Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jun 1999.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
100 cents of each dollar spent went to programs.
Form 990 Part IX, line 25. Every line is in By the numbers.
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Who runs it and what they're paid
6 people listed on the 990; $1K paid to officers and key staff.
Roxanne Hickman’s $909 as Treasurer is at the 0th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|
| Tammy L Giltner | $180 | $4,491 | $4,820 | $6,116 |
| Roxanne Hickman | $909 | $1,058 | $630 | $630 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Empowering individuals with Down syndrome and their families through support, awareness, and funding for essential services.
Questions for Team Up for Down Syndrome
Your first name shows with your question. Team Up for Down Syndrome answers here, for everyone.
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Grants and donations to 501(c)3 organizations and public schools.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $89K | $123K |
| Total assetsLn 16 | $89K | $123K |
| LiabilitiesLn 26 | $8K | $6K |
| Net assetsLn 32 | $82K | $117K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $74K | $74K | ||
| Pay of current officers, directors and key staffLn 5 | $1K | $1K | ||
| Payroll taxesLn 10 | $140 | $140 | ||
| Accounting feesLn 11c | $2K | $2K | ||
| Other fees for servicesLn 11g | $14K | $14K | ||
| Office expensesLn 13 | $232 | $232 | ||
| TravelLn 17 | $1K | $1K | ||
| Conferences, conventions and meetingsLn 19 | $5K | $5K | ||
| Total functional expensesLn 25 | $97K | $97K | $0 | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $132K | $97K | $35K | $117K | 990 PDF |
| FY2023 | $130K | $197K | −$67K | $82K | 990 PDF |
| FY2022 | $105K | $149K | 990 PDF | ||
| FY2021 | $96K | $97K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $131,865 revenue, 12 lines filed
Part VI · Governance 0 of 6 board members independent, 5 to look at
Part VIII · Statement of revenue $131,865 across 7 lines filed
Part IX · Statement of functional expenses $97,072 across 8 lines filed
Part X · Balance sheet $122,662 assets, 8 lines filed
Part XI · Reconciliation of net assets $116,537 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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