn 17 | $2K | $2K | ||
| Conferences, conventions and meetingsLn 19 | $342K | $342K | ||
| InsuranceLn 23 | $1K | $1K | ||
| Other expenses (24a–d)Ln 24 | $40K | $40K | ||
| Total functional expensesLn 25 | $538K | $537K | $1K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $1.4M | $1.1M | $294K | $418K | 990 PDF |
| FY2023 | $918K | $1.0M | −$101K | $124K | 990 PDF |
| FY2022 | $687K | $743K | −$56K | $191K | 990 PDF |
| FY2021 Viewing | $681K | $538K | $143K | $247K | 990 PDF |
| FY2020 | $348K | $244K | $104K | $104K | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $681,362 revenue, 12 lines filed
Part VI · Governance 5 of 7 board members independent, 2 to look at
Part VIII · Statement of revenue $681,362 across 4 lines filed
Part IX · Statement of functional expenses $538,172 across 11 lines filed
Part X · Balance sheet $246,797 assets, 5 lines filed
Part XI · Reconciliation of net assets $246,797 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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