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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Global Genes Increase public awareness for rare disease and globally connect, empower and educate individuals and rare… 26-3331487 · FY2024 Washington, DC $7.1M $7.4M $1.5M 79% 8% 31 501(c)(3)
American Telemedicine Association To improve health care delivery through telecommunications and information technology. 74-2676503 · FY2024 Washington, DC $6.2M $6.4M $757.0K 93% 0% 14 501(c)(3)
American Society of Transplantation Ast is a diverse organization dedicated to advancing the field of TRANSPLANTATION and improving patient care… 42-1182936 · FY2024 Mount Laurel, NJ $6.2M $6.2M $23.5M 71% 4% 25 501(c)(3)
Fshd Society Find treatments and a cure for FSHD while empowering our families 52-1762747 · FY2024 Randolph, MA $4.9M $5.5M $5.6M 78% 12% 23 501(c)(3)
Heart Failure Society of America INC Provide a platform to improve and expand heart failure care through collaboration, education, innovation… 06-1416238 · FY2024 Rockville, MD $4.2M $6.7M $10.7M 74% 4% 21 501(c)(3)
Coming Together for a Cure INC Provide a renewed hope for people with muscular dystrophy and other life-threatening diseases by advancing… 47-2585356 · FY2024 Wichita, KS $4.0M $4.0M $51.4K 94% 0% 501(c)(3)
American Association of Cardiovascular and Pulmonary Rehabilitation To educate and support cardiopulmonary REHABILITATION professionals, advance the practice, ensure the quality… 39-1610975 · FY2023 Chicago, IL $2.7M $2.8M $2.9M 68% 0% 501(c)(3)
American Association of Kidney Patients INC AAKP is dedicated to improving the lives and long-term outcome of kidney patients. Cont on Sch O. 11-2306416 · FY2024 Tampa, FL $2.4M $2.5M $4.5M 83% 2% 6 501(c)(3)
Institute for Healthcare Advancement "empowering people to better health" 33-0483197 · FY2024 Anaheim, CA $2.3M $5.5M $22.2M 81% 0% 22 501(c)(3)
Vhl Alliance INC To support efforts to cure von-hippel-lindau disease: to provide a support network for patients & their… 04-3180414 · FY2024 Boston, MA $1.2M $1.0M $2.6M 77% 13% 501(c)(3)
Global Intiative for Chronic Obstructive Lung Disease INC To improve awareness of CHRONIC OBSTRUCTIVE pulmonary DISEASE (copd) among health professionals. 20-3403868 · FY2024 Deer Park, IL $1.2M $851.4K $3.3M 96% 0% 501(c)(3)
Improving Renal Outcomes Collaborative Partner with patients with a kidney transplant and their families to improve health, longevity, and quality… 85-0840241 · FY2024 Cincinnati, OH $852.3K $772.1K $168.9K 100% 0% 501(c)(3)
Alagille Syndrome Alliance Mobilize resources, facilitate connections, promoting unity, and advocating for a cure to inspire, empower… 93-1243619 · FY2024 Washington, DC $648.0K $512.6K $700.4K 69% 8% 3 501(c)(3)
Healthed Connect INC HEALTHED CONNECT empowers women and children through evidence-based health, education, and advocacy programs. 27-1115162 · FY2024 Independence, MO $621.3K $344.1K $1.4M 76% 4% 2 501(c)(3)
The United Leukodystrophy Foundation INC The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and… 35-1557361 · FY2024 Chicago, IL $596.3K $553.0K $1.7M 69% 5% 2 501(c)(3)
Akari Foundation The Akari Foundation provides culturally and linguistically tailored education advocacy and support to… 82-2557369 · FY2024 San Antonio, TX $591.5K $554.5K $137.9K 93% 1% 5 501(c)(3)
Hs Connect HS CONNECT is a patient led non-profit organization created to validate, educate and empower the HS community… 87-1122906 · FY2024 Puyallup, WA $530.2K $562.2K $119.9K 79% 2% 501(c)(3)
Advanced Health Network INC Support & development of HEALTH home networks 46-1083277 · FY2024 West Babylon, NY $480.0K $1.1M $381.8K 73% 0% 501(c)(3)
Hypoparathyroidism Association INC We work to improve the lives of people impacted by hypoPARAthyroidism through education. support, research… 82-0505424 · FY2024 Frisco, TX $458.0K $431.7K $317.0K 76% 0% 2 501(c)(3)
Giving Voice Foundation Inspiring cross-generational conversations and connection to improve the health of older adults through… 87-3086554 · FY2025 Cincinnati, OH $418.7K $347.9K $241.5K 47% 0% 501(c)(3)
Connectmed International The mission of this organization is to promote sustainable multidisciplinary health care and education to… 27-0804773 · FY2024 Carlsbad, CA $347.3K $344.5K $264.5K 77% 11% 5 501(c)(3)
Connecting Families Urea Cycle Disorders Foundation To empower and engage all those around the world affected by ucd's. 81-2644926 · FY2024 Pasco, WA $334.5K $296.5K $48.6K 77% 4% 5 501(c)(3)
United Msd Foundation INC Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase… 81-3669443 · FY2024 Biloxi, MS $330.5K $388.2K $223.9K 67% 14% 8 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Kif1aorg INC A global community dedicated to improving the lives of those affected by KAND and accelerating research to… 82-0714729 · FY2024 New York, NY $294.6K $149.1K $218.3K 75% 4% 5 501(c)(3)
Columbus Children's Foundation Accelerating the most effective gene therapy treatments for children with ultra-rare diseases. 83-1456169 · FY2023 Chapel Hill, NC $267.8K $619.0K $1.1M 60% 10% 1 501(c)(3)
Michael Henter Foundation Raising awareness of aortic disease and marfan syndrome 92-3748058 · FY2024 Clive, IA $184.5K $21.6K $494.8K 93% 0% 501(c)(3)
Dpc Education Center Empower kidney disease patients through education. 37-1698796 · FY2024 Washington, DC $180.5K $77.6K $128.2K 88% 0% 1 501(c)(3)
Kidney Foundation of Wny INC KIDNEY and related disease awareness and education. 47-5204268 · FY2024 Williamsville, NY $177.4K $141.9K 2 501(c)(3)
Connectus Foundation 92-1532952 · FY2024 Williston, ND $124.4K $38.2K 501(c)(3)
Cade R Alpard Foundation for Pediatric Disease 33-1067517 · FY2025 Houston, TX $112.2K $56.1K 501(c)(3)
X Out Ald INC X out ALD is a 501c3 organization dedicated to increasing awareness of adrenoleukodystrophy and supporting… 85-1423811 · FY2024 Bloomington, MN $100.6K $9.0K 501(c)(3)
American Society of Digestive Disease Interventions INC 47-3740986 · FY2024 Ann Arbor, MI $85.4K $89.5K 501(c)(3)
Caregiver Connect INC 47-5638453 · FY2025 Greensboro, NC $83.4K $3.9K 501(c)(3)
American Telemedicine Connect Consortium INC 47-4363573 · FY2024 Westport, CT $72.3K $68.4K 501(c)(3)
Apoe Foundation 73-1540498 · FY2024 Norman, OK $66.6K $178.9K 501(c)(3)
Alzheimers Assistance and Referral Network 20-0492047 · FY2024 Youngstown, OH $43.0K $323.3K 501(c)(3)
Adrenal Insufficiency United 45-4624912 · FY2024 Florence, OR $22.1K $111.2K 501(c)(3)
Association for Vascular Access Foundation 20-5631901 · FY2024 Mount Royal, NJ $14.8K $207.1K 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org
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