Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 2007.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
89 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
13 people listed on the 990.
Rick Karl’s $48K as President is at the 33rd percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2021 | FY2020 |
|---|---|---|---|
| Rick Karl | $48,000 | $48,000 | $48,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Funds research to treat and cure Tay-Sachs disease.
Questions for Cure Tay-Sachs Foundation
Your first name shows with your question. Cure Tay-Sachs Foundation answers here, for everyone.
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The cure tay-sachs foundation has been created to fund the research initiatives that show promise to treat and ultimately cure tay-sachs disease (TSD). TSD is hereditary disease passed on when two carrier parents both pass the tay-sachs gene to their child.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $199K | $79K |
| InvestmentsLn 11–13 | $1.9M | $2.2M |
| Total assetsLn 16 | $2.1M | $2.3M |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $2.1M | $2.3M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants and assistance to foreign recipientsLn 3 | $146K | $146K | ||
| Pay of current officers, directors and key staffLn 5 | $48K | $24K | $24K | |
| Lobbying feesLn 11d | $1K | $1K | ||
| Advertising and promotionLn 12 | $20K | $20K | ||
| TravelLn 17 | $6K | $6K | ||
| InsuranceLn 23 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $14K | $14K | $604 | |
| Total functional expensesLn 25 | $238K | $212K | $26K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $141K | $251K | −$110K | $1.9M | 990 PDF |
| FY2023 | $108K | $189K | −$82K | $2.1M | 990 PDF |
| FY2022 Viewing | $448K | $238K | $210K | $2.3M | 990 PDF |
| FY2021 | $193K | $226K | −$33K | $2.1M | 990 PDF |
| FY2020 | $290K | $154K | $136K | $2.1M | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $448,202 revenue, 12 lines filed
Part VI · Governance 13 of 13 board members independent, 2 to look at
Part VIII · Statement of revenue $448,202 across 6 lines filed
Part IX · Statement of functional expenses $238,193 across 7 lines filed
Part X · Balance sheet $2,287,110 assets, 6 lines filed
Part XI · Reconciliation of net assets $2,287,110 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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