Acmg Foundation for Genetic and Genomic Medicine: Nonprofit Profile, Financials & Form 990 (EIN 52-1841165)

Revenue by fiscal year
FY2020	$982K
FY2021	$1.6M
FY2022	$1.4M
FY2023	$1.8M
FY2024	$622K

Expenses by fiscal year
FY2020	$908K
FY2021	$702K
FY2022	$759K
FY2023	$836K
FY2024	$1.5M

Net assets by fiscal year
FY2020	$1.6M
FY2021	$2.7M
FY2022	$2.9M
FY2023	$3.9M
FY2024	$3.3M

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Sep 1993.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

19 cents of each dollar spent went to programs.

19%

63%

18%

Program services 19% · $286K Management & general 63% · $970K Fundraising 18% · $279K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

23 people listed on the 990; $1.7M paid to officers and key staff.

Part VII, Section A · reportable compensation

Melanie Wells

CEO

$330,016Pt VII · Sec A

Chris Pitro

CFO

$210,362Pt VII · Sec A

Amy Brower

Associate Project Director, Nbs

$183,984Pt VII · Sec A

Kathleen Moran

Director of Communications

$183,490Pt VII · Sec A

Lynn Fleisher

General Counsel

$182,000Pt VII · Sec A

Karl Moeller

Director of Development

$180,322Pt VII · Sec A

Alexis Morgan

COO

$163,083Pt VII · Sec A

Michelle McClure

Director of Public Policy

$149,992Pt VII · Sec A

Compensation history total reportable pay by year · 8 named individuals · Part VII

Name	FY2024	FY2023	FY2022	FY2021	FY2020
Maximilian Muenke	—	—	$424,360	—	—
Maxmilian Muenke	—	—	—	$412,000	$400,000
Michael Watson	—	—	—	—	$375,300
Melanie Wells	$330,016	$295,935	$254,385	$221,205	$168,955
Chris Pitro	$210,362	—	$194,658	—	—
Lynn Fleisher	$182,000	$210,000	—	—	—
Amy Brower	$183,984	—	—	—	—
Kathleen Moran	$183,490	—	—	—	—

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Acmg Foundation for Genetic and Genomic Medicine executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Funds genetic research scholarships and develops best-practice guidelines for treating genetic diseases.

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Provided by the organization

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1 program · $286K · in their own filed words · FY2024

01

Summer Genetics Scholars Program

In 2024 there were 11 summer scholars enrolled in the summer genetics scholars program. Acmg foundation treatment guidelines development fund: the acceleration of scientific discovery over these last few years has put increasing demands on the acmg to intensify its work in the development of practice guidelines, particularly to be able…

$286Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · this organization's grantmaking

Grants paid · 33 grants · $1.5M · 2020–2024

Greenwood Genetic Center INCSC · FY2024$65,000

Massachusetts Eye and Ear InfirmaryMA · FY2024$37,500

Unitemized GrantFY2024$36,176

Regents of the University of ColoradoCO · FY2024$18,750

Baylor College of MedicineTX · FY2024$16,250

Upmc Childrens Hsptl of PittsburghPA · FY2024$16,250

Nationwide Childrens Hospital FoundOH · FY2024$16,250

Oregon Health and Science University FoundationOR · FY2024$16,250

Johns Hopkins UniversityMD · FY2024$16,250

Unitemized GrantFY2024$15,000

The Children's Hospital of PhiladelphiaPA · FY2023$56,250

Regents of the University of CaliforniaCA · FY2023$53,750

Unitemized GrantFY2023$52,500

Children's Hospital CorporationMA · FY2023$37,500

Greenwood Genetic Center INCSC · FY2023$32,500

Johns Hopkins UniversityMD · FY2023$18,750

Oregon Health and Science University FoundationOR · FY2023$16,250

Children's Hospital CorporationMA · FY2022$80,000

See all 33 grants →

By the numbers

The FY2024 990, line by line.

Download 990

from philanthropy.org

1The main four

Money inPt VIII

$622K

Ln 12

Gifts and grantsLn 1h$493K

Investment incomeLn 3$117K

Other incomeLn 4–11$12K

Money outPt IX

$1.5M

Ln 25

Programscol B$286K

Managementcol C$970K

Fundraisingcol D$279K

Owns and owesPt X

$3.3M

net assets · Ln 32

Cash and savingsLn 1–2$566K

Total assetsLn 16$3.5M

LiabilitiesLn 26$265K

PeoplePt VI, VII

23

listed · VII A

PaidVII A9

Voting boardVI 1a14

IndependentVI 1b14

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$493K

Investment incomeLn 3$117K

Other incomeLn 4–11$12K

Total revenueLn 12$622K

Assets in detailPt X, end of year

SavingsLn 2$566K

Cash and savings togetherLn 1–2$566K

InvestmentsLn 11–13$2.0M

Land, buildings, equipmentLn 10c$20K

Other assetsLn 15$693K

Total assetsLn 16$3.5M

LiabilitiesLn 26$265K

Net assetsLn 32$3.3M

OperationsPt I, VI

EmployeesI 560

VolunteersI 614

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13Yes

Records policyVI 14Yes

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY24	End FY24
Cash and savingsLn 1–2	$925K	$566K
InvestmentsLn 11–13	$2.7M	$2.0M
Land, buildings, equipmentLn 10c	$15K	$20K
Total assetsLn 16	$4.4M	$3.5M
LiabilitiesLn 26	$485K	$265K
Net assetsLn 32	$3.9M	$3.3M

