Sickle cell disease research and education

501(c)(3) charity; gifts are tax-deductible.
81¢ of each $1 spent went to programs.
$300K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

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FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
1 of 2
filings with a surplus
Average deficit $543K a year · 18% of revenue · last 2 filings
Worth a look: a surplus in 1 of the last 2 filings.
Pt I · Ln 19 · 2 filings
Spent on programs
81%
of spending
Looks good: 81% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$300K
to officers and key staff · 7% of spending
Looks good: pay to officers and key staff is 7% of spending; 15% or less.
Pt VII · Sec A
<1 mo
of spending, in cash
Concern: 0.0 months of spending in cash; under 2 weeks.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $15K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$692K
182% of total assets
Concern: liabilities are 182% of assets; over 80%.
Pt X · Ln 26
Independent board members
0
of 10 voting members
Concern: none of 10 voting members are independent.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$3.4M
+22% vs prior year
Spent
$4.6M
To programs
81%
Net assets
−$313K
By yearFY2022–FY2024
Revenue
$3.4M
FY2024▲ +22%
Tap a bar for its year
Revenue by fiscal year
FY2022$2.8M
FY2024$3.4M
Expenses
$4.6M
FY2024▲ +72%
Tap a bar for its year
Expenses by fiscal year
FY2022$2.7M
FY2024$4.6M
Net assets
−$313K
FY2024▼ -212%
Tap a bar for its year
Net assets by fiscal year
FY2022$278K
FY2024−$313K

From the FY2024 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Exemption reinstated (2022-05-15). Per the IRS revocation list. Latest filing on record: FY2024. IRS ruling in Feb 2024.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

81 cents of each dollar spent went to programs.

Program services 81% · $3.7M Management & general 19% · $874K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

5 people listed on the 990; $300K paid to officers and key staff.

Part VII, Section A · reportable compensation
$175,000Pt VII · Sec A
$125,500Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A

Lanetta Bronte’s $175K as President is at the 63rd percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 2 named individuals · Part VII

NameFY2024FY2022
Lanetta Bronte$175,000$175,011
Kyla Thorpe$125,500$127,597

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Florida Sickle Incorporated executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research and provides education about sickle cell disease.

Questions for Florida Sickle Incorporated

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Your first name shows with your question. Florida Sickle Incorporated answers here, for everyone.

Provided by the organization

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2 programs · $533K · in their own filed words · FY2024
01

The Foundadtion continued its expansion into the State of Florida by opening several new centers to include: Belle Galdes Fort Pierce Ft Myers Pensacola Panama City Daytona Beach More locations to be added in Fiscal year 2025

$355Kprogram expense
02

The Florida Sickle Cell Disease Registry collects valuable information about sickle cell disease and the sickle cell trait. This helps healthcare teams, patients, and families make informed health choices and support ongoing research.

$178Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
Total grants receivedfrom 2 funders$15K

By the numbers

The FY2024 990, line by line.

