Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Nov 1972.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
82 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
29 people listed on the 990; $142K paid to officers and key staff.
Patricia Varanese’s $84K as Executive Director is at the 67th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Kelley Needham | — | $121,104 | — | — | — |
| Kelley S Needham | — | — | $117,347 | $113,527 | $111,659 |
| Patricia Varanese | $84,075 | $20,983 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Offers specialized support for individuals and families impacted by epilepsy.
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Patient Services
The association provides community case management and mental health assessment services to adult clients who are affected by epilepsy. Clients meet with agency social workers to establish individualized goals. Plans are established to assist clients in meeting those needs.
Kids and Family
The association provides support for families who have a child with epilepsy. The association staff assess the needs of each family member with one-on-one support and connects them with community services, provides general assistance, epilepsy education and advocacy. Services are tailored to meet the unique needs of each family.
Public Health Education
The association provides educational presentations to a variety of community groups, students, teachers, and the general public to increase the awareness and understanding of epilepsy. Education is provided about epilepsy facts, seizure recognition, and epilepsy first aid.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $262K | $154K |
| InvestmentsLn 11–13 | $948K | $1.1M |
| Land, buildings, equipmentLn 10c | $8K | $20K |
| Total assetsLn 16 | $1.3M | $1.4M |
| LiabilitiesLn 26 | $145K | $102K |
| Net assetsLn 32 | $1.2M | $1.2M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $0 | |||
| Grants to domestic individualsLn 2 | $0 | |||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $188K | $154K | $8K | $26K |
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $242K | $198K | $10K | $34K |
| Pension plan contributionsLn 8 | $11K | $9K | $467 | $2K |
| Other employee benefitsLn 9 | $37K | $30K | $2K | $5K |
| Payroll taxesLn 10 | $34K | $28K | $1K | $5K |
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $0 | |||
| Accounting feesLn 11c | $0 | |||
| Lobbying feesLn 11d | $0 | |||
| Professional fundraising feesLn 11e | $0 | |||
| Investment management feesLn 11f | $5K | $4K | $228 | $766 |
| Other fees for servicesLn 11g | $78K | $64K | $3K | $11K |
| Advertising and promotionLn 12 | $2K | $2K | $91 | $309 |
| Office expensesLn 13 | $18K | $14K | $731 | $2K |
| Information technologyLn 14 | $25K | $21K | $1K | $4K |
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $31K | $25K | $1K | $4K |
| TravelLn 17 | $16K | $13K | $661 | $2K |
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $0 | |||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $5K | $4K | $193 | $650 |
| InsuranceLn 23 | $8K | $6K | $316 | $1K |
| Other expenses (24a–d)Ln 24 | $5K | $4K | $224 | $759 |
| Total functional expensesLn 25 | $705K | $577K | $29K | $98K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $642K | $691K | −$49K | $1.3M | 990 PDF |
| FY2023 Viewing | $652K | $705K | −$53K | $1.2M | 990 PDF |
| FY2022 | $747K | $708K | $40K | $1.2M | 990 PDF |
| FY2021 | $724K | $644K | $80K | $1.3M | 990 PDF |
| FY2020 | $664K | $621K | $43K | $1.1M | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (4 parts)
Part VIII · Statement of revenue $652,080 across 12 lines filed
Part IX · Statement of functional expenses $705,180 across 30 lines filed
Part X · Balance sheet $1,351,641 assets, 24 lines filed
Part XI · Reconciliation of net assets $1,249,866 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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