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Amyloidosis Support Groups INC FY2024 filing

Tax-deductible

Wood Dale, IL501(c)(3)Medical ResearchEIN 20-2909816Revenue $430K in FY2024

On file with the IRSamyloidosissupport.org232 Orchard Dr, 60191-1313 · Wood Dale, ILTax-exempt since Sep 2005Publicly supported charity — 170(b)(1)(A)(vi)

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To form Amyloidosis Support Groups were needed, to have all Amyloidosis support Groups be self sustaining through donations, to fund and maintain libraries of education materials for all support groups, to fund group projects that wil help in spreading awareness and fundraising and to help finance the annual education retreat for training new and current group leaders and facilitators.

501(c)(3) charity; gifts are tax-deductible.
96¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
5 of 6
filings with a surplus
Average surplus $100K a year · 30% of revenue · last 6 filings
Fine: a surplus in 5 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
96%
of spending
Looks good: 96% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
22 mo
of spending, in cash
Looks good: 22.5 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
5
named funders · $67K
Looks good: 5 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$6K
0.7% of total assets
Looks good: liabilities are 1% of assets; 50% or less.
Pt X · Ln 26
Independent board members
6
of 6 voting members
Looks good: 6 of 6 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$430K
+58% vs prior year
Spent
$454K
To programs
96%
Net assets
$878K
By yearFY2020–FY2025
Revenue
$430K
FY2024▲ +58%
Tap a bar for its year
Revenue by fiscal year
FY2020$546K
FY2021$108K
FY2022$130K
FY2023$271K
FY2024$430K
FY2025$500K
Expenses
$454K
FY2024▲ +247%
Tap a bar for its year
Expenses by fiscal year
FY2020$403K
FY2021$65K
FY2022$110K
FY2023$131K
FY2024$454K
FY2025$224K
Net assets
$878K
FY2024▼ -3%
Tap a bar for its year
Net assets by fiscal year
FY2020$699K
FY2021$742K
FY2022$762K
FY2023$903K
FY2024$878K
FY2025$1.2M

From the FY2024 Form 990 (year ending May 2024) · see the original

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You’re viewing the FY2024 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2005.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

96 cents of each dollar spent went to programs.

Program services 96% · $437K Management & general 4% · $16K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

6 people listed on the 990.

Part VII, Section A · reportable compensation · most recent filed roster (FY2023); the FY2024 filing did not itemize Part VII
Muriel Finkel
President
$0Pt VII · Sec A
Jennifer Celano
Vice President
$0Pt VII · Sec A
$0Pt VII · Sec A
Joseph Gibson
Secretary
$0Pt VII · Sec A
$0Pt VII · Sec A
Patricia Gibson
Public Policy
$0Pt VII · Sec A

Paula Schmitt’s $7K as Director is at the 3rd percentile of top reported officer pay among 329 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

See Amyloidosis Support Groups INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Supports amyloidosis patients and groups through education, resources, and awareness initiatives.

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Provided by the organization

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1 program · $437K · in their own filed words · FY2023
01

See Organizations primary exempt purpose

$437Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
The Chip Miller Charitable FoundationFY2024$25K
The US Charitable Gift TrustFY2024$20K
Donor Advised Charitable Giving INCFY2024$15K
Morgan Stanley Global Impact Funding Trust INCFY2024$5K
Paul and Sharon Rajewski FoundationFY2024$1K
Total grants receivedfrom 5 funders$67K
See all 5 funders →

