Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jun 1989.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
73 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
6 people listed on the 990; $17K paid to officers and key staff.
John Dobson’s $17K as Executive Director is at the 45th percentile of top reported officer pay among 153 <$100K diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| John Dobson | $17,150 | $13,288 | $6,562 | $10,000 | $6,875 | $6,875 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Educate, advocate, and fund research to support those affected by neurofibromatosis.
Questions for Nf Tumor Foundation INC
Your first name shows with your question. Nf Tumor Foundation INC answers here, for everyone.
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The organization is dedicated to helping people with neurofibromatosis and their loved ones make sense of the complex medical and personal information about this disorder. The organization provides reliable, complete and up to date information about neurofibromatosis and provides volunteer Support Advocates who reach out to others via…
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $35K | $39K |
| InvestmentsLn 11–13 | $158K | $145K |
| Total assetsLn 16 | $192K | $184K |
| LiabilitiesLn 26 | $1K | $546 |
| Net assetsLn 32 | $191K | $183K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $17K | $16K | $857 | |
| Payroll taxesLn 10 | $1K | $1K | $75 | |
| Accounting feesLn 11c | $2K | $2K | ||
| Investment management feesLn 11f | $1K | $1K | ||
| Office expensesLn 13 | $233 | $233 | ||
| Information technologyLn 14 | $106 | $106 | ||
| InsuranceLn 23 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $1K | $245 | $824 | |
| Total functional expensesLn 25 | $25K | $18K | $7K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $13K | $25K | −$11K | $183K | 990 PDF |
| FY2024 | $7K | $20K | −$14K | $191K | 990 PDF |
| FY2023 | $11K | $12K | −$422 | $178K | 990 PDF |
| FY2022 | $19K | $15K | $3K | $167K | 990 PDF |
| FY2021 | $32K | $12K | $20K | $194K | 990 PDF |
| FY2020 | $26K | $14K | $12K | $163K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $13,153 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, 4 to look at
Part VIII · Statement of revenue $13,153 across 5 lines filed
Part IX · Statement of functional expenses $24,586 across 8 lines filed
Part X · Balance sheet $183,800 assets, 9 lines filed
Part XI · Reconciliation of net assets $183,254 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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