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic organizationsLn 1	$250K	$250K
Pay of current officers, directors and key staffLn 5	$42K	$4K	$13K	$25K
Other salaries and wagesLn 7	$286K	$25K	$89K	$172K
Pension plan contributionsLn 8	$15K	$1K	$5K	$9K
Other employee benefitsLn 9	$29K	$3K	$9K	$18K
Payroll taxesLn 10	$23K	$17	$11K	$12K
Legal feesLn 11b	$622K		$622K
Accounting feesLn 11c	$32K		$32K
Investment management feesLn 11f	$21K		$21K
Other fees for servicesLn 11g	$101K	$1	$99K	$2K
Advertising and promotionLn 12	$5K		$4K	$1K
Office expensesLn 13	$15K	$1	$15K
Information technologyLn 14	$12K		$12K
OccupancyLn 16	$9K		$9K
TravelLn 17	$28K	$4K	$24K
Conferences, conventions and meetingsLn 19	$40K			$40K
Depreciation, depletion and amortizationLn 22	$5K		$5K
Total functional expensesLn 25	$1.5M	$286K	$970K	$279K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2024 Latest Viewing	$622K	$1.5M	−$913K	$3.3M	990 PDF
FY2023	$1.8M	$836K	$986K	$3.9M	990 PDF
FY2022	$1.4M	$759K	$650K	$2.9M	990 PDF
FY2021	$1.6M	$702K	$898K	$2.7M	990 PDF
FY2020	$982K	$908K	$74K	$1.6M	990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash

See the full FY2024 990 (6 parts)

Part I · Summary $622,219 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $1,484,501$493,178

I-9 Program service revenuePrior year $0$0

I-10 Investment incomePrior year $323,758$116,970

I-11 Other revenuePrior year $13,649$12,071

I-12 Total revenuePrior year $1,821,908$622,219

I-13 Grants and similar amounts paidPrior year $477,500$250,500

I-14 Benefits paid to membersPrior year $0$0

I-15 Salaries and benefitsPrior year $104,459$394,647

I-16a Professional fundraising feesPrior year $0$0

I-17 Other expensesPrior year $253,627$890,268

I-18 Total expensesPrior year $835,586$1,535,415

I-19 Revenue less expensesPrior year $986,322−$913,196

Part VI · Governance 14 of 14 board members independent, no flags

VI-1a Voting members of the governing body14

VI-1b Independent voting members14

VI-2 Family or business relationship among officers or directorsNo

VI-12a Written conflict of interest policyYes

VI-13 Written whistleblower policyYes

VI-14 Document retention and destruction policyYes

VI-15a Process for setting top official's payYes

Part VIII · Statement of revenue $622,219 across 5 lines filed

VIII-1f All other contributions, gifts and grants$493,178

VIII-1h Total contributions, gifts and grants$493,178

VIII-3 Investment incomeExcluded from tax $116,970$116,970

VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Excluded from tax $12,071$12,071

VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $129,041$622,219

Part IX · Statement of functional expenses $1,535,415 across 17 lines filed

IX-1 Grants to domestic organizationsPrograms $250,500$250,500

IX-5 Pay of current officers, directors and key staffPrograms $3,585 · Management $13,024 · Fundraising $25,170$41,779

IX-7 Other salaries and wagesPrograms $24,506 · Management $89,026 · Fundraising $172,050$285,582

IX-8 Pension plan contributionsPrograms $1,280 · Management $4,650 · Fundraising $8,986$14,916

IX-9 Other employee benefitsPrograms $2,513 · Management $9,129 · Fundraising $17,641$29,283

IX-10 Payroll taxesPrograms $17 · Management $10,887 · Fundraising $12,183$23,087

IX-11b Legal feesManagement $622,157$622,157

IX-11c Accounting feesManagement $32,323$32,323

IX-11f Investment management feesManagement $21,056$21,056

IX-11g Other fees for servicesPrograms $1 · Management $98,587 · Fundraising $1,956$100,544

IX-12 Advertising and promotionManagement $4,140 · Fundraising $1,200$5,340

IX-13 Office expensesPrograms $1 · Management $15,435$15,436

IX-14 Information technologyManagement $12,036$12,036

IX-16 OccupancyManagement $8,699$8,699

IX-17 TravelPrograms $3,815 · Management $23,911$27,726

IX-19 Conferences, conventions and meetingsFundraising $39,720$39,720

IX-22 Depreciation, depletion and amortizationManagement $5,231$5,231

IX-25 Total functional expensesPrograms $286,218 · Management $970,291 · Fundraising $278,906$1,535,415

Part X · Balance sheet $3,524,087 assets, 13 lines filed

X-2 Savings and temporary cash investmentsStart of year $925,399$566,378

X-3 Pledges and grants receivableStart of year $232,750$293,188

X-9 Prepaid expenses and deferred chargesStart of year $1,152$9

X-10c Land, buildings and equipment, netStart of year $14,811$20,376

X-11 Publicly traded securitiesStart of year $2,671,347$1,951,450

X-15 Other assetsStart of year $564,774$692,686

X-16 Total assetsStart of year $4,410,233$3,524,087

X-17 Accounts payable and accrued expensesStart of year $275,271$265,047

X-26 Total liabilitiesStart of year $485,271$265,047

X-27 Net assets without donor restrictionsStart of year $1,328,033$631,110

X-28 Net assets with donor restrictionsStart of year $2,596,929$2,627,930

X-32 Total net assets or fund balancesStart of year $3,924,962$3,259,040

X-33 Total liabilities and net assetsStart of year $4,410,233$3,524,087

Part XI · Reconciliation of net assets $3,259,040 net assets at year end

XI-1 Total revenue$622,219

XI-2 Total expenses$1,535,415

XI-3 Revenue less expenses−$913,196

XI-4 Net assets at start of year$3,924,962

XI-5 Net unrealized gains (losses) on investments$247,274

XI-9 Other changes in net assets$0

XI-10 Net assets at end of year$3,259,040

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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