Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jun 2015.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
80 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
8 people listed on the 990.
Deana Cavan’s $64K as Executive Director is at the 49th percentile of top reported officer pay among 1979 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2021 | FY2020 |
|---|---|---|---|
| Deana Cavan | $63,962 | $29,808 | $25,769 |
| Beecher Grogan | $14,477 | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Provides healing retreats and gatherings for families facing childhood cancer, fostering connection and hope.
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Rett's roost's most influential program is its free retreats for families who are facing childhood cancer or child loss. The retreats give families much needed therapeutic and peer support in an intimate, natural setting for 3-5 full days.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $200K | $173K |
| Land, buildings, equipmentLn 10c | $2K | $0 |
| Total assetsLn 16 | $202K | $173K |
| LiabilitiesLn 26 | $2K | $2K |
| Net assetsLn 32 | $200K | $171K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $48K | $31K | $5K | $12K |
| Other salaries and wagesLn 7 | $22K | $9K | $3K | $11K |
| Payroll taxesLn 10 | $6K | $5K | $706 | $963 |
| Accounting feesLn 11c | $695 | $695 | ||
| Other fees for servicesLn 11g | $3K | $1K | $2K | $274 |
| Advertising and promotionLn 12 | $1K | $724 | $682 | |
| Office expensesLn 13 | $430 | $430 | ||
| Information technologyLn 14 | $12K | $6K | $6K | |
| TravelLn 17 | $25 | $19 | $6 | |
| Conferences, conventions and meetingsLn 19 | $609 | $212 | $334 | $63 |
| Depreciation, depletion and amortizationLn 22 | $2K | $2K | ||
| InsuranceLn 23 | $3K | $277 | $3K | |
| Other expenses (24a–d)Ln 24 | $149K | $147K | $2K | |
| All other expensesLn 24e | $2K | $675 | $1K | $29 |
| Total functional expensesLn 25 | $251K | $201K | $20K | $30K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $304K | $250K | $53K | $278K | 990 PDF |
| FY2024 | $254K | $201K | $53K | $224K | 990 PDF |
| FY2023 Viewing | $222K | $251K | −$29K | $171K | 990 PDF |
| FY2022 | $236K | $183K | $53K | $200K | 990 PDF |
| FY2021 | $149K | $148K | 990 PDF | ||
| FY2020 | $121K | $115K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (4 parts)
Part VIII · Statement of revenue $221,631 across 7 lines filed
Part IX · Statement of functional expenses $250,901 across 14 lines filed
Part X · Balance sheet $173,075 assets, 8 lines filed
Part XI · Reconciliation of net assets $170,867 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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