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Childrens Brittle Bone Foundation

Tax-deductible

Chicago, IL501(c)(3)EIN 36-3747896

Funding the research for a cure to osteogenesis imperfecta (oi). Providing assitance in the form of "impact grants" to individuals living with oi.

501(c)(3) charity; gifts are tax-deductible.
95¢ of each $1 spent went to programs.
Run by 25 volunteers.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 4
filings with a surplus
Average surplus $59K a year · 26% of revenue · last 4 filings
Fine: a surplus in 3 of the last 4 filings.
Pt I · Ln 19 · 4 filings
Spent on programs
95%
of spending
Looks good: 95% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
25 mo
of spending, in cash
Looks good: 25.4 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $42K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
19
of 19 voting members
Looks good: 19 of 19 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$231K
+36% vs prior year
Spent
$276K
To programs
95%
Net assets
$669K
By yearFY2020–FY2024
Revenue
$231K
FY2024▲ +36%
Revenue by fiscal year
FY2020$92K
FY2021$330K
FY2022$173K
FY2023$170K
FY2024$231K
Expenses
$276K
FY2024▲ +82%
Expenses by fiscal year
FY2020Not on file
FY2021$100K
FY2022$141K
FY2023$152K
FY2024$276K
Net assets
$669K
FY2024▼ -6%
Net assets by fiscal year
FY2020$434K
FY2021$666K
FY2022$694K
FY2023$713K
FY2024$669K

From the FY2024 Form 990 (year ending October 2024) · see the original

Give Claim

Status and standing

Is it real, and can you give to it?

Tax-deductible?
Yes
Per the IRS master file.
Can I give now?
No revocation on IRS record
Not on the IRS revocation list.
Filing up to date?
Last filed FY2024 — 3 yrs ago
Legal name (IRS)Hdr · item CChildrens Brittle Bone Foundation
EINHdr · item D36-3747896
Exempt statusHdr · item I501(c)(3) · active
Ruling yearIRS BMFNov 1992
Latest filingForm 990FY2024 · Form 990
Principal addressHdr · item CChicago, IL
NTEE classificationIRS BMFNonprofit
WebsiteHdr · item Jwww.cbbf.org

Where the money goes

What each dollar paid for.

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.95 Management & general $0.05
Program services95%$263K
Management & general5%$13K
Total functional expensesLn 25$276K

Financial health

Is it on solid ground?

Program efficiency
95%
of spending reaches programs+0.1% vs prior filing year
Operating runway
28.0mo
months of highly liquid reserves at operating expense rate▼ -49% vs prior filing year
Surplus margin
-19%
revenue over expenses, this year▼ -281% vs prior filing year

Summary of the Filing

Part I · fiscal year 2024 · Form 990
Total assets
$669K
FY2024▼ -6%
Total assets by fiscal year
FY2020Not on file
FY2021$666K
FY2022$694K
FY2023$713K
FY2024$669K
Total liabilities
$0
FY2024
Total liabilities by fiscal year
FY2020Not on file
FY2021$0
FY2022$0
FY2023$0
FY2024$0
Revenue less expensesPt I · Ln 19−$45K
Total assetsPt X · Ln 16$669K
Program-expense ratioPt IX · col B95%
Voting members of governing bodyPt I · Ln 319
Independent voting membersPt I · Ln 419

Balance Sheet

Part X · end of year
CashLn 1$584K
Total assetsLn 16$669K
Total liabilitiesLn 26$0
Total net assetsLn 32$669K
Months of cash on handcomputed25.4

Statement of Revenue

Part VIII
Contributions & grants$125K · 54%
Other revenue$98K · 42%
Investment income$8K · 3%
Contributions & grants54%$125K
Other revenue42%$98K
Investment income3%$8K
Total revenueLn 12$231K

Financial Metrics

Form 990 · FY2024 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $644K · Operating expenses/yr $276K
28.0 months
Where the money goes
Program services
Program services $263K · Total expenses $276K
95%
Management & General
Management & general $13K · Total expenses $276K
5%
Fundraising
Fundraising $0 · Total expenses $276K
0%
Cost to raise $1
Fundraising expense (3-yr avg) $0 · Solicited contributions (3-yr avg) $92K
Solicited contributions below reporting floor
Where the money comes from
Contribution dependence
Contributions & grants $125K · Total revenue $231K
54%
Government reliance
Government grants — · Total revenue $231K
—
Earned-income share
Program service revenue $0 · Total revenue $231K
0%
Investment reliance
Investment income $8K · Total revenue $231K
+3%
Program self-sufficiency
Program service revenue $0 · Total expenses $276K
0%
Growth & trend
Revenue growth (YoY)
This year $231K · Prior year $170K
+36%
Revenue CAGR
FY2019 $92K · FY2023 $231K
+26%
Net-asset trend (YoY)
End of year $669K · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $231K · Expenses $276K
-19%
Liabilities-to-Assets
Total liabilities — · Total assets $669K
—
Net-asset ratio
Net assets $669K · Total assets $669K
100%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $60K · Other securities (Pt X, ln 12) $0 · Total assets (Pt X, ln 16) $669K
9%
People & payroll
Highest Reported Total Compensation
Individual Jay Freedman · Reported title Director · Highest reported compensation $0 · Total expenses $276K
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $0 · Total expenses $276K
0%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 95%——
Overhead ratio 5%——
Fundraising cost ratio 0%——
Revenue growth 36%——
Investment management fee ratio 0%——
Legal fee ratio 0%——
Accounting fee ratio 2%——
Fundraising fee ratio 0%——

