Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in May 1996.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
93 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
8 people listed on the 990.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Funds research, educates doctors, and supports people with PXE.
Questions for Pxe International INC
Your first name shows with your question. Pxe International INC answers here, for everyone.
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Pxe international initiates, conducts, and supports research on pseudoxanthoma elasticum (pxe). We manage a registry and biobank, an epidemiological study, and a number of other biomedical studies. We recruit for clinical trials.
Pxe international supports affected individuals and their families by offering clear, concise, and up-to-date information. We use regional meetings, webinars, our website, youtube, twitter, facebook, biennial conferences, and a google groups chat list to enable a robust, interactive network of support.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $135K | $204K |
| InvestmentsLn 11–13 | $48K | $85K |
| Total assetsLn 16 | $185K | $290K |
| LiabilitiesLn 26 | $77K | $80K |
| Net assetsLn 32 | $108K | $210K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $223K | $223K | ||
| Other salaries and wagesLn 7 | $93K | $85K | $8K | |
| Other fees for servicesLn 11g | $241K | $226K | $15K | |
| Office expensesLn 13 | $87 | $87 | ||
| Conferences, conventions and meetingsLn 19 | $15K | $15K | ||
| Other expenses (24a–d)Ln 24 | $23K | $7K | $16K | |
| All other expensesLn 24e | $396 | $396 | ||
| Total functional expensesLn 25 | $596K | $557K | $39K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $693K | $596K | $96K | $210K | 990 PDF |
| FY2024 | $680K | $739K | −$59K | $108K | 990 PDF |
| FY2023 | $615K | $501K | $114K | $157K | 990 PDF |
| FY2022 | $594K | $698K | −$104K | $34K | 990 PDF |
| FY2021 | $400K | $594K | −$194K | $141K | 990 PDF |
| FY2020 | $875K | $628K | $247K | $328K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $692,622 revenue, 12 lines filed
Part VI · Governance 8 of 8 board members independent, no flags
Part VIII · Statement of revenue $692,622 across 4 lines filed
Part IX · Statement of functional expenses $596,418 across 7 lines filed
Part X · Balance sheet $290,063 assets, 10 lines filed
Part XI · Reconciliation of net assets $209,581 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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