Amyloidosis Research Consortium INC
Speeds up creating better tests and treatments for systemic amyloidosis. For fiscal year 2024 it reported $3.4M in revenue, $3.0M in expenses, and $3.1M in net assets.Pt I
- Type
- Public charity (501(c)(3)) · Medical Research
- Location
- Newton, MA
- Website
- www.arci.org
- Filings
- 5 on file (2020–2024)
More identity details & actions ⌄
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Summary of the Filing
Where the work happens
Awareness, Educational Programs and Advocacy
Arc's patient and healthcare professional programs educate physicians and tailor information to suit the patient's needs and are successfully matching them to better treatment centers, care, and clinical trials. Arc's patient advisory board are instrumental in defining and prioritizing arc's patient programs.
Research Programs
Arc has been working on a number of research initiatives including datasharing, and patient experience studies. Arc has also developed an appointment companion tool that supports patients throughout their treatment journey. The anonymized aggregated data provides valuable real world incites.
Healthcare Professional Education
Arc has carried out research to understand the barriers and pathways to early diagnosis. From this research, arc developed and implement targeted solutions. Arc raises awareness and provides physician education on the signs, symptoms, and care of amyloidosis to raise the level of suspicion, improve the speed of diagnosis, and standards…
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Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Isabelle Lousada’s $175K as President/CEO & Clerk is at the 49th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Isabelle Lousada | $175,000 | $178,365 | $174,102 | $142,005 | $137,869 |
| Vanessa Boulanger | — | — | $131,888 | — | — |
| Kristen Hsu | — | — | $125,022 | $120,967 | — |
| Robyn Himick | — | — | — | $110,449 | $107,231 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 78% | — | — |
| Overhead ratio | 10% | — | — |
| Fundraising cost ratio | 12% | — | — |
| Revenue growth | 17% | — | — |
| Legal fee ratio | 0.9% | — | — |
| Accounting fee ratio | 2% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
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