Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Nov 2015.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
83 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
8 people listed on the 990; $441K paid to officers and key staff.
Sara Loud’s $178K as CEO/President is at the 67th percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Sara Loud | $177,984 | $172,800 | $160,000 | $160,000 | $160,000 |
| Robert McBurney | $97,123 | $122,546 | $72,150 | $148,800 | $148,800 |
| Hollie Schmidt | $145,758 | $144,603 | $131,372 | $131,880 | $131,670 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Accelerates research to improve diagnosis, optimize treatment, and cure multiple sclerosis.
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Scientific collaboration aims to accelerate progress towards a cure for multiple sclerosis (MS) and to improve health, healthcare and quality of life for people affected by MS by stimulating and enabling research, through the provision of much-needed resources, and creating networking opportunities across all MS stakeholders to spark new…
Tissue Bank/Repository
We have recruited over 3,000 subjects with and without MS and other demyelinating diseases who have donated blood samples and provided medical and epidemiological data that are stored in the repository and made available to researchers in exchange for the data they generate from their studies that use the samples.
Community Building
We have an extensive community of participating MS stakeholders consisting of people with MS, their friends and families, clinicians, scientists and researchers, ms-related corporations, and other interested parties. Email updates on the progress of research, collaboration, and other information of interest are sent out regularly.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.3M | $1.8M |
| Land, buildings, equipmentLn 10c | $7K | $40K |
| Total assetsLn 16 | $2.0M | $2.4M |
| LiabilitiesLn 26 | $216K | $471K |
| Net assetsLn 32 | $1.8M | $1.9M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $441K | $329K | $7K | $104K |
| Other salaries and wagesLn 7 | $125K | $93K | $2K | $30K |
| Other employee benefitsLn 9 | $52K | $39K | $829 | $12K |
| Payroll taxesLn 10 | $44K | $33K | $712 | $11K |
| Legal feesLn 11b | $2K | $2K | ||
| Accounting feesLn 11c | $50K | $50K | ||
| Other fees for servicesLn 11g | $56K | $48K | $8K | |
| Office expensesLn 13 | $17K | $4K | $8K | $4K |
| OccupancyLn 16 | $61K | $43K | $4K | $13K |
| TravelLn 17 | $557 | $557 | ||
| Depreciation, depletion and amortizationLn 22 | $3K | $3K | ||
| Other expenses (24a–d)Ln 24 | $832K | $812K | $7K | $13K |
| Total functional expensesLn 25 | $1.7M | $1.4M | $93K | $187K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $2.9M | $2.5M | $393K | $3.2M | 990 PDF |
| FY2023 | $2.4M | $2.0M | $309K | $2.7M | 990 PDF |
| FY2022 | $2.3M | $1.8M | $505K | $2.4M | 990 PDF |
| FY2021 Viewing | $1.7M | $1.7M | $57K | $1.9M | 990 PDF |
| FY2020 | $1.8M | $1.3M | $520K | $1.8M | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $1,739,123 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, no flags
Part VIII · Statement of revenue $1,739,123 across 7 lines filed
Part IX · Statement of functional expenses $1,682,378 across 12 lines filed
Part X · Balance sheet $2,403,217 assets, 14 lines filed
Part XI · Reconciliation of net assets $1,932,181 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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