1The main four
Money inPt VIII
$3.4M
Ln 12
Gifts and grantsLn 1h$3.2M
Fees for servicesLn 2g$188K
Money outPt IX
$4.6M
Ln 25
Programscol B$3.7M
Managementcol C$874K
Owns and owesPt X
−$313K
net assets · Ln 32
Cash and savingsLn 1–2$9K
Total assetsLn 16$379K
LiabilitiesLn 26$692K
PeoplePt VI, VII
5
listed · VII A
PaidVII A2
Voting boardVI 1a10
IndependentVI 1b0
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$3.2M
Government grantsLn 1e$3.1M
Fees for servicesLn 2g$188K
Total revenueLn 12$3.4M
Assets in detailPt X, end of year
CashLn 1$9K
Cash and savings togetherLn 1–2$9K
Land, buildings, equipmentLn 10c$370K
Total assetsLn 16$379K
LiabilitiesLn 26$692K
Net assetsLn 32−$313K
OperationsPt I, VI
EmployeesI 511
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$9K$9K
Land, buildings, equipmentLn 10c$299K$370K
Total assetsLn 16$308K$379K
LiabilitiesLn 26$6K$692K
Net assetsLn 32$303K−$313K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Pay of current officers, directors and key staffLn 5$923K$923K
Other salaries and wagesLn 7$529K$529K
Other employee benefitsLn 9$22K$22K
Payroll taxesLn 10$162K$162K
Management feesLn 11a$232K$232K
Legal feesLn 11b$52K$52K
Accounting feesLn 11c$670$670
Other fees for servicesLn 11g$72K$72K
Advertising and promotionLn 12$136K$136K
Office expensesLn 13$32K$32K
Information technologyLn 14$107K$107K
OccupancyLn 16$599K$599K
Conferences, conventions and meetingsLn 19$534K$534K
InsuranceLn 23$10K$10K
Other expenses (24a–d)Ln 24$225K$225K
All other expensesLn 24e$934K$934K
Total functional expensesLn 25$4.6M$3.7M$874K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $3.4M$4.6M−$1.2M−$313K 990 PDF
FY2023 Not on file
FY2022 $2.8M$2.7M$113K$278K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support J · Pay O · Explanations
See the full FY2024 990 (6 parts)
Part I · Summary $3,373,049 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $4,980,268$3,184,778
I-9 Program service revenue$188,271
I-10 Investment income$0
I-11 Other revenue$0
I-12 Total revenuePrior year $4,980,268$3,373,049
I-13 Grants and similar amounts paid$0
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $987,671$1,636,342
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $3,053,397$2,934,769
I-18 Total expensesPrior year $4,041,068$4,571,111
I-19 Revenue less expensesPrior year $939,200−$1,198,062
Part VI · Governance 0 of 10 board members independent, 1 to look at
VI-1a Voting members of the governing body10
VI-1b Independent voting members0
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $3,373,049 across 7 lines filed
VIII-1b Membership dues$11,273
VIII-1e Government grants$3,063,341
VIII-1f All other contributions, gifts and grants$110,164
VIII-1h Total contributions, gifts and grants$3,184,778
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $188,271$188,271
VIII-8 Net income from fundraising events$0
VIII-12 Total revenueRelated to mission $188,271 · Unrelated business $0 · Excluded from tax $0$3,373,049
Part IX · Statement of functional expenses $4,571,111 across 16 lines filed
IX-5 Pay of current officers, directors and key staffPrograms $923,219$923,219
IX-7 Other salaries and wagesPrograms $528,791$528,791
IX-9 Other employee benefitsPrograms $21,870$21,870
IX-10 Payroll taxesPrograms $162,462$162,462
IX-11a Management feesPrograms $231,989$231,989
IX-11b Legal feesPrograms $51,522$51,522
IX-11c Accounting feesPrograms $670$670
IX-11g Other fees for servicesPrograms $71,850$71,850
IX-12 Advertising and promotionManagement $135,698$135,698
IX-13 Office expensesManagement $31,804$31,804
IX-14 Information technologyManagement $107,310$107,310
IX-16 OccupancyManagement $599,475$599,475
IX-19 Conferences, conventions and meetingsPrograms $534,474$534,474
IX-23 InsurancePrograms $10,499$10,499
IX-24 Other expenses (24a–d)Programs $225,074$225,074
IX-24e All other expensesPrograms $934,404$934,404
IX-25 Total functional expensesPrograms $3,696,824 · Management $874,287 · Fundraising $0$4,571,111
Part X · Balance sheet $379,134 assets, 7 lines filed
X-1 Cash, non-interest-bearingStart of year $9,099$9,100
X-10c Land, buildings and equipment, netStart of year $299,279$370,034
X-16 Total assetsStart of year $308,378$379,134
X-17 Accounts payable and accrued expenses$691,744
X-26 Total liabilitiesStart of year $5,643$691,744
X-32 Total net assets or fund balancesStart of year $302,735−$312,610
X-33 Total liabilities and net assetsStart of year $308,378$379,134
Part XI · Reconciliation of net assets −$312,610 net assets at year end
XI-1 Total revenue$3,373,049
XI-2 Total expenses$4,571,111
XI-3 Revenue less expenses−$1,198,062
XI-4 Net assets at start of year$302,735
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year−$312,610

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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