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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Every Cure INC Every Cure is a nonprofit initiative on a mission to unlock the full potential of existing medicines to treat… 92-0240717 · FY2024 Philadelphia, PA $54.5M $7.4M $51.6M 85% 2% — 501(c)(3)
National Organization for Rare Disorders INC Nord strives to improve the health and well-being of people with RARE diseases by driving advances in care… 13-3223946 · FY2024 Norwell, MA $50.7M $43.0M $66.9M 83% 7% 116 501(c)(3)
Global Coalition for Adaptive Research INC Our mission is pioneering collaborative, innovative clinical trials to speed the discovery and development of… 82-1199380 · FY2024 Larkspur, CA $27.7M $30.9M $78.1M 87% 0% 40 501(c)(3)
Rett Syndrome Research Trust INC The organization's mission is focused on the development of treatments and cures for RETT SYNDROME and… 26-0687439 · FY2024 Trumbull, CT $9.3M $11.7M $20.8M 92% 6% 7 501(c)(3)
Global Genes Increase public awareness for rare disease and globally connect, empower and educate individuals and rare… 26-3331487 · FY2024 Washington, DC $7.1M $7.4M $1.5M 79% 8% 31 501(c)(3)
Everylife Foundation for Rare Diseases The EVERYLIFE FOUNDATION for RARE DISEASES is dedicated to advancing the development of treatment and… 26-4614274 · FY2024 Washington, DC $7.0M $6.8M $6.2M 70% 8% 18 501(c)(3)
Institute for Molecular Medicine The mission of the Institute for Molecular Medicine is to contribute to the understanding of and the… 88-0366979 · FY2023 Huntington Beach, CA $5.7M $5.7M $1.0M 87% 0% 6 501(c)(3)
Partnership for Cures To help patients by raising funds to find, vet, finance & manage pilot human clinical research that… 20-3620169 · FY2024 Chicago, IL $3.9M $1.3M $7.5M 86% 5% 3 501(c)(3)
Rare Village Foundation To fight for cures for RARE diseases and empower individuals with RARE diseases to live their best lives… 83-4699994 · FY2024 McKinney, TX $3.5M $3.1M $3.3M 97% 1% 1 501(c)(3)
Cancollaborate Dedicated to creating innovative collaborations in pursuit of treatments for rare cancers. 93-3328660 · FY2024 Bedford, MA $2.1M $490.4K $1.8M 63% 14% 1 501(c)(3)
Believe in a Cure INC The organization aims to support the care and treatment of individuals diagnosed with foxg1 syndrome and… 84-3876764 · FY2024 Prt Washingtn, NY $1.8M $1.4M $3.0M 89% 8% — 501(c)(3)
Rare Cancer Research Foundation The RARE CANCER RESEARCH FOUNDATION is dedicated to curing RARE cancers through strategic investments and… 46-3405526 · FY2024 Durham, NC $1.8M $2.2M $1.4M 74% 7% 9 501(c)(3)
Siegel Rare Neuroimmune Association To support and advocate for individuals and their families diagnosed with RARE NEUROIMMUNE disorders of the… 91-1780467 · FY2024 Powell, OH $1.5M $1.6M $1.6M 86% 8% 7 501(c)(3)
Targetcancer Foundation INC Support for research into the causes and treatments of rare cancers. 26-4510094 · FY2024 Cambridge, MA $1.3M $839.0K $1.0M 61% 13% 3 501(c)(3)
Mission Cure INC MISSION:CURE aims to improve the health and lives of people affected by costly diseases with poor patient… 84-3043384 · FY2023 New York, NY $853.8K $641.9K $1.9M 85% 4% 10 501(c)(3)
Dion Foundation for Children with Rare Diseases INC The mission is to increase awareness of rare and ultra-rare diseases that affect children with the intention… 92-2280592 · FY2024 Marshfield, MA $776.0K $937.3K $173.5K 97% 0% — 501(c)(3)
Create Cures Foundation CREATE CURES FOUNDATION is a 501(c)(3) nonprofit organization dedicated to the purpose of promoting creative… 47-2793776 · FY2024 Santa Monica, CA $689.8K $671.2K $2.4M 73% 5% 8 501(c)(3)
Cure Cmd INC Cure CMD's mission is to bring research treatments and in the future a cure for Congenital Muscular… 26-2640975 · FY2024 Lakewood, CA $677.2K $442.5K $508.5K 68% 12% 5 501(c)(3)
Foundation for Rare Disease Research INC Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare… 92-0534021 · FY2024 Silver Spring, MD $668.5K $1.5M $2.4M 100% 0% — 501(c)(3)
