Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jun 2009.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
99 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
4 people listed on the 990.
Heather Adkins’s $10K as Sec / Treas is at the 31st percentile of top reported officer pay among 154 <$100K diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2023 | FY2020 |
|---|---|---|
| Heather Adkins | $10,400 | $10,400 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Supports and educates families, friends, and advocates of individuals with Down syndrome.
Questions for F R I E N D S
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See line "other" below.
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $73K | $94K |
| Total assetsLn 16 | $73K | $94K |
| LiabilitiesLn 26 | $0 | $3K |
| Net assetsLn 32 | $73K | $91K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Other salaries and wagesLn 7 | $11K | $11K | ||
| Payroll taxesLn 10 | $4K | $4K | ||
| Accounting feesLn 11c | $450 | $450 | ||
| Office expensesLn 13 | $994 | $994 | ||
| Information technologyLn 14 | $1K | $1K | ||
| OccupancyLn 16 | $1K | $1K | ||
| Conferences, conventions and meetingsLn 19 | $5K | $5K | ||
| Other expenses (24a–d)Ln 24 | $51K | $51K | ||
| All other expensesLn 24e | $489 | $489 | ||
| Total functional expensesLn 25 | $76K | $75K | $450 | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $80K | $68K | $12K | $100K | 990 PDF |
| FY2024 | $78K | $65K | $13K | $88K | 990 PDF |
| FY2023 | $59K | $81K | −$22K | $69K | 990 PDF |
| FY2022 Viewing | $94K | $76K | $18K | $91K | 990 PDF |
| FY2021 | $9K | $24K | −$15K | $73K | 990 PDF |
| FY2020 | $55K | $62K | −$8K | $80K | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $93,547 revenue, 12 lines filed
Part VI · Governance 6 of 6 board members independent, 1 to look at
Part VIII · Statement of revenue $93,547 across 4 lines filed
Part IX · Statement of functional expenses $75,623 across 9 lines filed
Part X · Balance sheet $93,811 assets, 8 lines filed
Part XI · Reconciliation of net assets $90,864 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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