Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Apr 1988.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
73 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
9 people listed on the 990; $90K paid to officers and key staff.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|
| Karen L Ball | $90,014 | $88,800 | $88,750 | $88,200 | $88,746 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Supports families impacted by Sturge-Weber syndrome and port wine birthmarks.
Questions for The Sturge-Weber Foundation
Your first name shows with your question. The Sturge-Weber Foundation answers here, for everyone.
Know this organization? Claim it to add your story
The foundation drives patient engagement through diverse and robust projects, conferences and online support. The website is a rich resource of learning and uplifting stories of inspirational hope to cope with the diagnosis.
The foundation's research program is lead by a global team of researchers that comprise the sturge-weber foundation international research network to facilitate innovative and collaborative research investigations.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $399K | $414K |
| Total assetsLn 16 | $411K | $418K |
| LiabilitiesLn 26 | $114K | $66K |
| Net assetsLn 32 | $297K | $352K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $90K | $83K | $5K | $3K |
| Other salaries and wagesLn 7 | $75K | $48K | $27K | $104 |
| Pension plan contributionsLn 8 | $4K | $3K | $809 | $72 |
| Other employee benefitsLn 9 | $2K | $2K | $411 | $36 |
| Payroll taxesLn 10 | $13K | $10K | $3K | $225 |
| Other fees for servicesLn 11g | $19K | $19K | ||
| Advertising and promotionLn 12 | $8K | $8K | $75 | |
| Office expensesLn 13 | $38K | $20K | $15K | $4K |
| OccupancyLn 16 | $948 | $948 | ||
| Conferences, conventions and meetingsLn 19 | $22K | $21K | $351 | |
| Depreciation, depletion and amortizationLn 22 | $345 | $345 | ||
| InsuranceLn 23 | $1K | $451 | $762 | $77 |
| Other expenses (24a–d)Ln 24 | $63K | $49K | $13K | $69 |
| Total functional expensesLn 25 | $337K | $245K | $85K | $7K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $392K | $337K | $55K | $352K | 990 PDF |
| FY2024 | $361K | $414K | −$53K | $297K | 990 PDF |
| FY2023 | $427K | $440K | −$13K | $349K | 990 PDF |
| FY2022 | $376K | $503K | −$127K | $362K | 990 PDF |
| FY2021 | $299K | $475K | −$177K | $489K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $392,112 revenue, 12 lines filed
Part VI · Governance 8 of 8 board members independent, 1 to look at
Part VIII · Statement of revenue $392,112 across 6 lines filed
Part IX · Statement of functional expenses $337,137 across 13 lines filed
Part X · Balance sheet $418,065 assets, 12 lines filed
Part XI · Reconciliation of net assets $351,701 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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