Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in May 2007.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
98 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
16 people listed on the 990; $525K paid to officers and key staff.
Bree Diventura’s $234K as Co-Executive Director is at the 83rd percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Bree Diventura | $233,530 | $194,484 | $182,925 | $162,986 | $154,336 |
| Maryann Brodie | — | — | — | $115,392 | $171,856 |
| Meryl J Lozano | $150,417 | — | — | — | — |
| Meryl Lozano | — | $141,167 | $125,543 | — | — |
| Tracy L De Vito | $110,004 | $104,612 | — | $101,052 | $100,562 |
| Michael Gelfand MD | $22,152 | $27,413 | — | — | — |
| Michael Sperling MD | $4,228 | — | $6,026 | $3,666 | $7,958 |
| Gregory Krauss MD | $4,875 | — | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Funding research to speed up new epilepsy treatments for better patient care.
Questions for Epilepsy Study Consortium INC
Your first name shows with your question. Epilepsy Study Consortium INC answers here, for everyone.
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Consulting
Made available vast epilepsy expertise which was utilized for advisory boards and independent consulting activity. Provided study design consultation on a number of protocols. Developed and implemented educational tools for use in clinical trials to ensure enrollment of appropriate subjects.
Human Epilepsy Project
Continuing to analyze data from hep 1 & heps 2 studies. Oversee and coordinate the financial aspects of the HEP3 study. Tesc manages HEP3 studys life cycle for nyu, oversees and coordinates financial aspects of the study and the participating sites.
Trial Designs
Prepare and organize multinational symposium on epilepsy trial design and implementation.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $2.4M | $2.0M |
| InvestmentsLn 11–13 | $1.0M | $1.7M |
| Total assetsLn 16 | $3.5M | $3.7M |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $3.5M | $3.7M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $119K | $119K | ||
| Pay of current officers, directors and key staffLn 5 | $423K | $423K | ||
| Other salaries and wagesLn 7 | $385K | $385K | ||
| Pension plan contributionsLn 8 | $16K | $16K | ||
| Other employee benefitsLn 9 | $3K | $3K | ||
| Payroll taxesLn 10 | $56K | $56K | ||
| Accounting feesLn 11c | $35K | $35K | ||
| Other fees for servicesLn 11g | $143K | $141K | $1K | |
| Office expensesLn 13 | $8K | $8K | $35 | |
| Information technologyLn 14 | $21K | $21K | ||
| OccupancyLn 16 | $3K | $3K | ||
| TravelLn 17 | $50K | $50K | ||
| Conferences, conventions and meetingsLn 19 | $20K | $20K | ||
| InsuranceLn 23 | $62K | $62K | ||
| Other expenses (24a–d)Ln 24 | $877K | $877K | ||
| Total functional expensesLn 25 | $2.2M | $2.2M | $36K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $2.5M | $2.2M | $271K | $3.7M | 990 PDF |
| FY2023 | $3.4M | $1.7M | $1.7M | $3.5M | 990 PDF |
| FY2022 | $2.1M | $1.9M | $211K | $1.8M | 990 PDF |
| FY2021 | $1.8M | $1.3M | $492K | $1.6M | 990 PDF |
| FY2020 | $1.6M | $2.2M | −$555K | $1.1M | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $2,492,541 revenue, 12 lines filed
Part VI · Governance 10 of 15 board members independent, no flags
Part VIII · Statement of revenue $2,492,541 across 5 lines filed
Part IX · Statement of functional expenses $2,221,138 across 15 lines filed
Part X · Balance sheet $3,725,581 assets, 6 lines filed
Part XI · Reconciliation of net assets $3,725,581 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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