Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Aug 2011.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
78 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
11 people listed on the 990; $47K paid to officers and key staff.
Monika Jones’s $47K as President and CEO is at the 32nd percentile of top reported officer pay among 1979 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Monika Jones | $46,673 | $17,953 | $7,225 | $57,800 | — | — |
| Monika a Jones ESQ | — | — | — | — | $43,350 | $55,392 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Helps children needing neurosurgery for epilepsy and supports their families through research and programs.
Questions for The Brain Recovery Project
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Information and Resources
In 2025, the alliance transitioned from providing general information to delivering high-stakes support and education for the epilepsy community. Our "epilepsy surgery saves lives" campaign reached over 70,000 unique individuals, providing families with the clinical context needed to pursue surgical treatment options that are known to…
Advocacy and Collaboration
Through active participation in leading national and international networks, the alliance ensures the needs of families navigating complex epilepsy are represented within the broader medical and educational sectors.
Financial Aid
The dreams for danny surgical evaluation scholarship program removes financial barriers for families seeking specialized care for children with drug-resistant epilepsy. By providing up to $1,000 for travel and lodging, the program ensures that geographical distance and the high costs of multi-day diagnostic monitoring do not prevent…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $195K | $265K |
| Total assetsLn 16 | $202K | $286K |
| LiabilitiesLn 26 | $15K | $4K |
| Net assetsLn 32 | $187K | $282K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic individualsLn 2 | $26K | $26K | ||
| Pay of current officers, directors and key staffLn 5 | $47K | $37K | $1K | $8K |
| Other salaries and wagesLn 7 | $112K | $90K | $3K | $19K |
| Other employee benefitsLn 9 | $606 | $606 | ||
| Payroll taxesLn 10 | $12K | $9K | $404 | $2K |
| Accounting feesLn 11c | $15K | $15K | ||
| Other fees for servicesLn 11g | $27K | $26K | $754 | |
| Advertising and promotionLn 12 | $4 | $4 | ||
| Office expensesLn 13 | $51K | $37K | $10K | $5K |
| Information technologyLn 14 | $4K | $24 | $4K | |
| TravelLn 17 | $27K | $27K | ||
| Conferences, conventions and meetingsLn 19 | $2K | $2K | ||
| InsuranceLn 23 | $6K | $1K | $4K | |
| Other expenses (24a–d)Ln 24 | $8K | $8K | $0 | $0 |
| Total functional expensesLn 25 | $338K | $265K | $36K | $37K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $432K | $338K | $95K | $282K | 990 PDF |
| FY2024 | $467K | $497K | −$29K | $187K | 990 PDF |
| FY2023 | $301K | $216K | $85K | $216K | 990 PDF |
| FY2022 | $321K | $343K | −$23K | $132K | 990 PDF |
| FY2021 | $240K | $205K | $35K | $155K | 990 PDF |
| FY2020 | $242K | $199K | $43K | $119K | 990 PDF |
| FY2019 | $428K | $435K | −$8K | $76K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $432,363 revenue, 12 lines filed
Part VI · Governance 9 of 9 board members independent, no flags
Part VIII · Statement of revenue $432,363 across 11 lines filed
Part IX · Statement of functional expenses $337,797 across 14 lines filed
Part X · Balance sheet $286,184 assets, 9 lines filed
Part XI · Reconciliation of net assets $281,803 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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