Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Apr 2010.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
59 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
17 people listed on the 990; $239K paid to officers and key staff.
Thomas F Stanton’s $172K as President is at the 65th percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Thomas F Stanton | $171,765 | $165,863 | $150,338 | $143,092 | — |
| Thomas Stanton | — | — | — | — | $136,530 |
| Mary Duffy | $110,963 | $112,114 | $101,412 | $96,330 | $93,530 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Educates, supports, and advances awareness and solutions for sudden unexplained death in epilepsy.
Questions for Danny Did Foundation
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The danny did foundation holds as its main goals 1) advancing awareness of epilepsy and sudden unexpected death in epilepsy (sudep), 2) enhancing the sudep communication model between medical professionals and families who are impacted by seizures, and 3) the mainstreaming of devices and technologies that may assist in preventing deaths…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $694K | $1.1M |
| InvestmentsLn 11–13 | $842K | $966K |
| Land, buildings, equipmentLn 10c | $16K | $11K |
| Total assetsLn 16 | $1.6M | $2.1M |
| LiabilitiesLn 26 | $51K | $10K |
| Net assetsLn 32 | $1.6M | $2.1M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic individualsLn 2 | $153K | $153K | ||
| Pay of current officers, directors and key staffLn 5 | $239K | $120K | $60K | $60K |
| Other salaries and wagesLn 7 | $9K | $5K | $2K | $2K |
| Other employee benefitsLn 9 | $5K | $2K | $1K | $1K |
| Payroll taxesLn 10 | $19K | $10K | $5K | $5K |
| Management feesLn 11a | $38K | $38K | ||
| Advertising and promotionLn 12 | $5K | $1K | $4K | |
| Office expensesLn 13 | $7K | $7K | ||
| Information technologyLn 14 | $5K | $5K | ||
| OccupancyLn 16 | $24K | $24K | ||
| TravelLn 17 | $3K | $2K | $929 | $355 |
| Depreciation, depletion and amortizationLn 22 | $5K | $5K | ||
| InsuranceLn 23 | $6K | $6K | ||
| Other expenses (24a–d)Ln 24 | $128K | $87K | $2K | $39K |
| All other expensesLn 24e | $417 | $417 | ||
| Total functional expensesLn 25 | $648K | $384K | $154K | $111K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $1.7M | $1.5M | $231K | $3.1M | 990 PDF |
| FY2023 | $1.6M | $1.2M | $324K | $2.9M | 990 PDF |
| FY2022 | $1.5M | $957K | $497K | $2.5M | 990 PDF |
| FY2021 Viewing | $1.1M | $648K | $476K | $2.1M | 990 PDF |
| FY2020 | $702K | $574K | $128K | $1.6M | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $1,124,024 revenue, 12 lines filed
Part VI · Governance 15 of 15 board members independent, 1 to look at
Part VIII · Statement of revenue $1,124,024 across 8 lines filed
Part IX · Statement of functional expenses $648,162 across 15 lines filed
Part X · Balance sheet $2,130,382 assets, 12 lines filed
Part XI · Reconciliation of net assets $2,120,343 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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