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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Target Als Foundation INC Our mission is to break down barriers to ALS research to find effective treatments. By uniting academia, the… 81-0756743 · FY2025 New York, NY $33.3M $25.6M $136.9M 82% 7% 18 501(c)(3)
Regenerative Research Foundation The principal mission of the REGENERATIVE RESEARCH FOUNDATION is to develop REGENERATIVE stem cell therapies… 20-3654626 · FY2024 Albany, NY $7.0M $6.5M $9.0M 80% 0% 43 501(c)(3)
Foundation for Prader Willi Research Supports RESEARCH to advance the understanding and treatment of PRADER-WILLI syndrome 31-1763110 · FY2024 Covina, CA $6.2M $6.1M $8.9M 87% 6% 11 501(c)(3)
International Rett Syndrome Foundation To fund research aimed at potential cures for Rett syndrome and to empower families through education 31-1682518 · FY2024 West Chester, OH $4.8M $5.5M $5.3M 86% 8% 9 501(c)(3)
Alpha Omicron Pi Foundation Invest in our sisters and inspire a lifetime of giving to innovative leadership, educational and… 58-1343315 · FY2024 Brentwood, TN $3.4M $2.6M $14.9M 67% 23% 5 501(c)(3)
Project Als INC To recruit the world's best research scientists and clinicians to work together toward an understanding of… 13-4019464 · FY2023 New York, NY $3.0M $3.4M $1.5M 88% 4% 10 501(c)(3)
Accelerated Cure Project INC The organization's mission is to accelerate research efforts to improve diagnosis, to optimize treatment, and… 04-3555864 · FY2024 Waltham, MA $2.9M $2.5M $3.5M 91% 3% 6 501(c)(3)
Aim-Hi Accelerator Fund INC The mission is to bridge the gap between innovative, early-stage cancer research and sucessful development of… 82-4322538 · FY2024 Rockville, MD $1.6M $225.1K $16.1M 73% 15% 501(c)(3)
Adnp Kids Research Foundation Rare disease support, patient advocacy, education, and scientific research and funding treatment studies and… 30-0964243 · FY2023 Brush Prairie, WA $1.1M $1.1M $428.1K 100% 0% 501(c)(3)
Racing for Als INC To raise funds and awareness for research and treatment of motor neuron disease (ALS). 85-0750246 · FY2024 Apex, NC $1.0M $983.2K $86.7K 100% 0% 501(c)(3)
The Education and Research Fdntn for Nuclear Medcn Molecular Imagin The major activities for the foundation are: to provide grants, awards and scholarships to the society of… 23-7048300 · FY2024 Omaha, NE $912.0K $790.1K $7.3M 72% 12% 2 501(c)(3)
Wishes for Elliott We work collaboratively to accelerate the pace of science on scn8a and related disorders in order to bring… 47-1822559 · FY2024 Washington, DC $902.2K $496.6K $1.1M 58% 1% 3 501(c)(3)
Asxl Rare Research Endowment Foundation A family-led organization that supports research to increase the understanding of the ASXL gene family and… 82-3890665 · FY2024 Gorham, ME $887.6K $474.9K $1.1M 80% 5% 1 501(c)(3)
Childrens Brain Tumor Project Foundation To raise funds to support pediatric BRAIN cancer research. 46-4537457 · FY2024 New York, NY $711.0K $760.2K $126.9K 97% 1% 501(c)(3)
Cureshank To accelerate the development of treatments for phelan-mcdermid syndrome and shank-related disorders. 84-2240648 · FY2024 Los Angeles, CA $597.8K $528.2K $1.1M 86% 6% 501(c)(3)
Childrens Cancer Fund Funding research projects for a cure to childhood cancers. 13-4190313 · FY2024 Thornwood, NY $512.9K $369.7K $816.4K 88% 0% 501(c)(3)
The Brain Donor Project Science, leading to the treatment and cure of neurological, neuropsychiatric and neurodevelopmental disorders. 81-2333601 · FY2024 Naples, FL $451.6K $363.3K $658.7K 99% 0% 501(c)(3)
To Cure a Rose Foundation Mission is to facilitate bringing genetic therapies to children with hnrnph2, and to those children with rare… 86-2919742 · FY2024 Dripping Spgs, TX $401.1K $426.6K $178.8K 80% 0% 501(c)(3)
