Heterotaxy Connection
Supports individuals and families affected by heterotaxy with resources and empowerment. For fiscal year 2024 it reported $804K in revenue, $19K in expenses, and $807K in net assets.Pt I
- Type
- Public charity (501(c)(3)) · Diseases & Disorders
- Location
- Eagle Mtn, UT
- Website
- www.heterotaxy.org
- Filings
- 1 on file (2024–2024)
More identity details & actions ⌄
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Summary of the Filing
Where the work happens
Heterotaxy connection hosted the first ever multidisciplinary scientific conference dedicated to the diagnosis and treatment of heterotaxy. The conference was held in conjunction with HRC3, was recorded, and is available to share with medical teams worldwide.
Heterotaxy connection provides patient and family support to those affected by heterotaxy. The organization strives to connect patients and families to educate and empower them. The organization provides welcome bags to families with new diagnoses, get well gifts in partnership with the claire the heart warrior foundation, and…
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Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Necia Sabin’s $10K as President & is at the 4th percentile of top reported officer pay among 900 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 13% | — | — |
| Overhead ratio | 86% | — | — |
| Fundraising cost ratio | 0.02% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
Names, privacy, and removal requests More
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