Person · officer / director

Shira Johnson

Chief Development Officer/Co-Interim CEO · Phelan McDermid Syndrome Foundation

Chief Development Officer/Co-Interim CEO at Phelan McDermid Syndrome Foundation. Listed as an officer, director, or key employee across 1 organization on the Form 990 record.

This is me

Ambiguous identity This name matches 1 other individual we could not verify as the same person. Each is kept as a separate record below — treat them as distinct people unless an explicit match is confirmed.

Organizations

Roles reported

Reported compensation

$54K

Others who share this name

Who this is

Profile

Everything on the left is verified from the IRS filings. The biography on the right is compiled from public web sources and grounded to that filed record.

✓ Verified from filings

●

Reported as Chief Development Officer/Co-Interim CEO of Phelan McDermid Syndrome Foundation, based in Osprey, FL.

●

Received $54K in total reported compensation on the most recent Form 990 (Part VII).

Facts extracted directly from each organization's Form 990, Part VII.

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Affiliations

Organizations

Phelan McDermid Syndrome Foundation Chief Development Officer/Co-Interim CEO · $1.2M revenue · Osprey, FLThe mission of the Phelan-McDermid Syndrome Foundation is to improve the quality of life of people affected by Phelan-McDermid Syndrome worldwide by…Filed FY2025 · Source: Form 990, Part VII

$54Kreported comp

Disambiguation

Other people named Shira Johnson

Different individuals who share this name, separated by IRS Schedule R, mailing address, and shared-board evidence. The 990 carries no person identifier, so some may still be the same person.

Shira Johnson 1 organization · Norwalk, CTCacna1a Foundation INC

Network

Serves alongside

Other officers, directors & key employees at this person's organizations, by latest reported compensation.

Diane Linnehan

Chief Operating Officer/Co-Interim CEO · FY2025

$117K

Lauren Schmitt

Chief Science Officer · FY2025

$108K

Priscilla Hackstadt

Chief Financial Officer · FY2025

$48K

Rhonda Blumenthal

Chief Executive Officer · FY2025

$30K

Denise Croden

President · FY2025

Ben Holocher

Vice President · FY2025

Lisa Brown

Secretary · FY2025

Michael Cento

Treasurer · FY2025

Catherine Valcourt-Pearce

Director · FY2025

Rebecca Buchanan

Director · FY2025

Eden Rivera

Director · FY2025

Dr Lori Levi

Director · FY2025

Network

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