Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in May 2000.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
58 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
10 people listed on the 990; $65K paid to officers and key staff.
Jamey Piggott’s $65K as Executive Director is at the 7th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2025 | FY2024 | FY2022 | FY2021 |
|---|---|---|---|---|
| Jamey Piggott | $65,000 | $65,000 | $55,000 | $65,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Funds research, supports patient care centers, and provides resources for ALS patients and caregivers.
Questions for Als Hope Foundation
Your first name shows with your question. Als Hope Foundation answers here, for everyone.
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See Schedule O
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $220K | $263K |
| InvestmentsLn 11–13 | $27K | $37K |
| Land, buildings, equipmentLn 10c | $16K | $16K |
| Total assetsLn 16 | $273K | $328K |
| LiabilitiesLn 26 | $165K | $127K |
| Net assetsLn 32 | $107K | $202K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Other salaries and wagesLn 7 | $112K | $71K | $8K | $33K |
| Other employee benefitsLn 9 | $15K | $6K | $6K | $4K |
| Payroll taxesLn 10 | $12K | $7K | $845 | $3K |
| Management feesLn 11a | $56K | $56K | ||
| Advertising and promotionLn 12 | $2K | $50 | $2K | |
| Office expensesLn 13 | $20K | $20K | ||
| Information technologyLn 14 | $26K | $26K | ||
| OccupancyLn 16 | $2K | $2K | ||
| TravelLn 17 | $635 | $25 | $610 | |
| InterestLn 20 | $2K | $2K | ||
| Depreciation, depletion and amortizationLn 22 | $333 | $333 | ||
| InsuranceLn 23 | $4K | $4K | ||
| Other expenses (24a–d)Ln 24 | $168K | $163K | $2K | $3K |
| All other expensesLn 24e | $4K | $206 | $1K | $3K |
| Total functional expensesLn 25 | $424K | $247K | $104K | $73K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $1.2M | $889K | $341K | $624K | 990 PDF |
| FY2024 | $549K | $640K | −$92K | $282K | 990 PDF |
| FY2023 | $695K | $512K | $184K | $367K | 990 PDF |
| FY2022 | $370K | $382K | −$13K | $178K | 990 PDF |
| FY2021 Viewing | $511K | $424K | $87K | $202K | 990 PDF |
| FY2020 | $557K | $419K | $138K | $107K | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $510,717 revenue, 12 lines filed
Part VI · Governance 10 of 10 board members independent, 1 to look at
Part VIII · Statement of revenue $510,717 across 6 lines filed
Part IX · Statement of functional expenses $423,987 across 14 lines filed
Part X · Balance sheet $328,240 assets, 13 lines filed
Part XI · Reconciliation of net assets $201,694 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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