Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Sep 2010.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
70 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
8 people listed on the 990.
Angela Weaver’s $100K as Board Member is at the 85th percentile of top reported officer pay among 1264 $100K–1M philanthropy & grantmaking nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Fund research to improve understanding and develop therapies for Smith-Magenis Syndrome.
Questions for Sms Research Foundation
Your first name shows with your question. Sms Research Foundation answers here, for everyone.
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Medical research grant to mcgill university in order to improve knowledge and understangin of smith-magenis syndrome so that viable therapeutic options can be developed in order to improve the quality of life for those with smith-magenis syndrome.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $328K | $364K |
| Land, buildings, equipmentLn 10c | $636 | $318 |
| Total assetsLn 16 | $329K | $365K |
| LiabilitiesLn 26 | $2K | $708 |
| Net assetsLn 32 | $327K | $364K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants and assistance to foreign recipientsLn 3 | $162K | $162K | ||
| Other salaries and wagesLn 7 | $17K | $17K | ||
| Payroll taxesLn 10 | $1K | $1K | ||
| Management feesLn 11a | $759 | $759 | ||
| Accounting feesLn 11c | $3K | $3K | ||
| Other fees for servicesLn 11g | $249 | $249 | ||
| Advertising and promotionLn 12 | $12K | $12K | ||
| Office expensesLn 13 | $25K | $25K | ||
| Information technologyLn 14 | $6K | $6K | ||
| TravelLn 17 | $714 | $714 | ||
| Depreciation, depletion and amortizationLn 22 | $2K | $2K | ||
| InsuranceLn 23 | $1K | $1K | ||
| Total functional expensesLn 25 | $232K | $162K | $70K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $267K | $325K | −$58K | $348K | 990 PDF |
| FY2023 | $281K | $239K | $42K | $406K | 990 PDF |
| FY2022 Viewing | $269K | $232K | $37K | $364K | 990 PDF |
| FY2021 | $256K | $448K | −$192K | $327K | 990 PDF |
| FY2020 | $401K | $457K | −$56K | $519K | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $268,855 revenue, 12 lines filed
Part VI · Governance 4 of 7 board members independent, 5 to look at
Part VIII · Statement of revenue $268,855 across 5 lines filed
Part IX · Statement of functional expenses $232,199 across 12 lines filed
Part X · Balance sheet $364,669 assets, 9 lines filed
Part XI · Reconciliation of net assets $363,961 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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