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Leadership and pay

Who runs it, and what are they paid?

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation · most recent filed roster (FY2023); the FY2024 filing did not itemize Part VII
Jay Freedman
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Jeff Yehle
Director
$0Pt VII · Sec A
Chen Ittel
Director
$0Pt VII · Sec A
Hub Arkush
Director
$0Pt VII · Sec A
Jim Coleman
Director
$0Pt VII · Sec A
Michael Glicken
Co-President
$0Pt VII · Sec A
See Childrens Brittle Bone Foundation executive salaries →

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Governance & Policies

Part VI
  • 19Voting board membersPt VI · Ln 1a
  • 19Independent board membersPt VI · Ln 1b
  • Conflict-of-interest policyPt VI · Ln 12aNo
  • Whistleblower policyPt VI · Ln 13No
  • Document retention policyPt VI · Ln 14No
  • Top official’s pay independently reviewedPt VI · Ln 15aNo
  • Family or business ties among leadersPt VI · Ln 2No

Mission and programs

What it does.

Funds research for an Osteogenesis Imperfecta cure and provides grants to those affected.

Provided by the organization

This section is blank until Childrens Brittle Bone Foundation claims this page.

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Mission & Programs · Part III

Where the work happens

1 program service account for $263K of program spending, described in the organization's own filed words · FY2023.
01

Providing assitance in the form of "impact grants" to individuals living with oi.

$263Kprogram expense

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Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Gs Donor Advised Philanthropy Fund for Wealth Management INCFY2024$31K
Donor Advised Charitable Giving INCFY2024$10K
Total grants receivedfrom 2 funders$42K
Grants paid · 4 grants · $625K · 2020–2023
Osteogenesis ImperfectFY2023$262,893
Osteogenesis ImperfectFY2022$144,490
Osteogenesis ImperfectFY2021$129,696
Osteogenesis ImperfectFY2020$88,170

Filing history

Every return on file.

YearRevenueExpensesChangeFiling
FY2024 Latest Viewing $231K$276K+36% 990 PDF
FY2023 $170K$152K-2% 990 PDF
FY2022 $173K$141K-47% 990 PDF
FY2021 $330K$100K+258% 990 PDF
FY2020 $92K— 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash

Full filing: Form 990 for FY2024

Every line we hold from the return, cited to its Part and line.
Part IX · Statement of functional expenses $275,781 across 31 lines filed
IX-1 Grants to domestic organizationsPrograms $262,893$262,893
IX-2 Grants to domestic individuals$0
IX-3 Grants and assistance to foreign recipients$0
IX-4 Benefits paid to or for members$0
IX-5 Pay of current officers, directors and key staff$0
IX-6 Pay of disqualified persons$0
IX-7 Other salaries and wages$0
IX-8 Pension plan contributions$0
IX-9 Other employee benefits$0
IX-10 Payroll taxes$0
IX-11a Management fees$0
IX-11b Legal fees$0
IX-11c Accounting feesManagement $5,100$5,100
IX-11d Lobbying fees$0
IX-11e Professional fundraising fees$0
IX-11f Investment management fees$0
IX-11g Other fees for services$0
IX-12 Advertising and promotion$0
IX-13 Office expensesManagement $1,025$1,025
IX-14 Information technology$0
IX-15 Royalties$0
IX-16 Occupancy$0
IX-17 Travel$0
IX-18 Travel and entertainment for public officials$0
IX-19 Conferences, conventions and meetings$0
IX-20 Interest$0
IX-21 Payments to affiliates$0
IX-22 Depreciation, depletion and amortization$0
IX-23 Insurance$0
IX-24 Other expenses (24a–d)Management $6,763$6,763
IX-24e All other expenses$0
IX-25 Total functional expensesPrograms $262,893 · Management $12,888 · Fundraising $0$275,781

Not shown yet: ratings, outcomes, and peer benchmarks. A Form 990 doesn’t report them.

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2024IRS
Classification, formation year, addressIRS Business Master File
Names, privacy, and removal requests More

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