Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2017.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
100 cents of each dollar spent went to programs.
Form 990 Part IX, line 25. Every line is in By the numbers.
Who runs it and what they're paid
1 person listed on the 990-EZ; $30K paid to officers and key staff.
Julie M Eggington’s $30K as CEO is at the 75th percentile of top reported officer pay among 146 <$100K education nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Heather King | — | — | $101,550 | — | — | — |
| Julie M Eggington | $30,000 | $31,200 | $31,200 | $31,200 | $31,200 | $26,908 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Programs and updates
Builds a comprehensive genetic variant database to identify disease markers and aid cure research.
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The Organization shall, through interactions and outreach with patients, clinicians, genetics laboratories, genetics advocacy groups, academic institutions, and the general public, advance the science and application of genetic variant classification and educate the public on the current scientific status of clinical genetics and the…
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990-EZ, line by line.
Download 990
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $17K | $61K | −$45K | −$498K | 990 PDF |
| FY2024 | $442 | −$453K | 990 PDF | ||
| FY2023 | $32K | −$379K | 990 PDF | ||
| FY2022 | $267K | $338K | −$71K | −$130K | 990 PDF |
| FY2021 | $284K | $324K | −$40K | −$60K | 990 PDF |
| FY2020 | $124K | −$20K | 990 PDF |
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Schedules filed Part IV
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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