Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jun 2009.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
80 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
12 people listed on the 990; $121K paid to officers and key staff.
Amy Skiba’s $121K as Executive Director is at the 89th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2020 |
|---|---|---|---|---|---|
| Amy Skiba | $121,275 | $123,869 | $119,375 | $63,750 | — |
| Emily Everett | — | — | — | — | $84,500 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports lung transplant research, raises awareness, and mentors recipients for healthier lives.
Questions for The Lung Transplant Foundation
Your first name shows with your question. The Lung Transplant Foundation answers here, for everyone.
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Transplant talk is a series of webinars and panel discussions hosted by the lung transplant foundation (LTF) that explore the emotional and psychological dimensions of the transplant experience. This program is delivered by professionals and community-based speakers.
The lung transplant foundation (LTF) joseph j. Carter mentorship program connects transplant recipients and caregivers with trained volunteer mentors who have gone through the lung transplant process THEMSELVES.IT provides an essential link between people living successfully following their transplant experience and those new or…
A dedicated annual virtual event focused on bronchiolitis obliterans syndrome (bos)the leading form of chronic lung transplant rejection. It educates patients, caregivers, and clinicians on strategies for prevention, early detection, and management
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $159K | $372K |
| Land, buildings, equipmentLn 10c | $0 | $0 |
| Total assetsLn 16 | $195K | $391K |
| LiabilitiesLn 26 | $5K | $38K |
| Net assetsLn 32 | $190K | $352K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $1K | $1K | ||
| Pay of disqualified personsLn 6 | $133K | $120K | $13K | |
| Payroll taxesLn 10 | $10K | $9K | $1K | |
| Accounting feesLn 11c | $12K | $12K | ||
| Other fees for servicesLn 11g | $24K | $19K | $5K | |
| Advertising and promotionLn 12 | $2K | $2K | ||
| Office expensesLn 13 | $11K | $8K | $3K | |
| Information technologyLn 14 | $3K | $23 | $3K | |
| OccupancyLn 16 | $1K | $1K | ||
| TravelLn 17 | $11K | $11K | ||
| Depreciation, depletion and amortizationLn 22 | $3K | $3K | ||
| InsuranceLn 23 | $8K | $8K | ||
| Other expenses (24a–d)Ln 24 | $42K | $38K | $4K | |
| Total functional expensesLn 25 | $261K | $208K | $49K | $4K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $423K | $261K | $162K | $352K | 990 PDF |
| FY2024 | $268K | $219K | $49K | $190K | 990 PDF |
| FY2023 | $122K | $141K | 990 PDF | ||
| FY2022 | $189K | $239K | 990 PDF | ||
| FY2021 | $359K | $136K | $223K | $349K | 990 PDF |
| FY2020 | $102K | $126K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $423,419 revenue, 12 lines filed
Part VI · Governance 12 of 12 board members independent, 3 to look at
Part VIII · Statement of revenue $423,419 across 5 lines filed
Part IX · Statement of functional expenses $261,318 across 13 lines filed
Part X · Balance sheet $390,669 assets, 13 lines filed
Part XI · Reconciliation of net assets $352,485 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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