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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Cystic Fibrosis Foundation To cure CYSTIC FIBROSIS (cf) and to provide all people with cf the (continued on sch o) opportunity to lead… 13-1930701 · FY2024 Bethesda, MD $355.8M $439.1M $5.0B 79% 8% 788 501(c)(3)
Muscular Dystrophy Association INC MUSCULAR DYSTROPHY ASSOCIATION (mda) is the #1 voluntary health organization in the united states for people… 13-1665552 · FY2024 Chicago, IL $60.4M $66.0M $50.9M 73% 22% 272 501(c)(3)
The Association for Frontotemporal Degeneration Promote and fund research into developing better diagnostic processes, therapies (cont'd in sch o)and cures… 41-2073220 · FY2024 Kng of Prussa, PA $14.4M $11.6M $60.1M 82% 14% 64 501(c)(3)
Pulmonary Fibrosis Foundation To mobilize people and resources to provide access to high-quality care and lead research for a cure so that… 84-1558631 · FY2024 Chicago, IL $9.3M $7.4M $17.5M 67% 16% 40 501(c)(3)
Huntington S Disease Foundation To fund transformative research to find treatments, and ultimately a cure, for huntington's DISEASE. 23-7376197 · FY2024 New York, NY $7.9M $4.5M $23.1M 86% 7% 4 501(c)(3)
Les Turner Amyotrophic Lateral Sclerosis Foundation To find a cure for als, provide patient and family support and increase public awareness. 36-2916466 · FY2024 Skokie, IL $4.5M $3.3M $4.4M 80% 13% 20 501(c)(3)
Cure Duchenne Coordinating and funding research necessary to find a CURE for DUCHENNE muscular dystrophy. Also, improving… 20-0299958 · FY2024 Mission Viejo, CA $3.9M $9.2M $30.9M 80% 10% 30 501(c)(3)
Dystonia Medical Research Foundation The mission of the dmrf is to advance RESEARCH for more effective treatments and ultimately a cure for… 95-3378526 · FY2024 Chicago, IL $3.2M $3.0M $6.4M 80% 8% 9 501(c)(3)
Cure Jm Foundation To find better treatments and a CURE for juvenile myositis and improve the lives of families. 35-2222262 · FY2023 Leesburg, VA $2.3M $2.1M $2.4M 80% 15% 11 501(c)(3)
Pediatric Interventional Cardiacsymposium Foundation To educate physicians and healthcare professionals involved in the care of children and adults with… 20-8266788 · FY2024 Chicago, IL $2.0M $2.0M $1.4M 94% 0% — 501(c)(3)
Myelodysplastic Syndromes Foundation Established by an international group of physicians and researchers to provide an ongoing exchange of… 22-3283911 · FY2024 New York, NY $2.0M $3.0M $3.8M 65% 20% 8 501(c)(3)
Pcd Ks Foundation To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved… 20-0543474 · FY2024 Bloomington, MN $2.0M $1.7M $3.6M 92% 3% 5 501(c)(3)
Spastic Paraplegia Foundation INC The FOUNDATION is dedicated to finding a cure and providing information and support services for two closely… 04-3594491 · FY2024 O Fallon, MO $1.7M $899.6K $3.1M 88% 4% — 501(c)(3)
Myhre Syndrome Foundation Myhre Syndrome Foundation is a Funding research and patient advocacy organization dedicated providing hope… 83-4086943 · FY2024 Keller, TX $1.7M $567.2K $2.0M 100% 0% 3 501(c)(3)
Lifestyle Medicine Foundation To promote education, research, and public benefit activities in the field of lifestyle medicine. 01-0932751 · FY2025 Salem, OR $1.5M $1.4M $501.3K 100% 0% — 501(c)(3)
Lmsarcoma Direct Research Foundation To help find a cure for Leiomyosarcoma by creating a relationship with researchers in which we help fund… 87-0763851 · FY2024 Tulsa, OK $1.5M $330.4K $2.1M 98% 0% — 501(c)(3)
Human Growth Foundation Community services, professional education, and research all designated to support children and families… 16-0913012 · FY2024 Greenvale, NY $1.4M $1.0M $2.3M 87% 0% 2 501(c)(3)
Magic Foundation The Magic Foundation provides support services to families of children afflicted with a wide variety of… 36-3673333 · FY2024 Warrenville, IL $1.3M $1.3M $2.9M 78% 3% 11 501(c)(3)
Childrens Cardiomyopathy Foundation INC To accelerate the search for a cure by stimulating and supporting promising research on pediatric… 75-2986661 · FY2025 Tenafly, NJ $996.2K $714.5K $3.3M 71% 13% 5 501(c)(3)