By the numbers

The FY2024 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$430K
Ln 12
Gifts and grantsLn 1h$411K
Investment incomeLn 3$19K
Money outPt IX
$454K
Ln 25
Programscol B$437K
Managementcol C$16K
Owns and owesPt X
$878K
net assets · Ln 32
Cash and savingsLn 1–2$850K
Total assetsLn 16$885K
LiabilitiesLn 26$6K
PeoplePt VI, VII
6
listed · VII A
PaidVII A0
Voting boardVI 1a6
IndependentVI 1b6
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$411K
Investment incomeLn 3$19K
Total revenueLn 12$430K
Assets in detailPt X, end of year
CashLn 1$171K
SavingsLn 2$679K
Cash and savings togetherLn 1–2$850K
InvestmentsLn 11–13$35K
Total assetsLn 16$885K
LiabilitiesLn 26$6K
Net assetsLn 32$878K
OperationsPt I, VI
EmployeesI 50
VolunteersI 639
Fiscal year endsHeaderMay
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$869K$850K
InvestmentsLn 11–13$35K$35K
Total assetsLn 16$904K$885K
LiabilitiesLn 26$2K$6K
Net assetsLn 32$903K$878K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$2K$2K
Other fees for servicesLn 11g$23K$16K$7K$0
Office expensesLn 13$9K$4K$5K$0
OccupancyLn 16$5K$0$5K$0
TravelLn 17$83K$83K$0$0
Conferences, conventions and meetingsLn 19$273K$273K$0$0
InsuranceLn 23−$8$0−$8$0
Other expenses (24a–d)Ln 24$59K$59K$0$0
Total functional expensesLn 25$454K$437K$16K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $500K$224K$276K$1.2M 990 PDF
FY2024 Viewing $430K$454K−$24K$878K 990 PDF
FY2023 $271K$131K$141K$903K 990 PDF
FY2022 $130K$110K$20K$762K 990 PDF
FY2021 $108K$65K$43K$742K 990 PDF
FY2020 $546K$403K$142K$699K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2024 990 (6 parts)
Part I · Summary $429,546 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $267,328$410,658
I-9 Program service revenue$0
I-10 Investment incomePrior year $4,166$18,888
I-11 Other revenue$0
I-12 Total revenuePrior year $271,494$429,546
I-13 Grants and similar amounts paid$2,500
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $130,946$451,253
I-18 Total expensesPrior year $130,946$453,753
I-19 Revenue less expensesPrior year $140,548−$24,207
Part VI · Governance 6 of 6 board members independent, 5 to look at
VI-1a Voting members of the governing body6
VI-1b Independent voting members6
VI-2 Family or business relationship among officers or directorsYes
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
Part VIII · Statement of revenue $429,546 across 4 lines filed
VIII-1f All other contributions, gifts and grants$410,658
VIII-1h Total contributions, gifts and grants$410,658
VIII-3 Investment incomeUnrelated business $0 · Excluded from tax $18,888$18,888
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $18,888$429,546
Part IX · Statement of functional expenses $453,753 across 8 lines filed
IX-1 Grants to domestic organizationsPrograms $2,500$2,500
IX-11g Other fees for servicesPrograms $16,425 · Management $6,566 · Fundraising $0$22,991
IX-13 Office expensesPrograms $4,105 · Management $4,929 · Fundraising $0$9,034
IX-16 OccupancyPrograms $0 · Management $4,910 · Fundraising $0$4,910
IX-17 TravelPrograms $82,537 · Management $0 · Fundraising $0$82,537
IX-19 Conferences, conventions and meetingsPrograms $273,104 · Management $0 · Fundraising $0$273,104
IX-23 InsurancePrograms $0 · Management −$8 · Fundraising $0−$8
IX-24 Other expenses (24a–d)Programs $58,685 · Management $0 · Fundraising $0$58,685
IX-25 Total functional expensesPrograms $437,356 · Management $16,397 · Fundraising $0$453,753
Part X · Balance sheet $884,795 assets, 10 lines filed
X-1 Cash, non-interest-bearingStart of year $345,333$170,684
X-2 Savings and temporary cash investmentsStart of year $523,838$678,970
X-11 Publicly traded securitiesStart of year $35,141$35,141
X-16 Total assetsStart of year $904,312$884,795
X-24 Unsecured notes and loans payableStart of year $1,677$6,367
X-25 Other liabilitiesStart of year $0$0
X-26 Total liabilitiesStart of year $1,677$6,367
X-27 Net assets without donor restrictionsStart of year $902,635$878,428
X-32 Total net assets or fund balancesStart of year $902,635$878,428
X-33 Total liabilities and net assetsStart of year $904,312$884,795
Part XI · Reconciliation of net assets $878,428 net assets at year end
XI-1 Total revenue$429,546
XI-2 Total expenses$453,753
XI-3 Revenue less expenses−$24,207
XI-4 Net assets at start of year$902,635
XI-10 Net assets at end of year$878,428

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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