International Childrens Advisory Network provide voice for children in medicine, research, innovation 84-3456678 · FY2024 Marietta, GA $396.7K $505.0K $241.6K 92% 7% 2 501(c)(3)
Kamen Brain Tumor Foundation To fund medical research for the treatment of pediatric BRAIN tumors. 38-4001949 · FY2024 New York, NY $395.9K $456.6K $96.4K 100% 0% 501(c)(3)
Ddx3x Foundation Our mission is to connect families, resources, and the medical community to advance research for a cure to… 81-1159359 · FY2023 Wilmington, DE $269.3K $446.1K $74.5K 75% 0% 2 501(c)(3)
Columbus Children's Foundation The mission of COLUMBUS CHILDREN'S FOUNDATION is driven by the urgency to accelerate equitable access to the… 83-1456169 · FY2023 Chapel Hill, NC $267.8K $619.0K $1.1M 60% 10% 2 501(c)(3)
Isabella Foundation INC The isa elaine FOUNDATION is dedicated to advancing research discoveries on ultra-rare pediatric… 99-4435144 · FY2024 Ponte Vedra Beach, FL $200.2K $57.9K $86.2K 100% 0% 501(c)(3)
Hannahs Hope for Giant Axonal Neuropathy INC Dedicated to funding research for a treatment and/or a cure for GIANT AXONAL NEUROPATHY 45-0593226 · FY2024 Rexford, NY $198.4K $538.5K $2.9M 87% 0% 2 501(c)(3)
Brains Together for a Cure Our mission: to support and empower those affected by brain tumors through meaningful connections with a… 61-1552453 · FY2024 Rochester, MN $191.8K $90.5K $689.2K 83% 0% 501(c)(3)
Tylers Tribe Foundation Funding for als research and patients 88-1033897 · FY2024 Carlsbad, CA $182.4K $137.2K $176.4K 69% 20% 501(c)(3)
International Network for Simulation-Based Pediatric Innovat 86-1227475 · FY2024 Pensacola, FL $179.7K $366.0K 501(c)(3)
Curenfwithjack Fund research for and educate public about Neurofibromatosis 46-5178351 · FY2024 Alpharetta, GA $179.3K $308.0K $869.4K 72% 22% 501(c)(3)
The Natalie Gray Foundation for Pediatric Brain Tumors 87-2127285 · FY2024 Powell, OH $175.0K $69.3K 501(c)(3)
Ryan's Quest INC The mission of RYAN'S QUEST is to increase awareness of duchenne muscular dystrophy with the purpose of… 26-1890529 · FY2024 Hamilton, NJ $161.0K $83.8K $1.5M 90% 0% 501(c)(3)
Innovative Genomics Foundation 88-2252052 · FY2024 Berkeley, CA $140.0K $127.9K 501(c)(3)
International Society for Molecularneurodegeneration INC Internationl SOCIETY for molecular neurodegenerations's mission is to serve as an accelerator for the… 86-2907045 · FY2025 Jacksonville, FL $131.4K $119.8K $373.6K 96% 0% 501(c)(3)
Neurological Health Foundation 45-0904273 · FY2024 Dallas, TX $127.2K $56.9K 501(c)(3)
Marcus Foundation INC The foundation exists to provide financial support for research in childhood brain tumor treatment. 04-3101202 · FY2025 Hopedale, MA $105.4K $57.8K $820.8K 99% 0% 501(c)(3)
Rare Trait Hope Fund The mission and primary exepmt purpose is to facilitate research, raise funds and support development of… 46-2762646 · FY2024 Belle Chasse, LA $103.8K $56.0K 501(c)(3)
Pediatric Neurocritical Care Research Group INC 92-0252695 · FY2024 Albany, NY $68.0K $125.0K 501(c)(3)
Israeli Pediatric Brain Tumorfoundation Ltd Raise funds to support pediatric brain tumor research in Israel and elsewhere in the world. 20-4390622 · FY2025 Southampton, NJ $55.6K $56.4K 501(c)(3)
Warrior Jace Thompson Foundation Raise funds to support US based clinical trial programs related to diffuse intrinsic pontine glioma (dipg). 84-1765042 · FY2024 Mount Pleasant, NC $31.4K $60.7K $31.8K 94% 0% 501(c)(3)
Dan Lewis Foundation for Brain Regeneration Research 85-1332188 · FY2023 Denver, CO $17.9K $76.1K 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org
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