Cure Rtd Foundation Primarily to encourage, guide, and fund additional research to improve understanding, diagnosis, and… 82-0864340 · FY2025 Red Oak, TX $559.4K $255.1K $1.6M 91% 2% — 501(c)(3)
Odylia Therapeutics INC ODYLIA utilizes a unique, non-profit business model to accelerate the development of gene therapies for… 82-2120760 · FY2024 Atlanta, GA $482.0K $699.4K $1.6M 64% 17% 5 501(c)(3)
The N 1 Collaborative INC To make individualized medicines routinely and rapidly accessible to rare disease patients worldwide. 88-2591503 · FY2024 Somerville, MA $453.3K $445.2K $696.9K 58% 15% 2 501(c)(3)
Wards Foundation Working to advance rare disease support in order to improve the lives of people affected by rare diseases. 86-1600365 · FY2024 Charlotte, NC $420.1K $121.1K $1.4M 421% 20% — 501(c)(3)
A Cure in Our Lifetime INC A Cure in Our Lifetime: Our mission is to fund innovative breast cancer research, provide resources for those… 27-4736026 · FY2024 Chappaqua, NY $408.6K $415.3K $108.3K 94% 3% — 501(c)(3)
To Cure a Rose Foundation Mission is to facilitate bringing genetic therapies to children with hnrnph2, and to those children with rare… 86-2919742 · FY2024 Dripping Spgs, TX $401.1K $426.6K $178.8K 80% 0% — 501(c)(3)
Foundation for a Cure for Mitochondrial Disease INC The FOUNDATION for a CURE for MITOCHONDRIAL DISEASE, INC. Exists to support research to find medical hope for… 06-1602020 · FY2024 Cheshire, CT $368.3K $383.4K $3.8M 92% 0% — 501(c)(3)
Innovation to End Neglected Diseases Our mission is to develop and ensure accessibility of safe and effective new medicines and diagnostics for… 47-1056489 · FY2024 E Palo Alto, CA $346.4K $346.4K $0 100% 0% — 501(c)(3)
Cure Gm1 Incorporated 47-3154419 · FY2024 Albany, CA $341.2K $84.7K $3.6M 75% 2% 4 501(c)(3)
Cruisin for a Cure To procure contribution and support to KSK Cancer center of irvine an similar organizations to raise… 33-0927644 · FY2024 Mission Viejo, CA $321.7K $437.0K $1.3M 51% 0% 1 501(c)(3)
Cure Vcp Disease INC Research (Tools, Collaborations, Models and Convenings) 82-4368871 · FY2024 Warner Robins, GA $318.8K $369.8K $485.3K 75% 14% 2 501(c)(3)
Kidneytexas INC To provide funding to improve the methods of treatment, the search for a cure and prevention of kidney… 75-2847008 · FY2024 Dallas, TX $282.0K $172.9K $379.6K 71% 0% — 501(c)(3)
Coalition to Cure Chd2 INC The Coalition to Cure CHD2 (CCC)'s mission is to improve the lives of those affected by CHD2-related… 85-4057370 · FY2024 Naperville, IL $250.1K $162.3K $362.8K 54% 21% 1 501(c)(3)
Rarerising Deliver patient-centered, evidence-based research, incubate emerging rare disease entities on their journey… 85-3253125 · FY2024 Menomonee Falls, WI $182.3K $244.6K $89.2K 94% 0% 1 501(c)(3)
Dhps Foundation C/O Sterling Foundation Management LLC The mission is to help identify and assist individuals with rare genetic disorders, and to work with… 82-4444634 · FY2024 Reston, VA $160.0K $126.0K $17.3K 96% 0% — 501(c)(3)
Driven to Cure INC To provide funds for such charitable purposes as research to find a CURE for rare kidney cancer diseases and… 81-1183301 · FY2024 Kensington, MD $129.1K $160.4K $185.8K 62% 14% — 501(c)(3)
Ellas Hope INC To educate and extend global awareness of rett syndrome. To fund research grants to world renowned… 66-0905467 · FY2019 St Thomas, VI $65.6K $64.3K $0 100% 0% — 501(c)(3)
Creations for Cures INC 81-2485003 · FY2024 Gresham, OR $64.8K — $28.7K — — — 501(c)(3)
Chemotherapy Foundation INC Our mission is to stimulate the discovery and development of innovative therapies for the control, cure, and… 13-2622978 · FY2023 New York, NY $42.8K $339.6K $298.5K 68% 25% 1 501(c)(3)
Indo US Organization for Rare Diseases 84-3794099 · FY2024 Herndon, VA $37.7K — $54.6K — — — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org