Tylers Hope for Dystonia Cure INC The organization was established to advance research for a CURE, discover effective treatments, and to… 20-3733312 · FY2024 Alachua, FL $746.6K $640.9K $446.4K 93% 0% 1 501(c)(3)
Cure Cmd INC Cure CMD's mission is to bring research treatments and in the future a cure for Congenital Muscular… 26-2640975 · FY2024 Lakewood, CA $677.2K $442.5K $508.5K 68% 12% 5 501(c)(3)
Hypertrophic Cardiomyopathy Medical Society To bring together an innovative and productive community of physicians, scientists and MEDICAL providers… 87-2235662 · FY2024 Raleigh, NC $621.6K $114.9K $896.3K 80% 0% — 501(c)(3)
The United Leukodystrophy Foundation INC The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and… 35-1557361 · FY2024 Chicago, IL $596.3K $553.0K $1.7M 69% 5% 2 501(c)(3)
Soft Bones INC the US Hypophosphatasia Foundation To build awareness of the disease of HYPOPHOSPHATASIA by providing educational materials, a support network… 26-4619055 · FY2024 Boonton, NJ $526.7K $512.2K $581.6K 85% 4% 5 501(c)(3)
Kindness Over Muscular Dystrophy INC The mission of the organization is to provide charitable giving to support MUSCULAR DYSTROPHY research as… 84-2603015 · FY2024 Ridgefield, CT $508.9K $401.9K $334.4K 92% 6% — 501(c)(3)
Foundation for Physical Medicine and Rehabilitation The foundation's mission is to enhance health and function through education and research in the field of… 04-3630273 · FY2024 Rosemont, IL $399.0K $374.4K $3.1M 59% 21% — 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Morgan Hoffmann Foundation To lead the race to find a cure for muscular dystrophy through research and the establishment of health &… 82-4228151 · FY2024 Cleveland, OH $291.4K $463.6K $2.1M 11% 0% — 501(c)(3)
Yaya Foundation for 4h Leukodystrophy Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional… 82-3888108 · FY2024 Minneapolis, MN $284.1K $410.8K $323.4K 50% 31% 2 501(c)(3)
Walking Strong INC WALKING STRONG helps duchenne families with their over-bearing medical needs that are most often not covered… 47-1648097 · FY2024 West Hills, CA $279.2K $229.0K $425.9K 80% 11% 1 501(c)(3)
Myasthenia Gravis Foundation of Illinois INC The Foundation's mission is to facilitate the timely diagnosis and optimal care of individuals affected by MG… 23-7282572 · FY2024 Elmhurst, IL $193.1K $177.4K $1.4M 82% 0% — 501(c)(3)
Fishing for MD Foundation INC To utilize fundraising activities, offshore FISHING sponsorships and tournament winnings to directly… 81-3450854 · FY2024 Dayton, MD $184.8K $260.5K $450.7K 82% 0% 3 501(c)(3)
Systemic Jia Foundation 1. To support research relating to treatments and cure of SYSTEMIC juvenile idiopathic arthritis (sjia); 2… 82-2564392 · FY2024 Mountain View, CA $159.5K $142.5K $106.6K 77% 0% — 501(c)(3)
Mdds Balance Disorder Foundationinc To fund research to cure the MDDS BALANCE DISORDER. 20-5953110 · FY2024 Audubon, PA $139.3K $264.1K $666.4K 54% 42% — 501(c)(3)
Myasthenia Gravis Foundation of California To find a cure for Myasthenia Gravis by funding cutting edge research and providing services for Myasthenia… 95-4562470 · FY2024 Los Angeles, CA $118.9K $58.4K $1.4M 87% 3% 2 501(c)(3)
Jordan Hays Foundation The foundation's mission is to organize fund raising activites to provide funds for research to find a cure… 27-2874778 · FY2024 Wentzville, MO $82.3K — $13.1K — — — 501(c)(3)
Foundation for Usp7 - Related Diseases To cure USP7-RELATED DISEASES by funding research and identifying more patients. 82-1697564 · FY2024 Falmouth, ME $76.0K $37.8K $234.1K 58% 31% — 501(c)(3)
The Neuromuscular Disease Foundation To promote and fund research for genetic neuromuscular disorders and diseases. Additionally, the foundation… 06-1789643 · FY2024 Beverly Hills, CA $65.4K $352.4K $660.3K 90% 2% 4 501(c)(3)
Heal Dmd To ignite a movement of compassion, hope and love that will defeat Duchenne Muscular Dystrophy DMD. 92-2757865 · FY2025 Scottsdale, AZ $56.3K $5.0K $202.8K 0% 8% — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org