Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Aug 1998.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
68 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
11 people listed on the 990; $115K paid to officers and key staff.
Vicki Kopplin’s $115K as Executive Director is at the 87th percentile of top reported officer pay among 1979 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Vicki Kopplin | $115,000 | $18,592 | — | — | — | — |
| James Paist | — | — | $91,532 | $88,787 | $89,000 | $87,526 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Upper Midwest Bleeding Disorders Al Liance executive salaries →Are you one of these people? Claim this org to confirm your role
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Improves life quality for individuals and families with hemophilia and bleeding disorders through services and programs.
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More than 200 people received education about bleeding disorders and their impact on individuals and families. More than $50,000 was provided in direct patient support including providing free medical ids and two educational scholarships totaling $5000. A camp especially for kids and teens with bleeding disorders.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $131K | $126K |
| InvestmentsLn 11–13 | $362K | $378K |
| Total assetsLn 16 | $493K | $506K |
| LiabilitiesLn 26 | $16K | $618 |
| Net assetsLn 32 | $477K | $505K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic individualsLn 2 | $55K | $55K | ||
| Pay of current officers, directors and key staffLn 5 | $115K | $78K | $17K | $20K |
| Other salaries and wagesLn 7 | $56K | $6K | $39K | $11K |
| Pension plan contributionsLn 8 | $5K | $2K | $2K | $1K |
| Other employee benefitsLn 9 | $35K | $15K | $12K | $8K |
| Payroll taxesLn 10 | $17K | $7K | $6K | $4K |
| Accounting feesLn 11c | $12K | $12K | ||
| Office expensesLn 13 | $14K | $10K | $4K | |
| Information technologyLn 14 | $3K | $3K | ||
| TravelLn 17 | $7K | $7K | ||
| Conferences, conventions and meetingsLn 19 | $662 | $662 | ||
| InsuranceLn 23 | $6K | $6K | $400 | |
| Other expenses (24a–d)Ln 24 | $230K | $189K | $41K | |
| Total functional expensesLn 25 | $557K | $376K | $90K | $90K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $584K | $557K | $27K | $505K | 990 PDF |
| FY2024 | $484K | $529K | −$46K | $482K | 990 PDF |
| FY2023 | $401K | $475K | −$74K | $529K | 990 PDF |
| FY2022 | $213K | $304K | −$91K | $652K | 990 PDF |
| FY2021 | $439K | $298K | $141K | $748K | 990 PDF |
| FY2020 | $276K | $264K | $12K | $606K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (4 parts)
Part VIII · Statement of revenue $583,593 across 9 lines filed
Part IX · Statement of functional expenses $556,964 across 13 lines filed
Part X · Balance sheet $505,703 assets, 11 lines filed
Part XI · Reconciliation of net assets $505,085 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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