Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jun 2018.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Who runs it and what they're paid
6 people listed on the 990-EZ; $12K paid to officers and key staff.
Sara McGlocklin’s $12K as President is at the 36th percentile of top reported officer pay among 154 <$100K diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|
| Sara McGlocklin | $11,500 | $12,000 | $12,000 | $6,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Programs and updates
Fund research and raise awareness to find a cure for Niemann-Pick Type C.
Questions for Hope for Marian
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Funding contributed to advocacy groups who work to promote research to cure Niemann-Pick Type C disease and raise awareness in government.
Funding contributed to outreach programs to promote education and awareness about Niemann-Pick Type C.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990-EZ, line by line.
Download 990
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $82K | $100K | 990 PDF | ||
| FY2023 | $48K | $72K | −$24K | $45K | 990 PDF |
| FY2022 | $40K | $95K | −$54K | $74K | 990 PDF |
| FY2021 | $230K | $121K | $109K | $130K | 990 PDF |
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Schedules filed Part IV
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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