Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Oct 2011.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
85 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
8 people listed on the 990; $106K paid to officers and key staff.
Glenna Steele’s $55K as Executive Director is at the 39th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Glenna Steele | $55,000 | $50,192 | $45,192 | $45,000 | $45,000 | $41,785 |
| Sandra Ojeda | $51,000 | $49,077 | — | — | — | — |
| Sandra Ojeda Torres | — | — | $47,558 | $35,866 | $13,077 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Glut1 Deficiency Foundation INC executive salaries →On this list? Claim this org
Something off? Claim to add context
Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Advocates for patients with Glut1 Deficiency, funding research and raising awareness.
Questions for Glut1 Deficiency Foundation INC
Your first name shows with your question. Glut1 Deficiency Foundation INC answers here, for everyone.
Know this org? Add your story
Research Support
The GLUT1 Deficiency Foundation supports research to advance understanding of GLUT1 Deficiency and accelerate the development of improved treatments. The Foundation awards seed grants to investigators whose projects align with patient-driven priorities identified through our collaborative Research Compass.
Education and Awareness
The GLUT1 Deficiency Foundation has several outreach programs to help raise awareness and improve education among stakeholders in the community. In 2025, we hosted educational exhibits at 3 professional meetings to educate healthcare professionals in a position to diagnosed patients or improve care.
Advocacy and Support
Monthly virtual meetings were held on Zoom for parents and caregivers, in both English and Spanish sessions. Monthly meetings were also held for tween and teenage patients and for adult patients. A private Facebook group is managed as a place for the community to get information and support.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $366K | $358K |
| Total assetsLn 16 | $366K | $358K |
| LiabilitiesLn 26 | $39K | $11K |
| Net assetsLn 32 | $327K | $348K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $141K | $141K | ||
| Grants and assistance to foreign recipientsLn 3 | $9K | $9K | ||
| Pay of current officers, directors and key staffLn 5 | $122K | $98K | $11K | $13K |
| Payroll taxesLn 10 | $9K | $7K | $848 | $980 |
| Accounting feesLn 11c | $15K | $15K | ||
| Advertising and promotionLn 12 | $22K | $22K | ||
| Office expensesLn 13 | $5K | $5K | ||
| Information technologyLn 14 | $2K | $2K | ||
| Conferences, conventions and meetingsLn 19 | $48K | $48K | ||
| InsuranceLn 23 | $4K | $4K | ||
| Other expenses (24a–d)Ln 24 | $105K | $83K | $9K | $13K |
| All other expensesLn 24e | $3K | $2K | $1K | |
| Total functional expensesLn 25 | $484K | $409K | $48K | $27K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $505K | $484K | $21K | $348K | 990 PDF |
| FY2024 | $515K | $609K | −$94K | $327K | 990 PDF |
| FY2023 | $340K | $360K | −$19K | $421K | 990 PDF |
| FY2022 | $777K | $612K | $165K | $440K | 990 PDF |
| FY2021 | $452K | $346K | $106K | $275K | 990 PDF |
| FY2020 | $358K | $286K | $72K | $169K | 990 PDF |
More to add? Claim this org
Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $504,749 revenue, 12 lines filed
Part VI · Governance 6 of 6 board members independent, no flags
Part VIII · Statement of revenue $504,749 across 8 lines filed
Part IX · Statement of functional expenses $484,095 across 12 lines filed
Part X · Balance sheet $358,299 assets, 7 lines filed
Part XI · Reconciliation of net assets $347,502 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
Similar organizations you could support · Compare with another nonprofit
Names, privacy, and removal requests More
The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.
Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.
We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.
Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.
If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.
Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.
If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.
Your org? Add context
Made it to the end? Claim this org