Is it real?
Yes. Exemption reinstated (2017-02-15). Per the IRS revocation list. Latest filing on record: FY2025. IRS ruling in Dec 2018.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
72 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
20 people listed on the 990; $44K paid to officers and key staff.
Sarah Sperling’s $89K as Executive Director is at the 17th percentile of top reported officer pay among 734 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|
| Sarah Sperling | $89,317 | $91,983 | — | — |
| Hubert Fernandez | $27,370 | $7,807 | $8,100 | $11,500 |
| Michael Schwarzchild | $21,059 | $11,715 | $3,000 | $3,000 |
| Andrew Siderowf | $18,520 | $4,983 | — | — |
| Eric Macklin | — | $12,938 | — | — |
| David Simon | — | — | $5,057 | $8,712 |
| Tanya Simuni | $7,000 | $4,750 | — | — |
| Grace Bwala | $5,750 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Parkinson Study Group INC is a disease and medical nonprofit based in East Boston, MA.
Questions for Parkinson Study Group INC
Your first name shows with your question. Parkinson Study Group INC answers here, for everyone.
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Facilitated the expansion and diversification of PD trials and targeted indications, including: trials for non-motor symptomatic indications, industry-sponsored trials, and investigator-initiated programs. Developed collaborations with groups such as the parkinsons foundation, pair program, NIH/NINDS, and the world parkinson congress.
Facilitated the expansion and diversification of PD trials and targeted indications, including: trials for non-motor symptomatic indications, industry-sponsored trials, and investigator-initiated programs. Developed collaborations with groups such as the parkinsons foundation, pair program, NIH/NINDS, and the world parkinson congress.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $1.8M | $1.6M | $191K | $1.3M | 990 PDF |
| FY2024 | $966K | $999K | −$32K | $1.1M | 990 PDF |
| FY2023 | $721K | $676K | $45K | $1.1M | 990 PDF |
| FY2022 | $899K | $481K | $418K | $1.1M | 990 PDF |
| FY2021 Viewing | $380K | $390K | −$10K | $667K | 990 PDF |
| FY2020 | $378K | $312K | $66K | $318K | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (1 part)
Part VI · Governance 9 of 10 board members independent, 2 to look at
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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