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Filter view for IRS Form 990 organizations: name, EIN, NTEE, revenue, expenses, program share, and fiscal year.

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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Charcot-Marie-Tooth Association Cmta awards research fellowships and grants for research on CHARCOT-MARIE-TOOTH diesease. Cmta also hosts… 22-2480896 · FY2024 Glenolden, PA $5.8M $5.8M $8.1M 89% 6% 14 501(c)(3)
Fshd Society Find treatments and a cure for FSHD while empowering our families 52-1762747 · FY2024 Randolph, MA $4.9M $5.5M $5.6M 78% 12% 23 501(c)(3)
Project 8p Foundation To accelerate the discovery of treatments for chromosome 8P disorders. 83-2545342 · FY2024 New York, NY $1.9M $1.4M $2.9M 85% 4% — 501(c)(3)
Cure Lbsl Provide funding to rare disease research & support affected families 46-2829156 · FY2024 Arlington, VA $1.1M $845.2K $955.6K 100% 0% 1 501(c)(3)
Fatty Liver Foundation Education and support for patients with LIVER disease 81-4492542 · FY2025 Boise, ID $1.0M $628.8K $420.3K 81% 8% 2 501(c)(3)
Nutrition United Provide services to older americans and public 45-0338877 · FY2024 Rolla, ND $961.4K $949.3K $1.0M 94% 0% 13 501(c)(3)
The United Leukodystrophy Foundation INC The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and… 35-1557361 · FY2024 Chicago, IL $596.3K $553.0K $1.7M 69% 5% 2 501(c)(3)
United Msd Foundation INC Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase… 81-3669443 · FY2024 Biloxi, MS $330.5K $388.2K $223.9K 67% 14% 8 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Collaborative Alliance for Pancreatic Education and Research Collaboration, education, training, and increasing public health awareness regarding pancreatic diseases 26-3056180 · FY2024 Prairie Vlg, KS $266.4K $238.0K $390.4K 88% 0% — 501(c)(3)
Finns Friends To enhance the quality of life for the families affected by duchenne muscular dystrophy. 85-0509538 · FY2024 Longview, TX $233.1K $207.9K $178.9K 78% 1% — 501(c)(3)
Global Alliance for Rheumatic and Congenital Hearts To improve worldwide lifelong outcomes in childhood-onset heart disease through empowering patient and family… 82-4892355 · FY2024 Philadelphia, PA $218.8K $233.8K $77.7K 76% 7% 3 501(c)(3)
The Center for Disordered Eating DBA Carolina Resource Center for Eating Developing and connecting resources to assist and advocate for those impacted by eating disorders. 02-0739589 · FY2024 Asheville, NC $186.6K — $481.1K — — 1 501(c)(3)
Project Insulin 87-3385962 · FY2024 Cambridge, MA $180.4K — $171.7K — — — 501(c)(3)
Society for Heart and Vascular Metabolism 59-3764642 · FY2024 Cleveland, OH $169.7K — $242.2K — — — 501(c)(3)
Fat Disorders Research Society INC 26-4545388 · FY2024 Hanover, MD $167.4K — $77.2K — — — 501(c)(3)
Association for Glycogen Storage Disease 42-1130450 · FY2024 Waterloo, IA $166.8K — $492.9K — — — 501(c)(3)
Open Insulin Foundation 87-1390995 · FY2025 Oakland, CA $132.4K — $197.4K — — — 501(c)(3)
Alliance Against Diabetes INC 47-3212625 · FY2023 Las Vegas, NV $132.3K — $12.2K — — — 501(c)(3)
United for Health 94-3355539 · FY2024 Oakland, CA $108.6K — $1 — — — 501(c)(3)
A Healthier We 83-1888094 · FY2025 Berkeley, CA $108.6K — $404.2K — — — 501(c)(3)
Pcos Awareness Association 46-1182190 · FY2020 Fredericksburg, VA $108.0K — $0 — — — 501(c)(3)
Thrive with Pyruvate Kinase Deficiency Organization 87-1365230 · FY2024 Bloomington, MN $104.8K — $20.5K — — — 501(c)(3)
Community Nutrition Partnership 27-1087338 · FY2024 Buffalo, NY $102.4K — $102.3K — — — 501(c)(3)
Eating Disorder Support Fund 99-0827866 · FY2024 Dallas, TX $100.0K — $0 — — — 501(c)(3)
Chinese American Diabetes Association 38-3709185 · FY2024 Louisville, KY $98.2K — $21.1K — — — 501(c)(3)
Fightglobesity INC 85-1118330 · FY2024 Shawnee, KS $85.7K — $4.3K — — — 501(c)(3)
Neonatalprogeroidsyndromelimited 88-1628107 · FY2022 Ellisville, MO $85.0K — $0 — — — 501(c)(3)
Wittek Research Foundation for Hypertrophic Cardiomyopathy INC 86-1682122 · FY2023 Tenafly, NJ $73.9K — $0 — — — 501(c)(3)
International Wagr Syndrome Association 20-1947169 · FY2024 Montgomery Village, MD $70.4K — $77.8K — — — 501(c)(3)
Diabetes Incorporated 46-0447755 · FY2023 Rapid City, SD $68.4K — $193.2K — — — 501(c)(3)
Apoe Foundation 73-1540498 · FY2024 Norman, OK $66.6K — $178.9K — — — 501(c)(3)
Conquering Congenital Heart Disease 82-4772778 · FY2022 Manheim, PA $65.6K — $0 — — — 501(c)(3)
Superficial Siderosis Research Alliance 84-2515094 · FY2024 Waukesha, WI $59.9K — $238.4K — — — 501(c)(3)
United Brachial Plexus Network 45-0469222 · FY2024 Reading, MA $55.0K — $63.9K — — — 501(c)(3)
Idiopathic Ridiculopathy Consortium 20-5859851 · FY2024 Philadelphia, PA $53.9K — $67.4K — — — 501(c)(3)
Dyslipidemia Foundation INC 38-3936533 · FY2023 Natick, MA $52.6K — $29.0K — — — 501(c)(3)
Adrenal Insufficiency United 45-4624912 · FY2024 Florence, OR $22.1K — $111.2K — — — 501(c)(3)
Project Scleroderma 32-0456063 · FY2024 Havertown, PA $6.3K — $2.6K — — — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org