Person · officer / director

Vicky Seyfert-Margolis - 1225

Chair · Everylife Foundation for Rare Diseases

Chair at Everylife Foundation for Rare Diseases. Listed as an officer, director, or key employee across 1 organization on the Form 990 record.

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Everything on the left is verified from the IRS filings. The biography on the right is compiled from public web sources and grounded to that filed record.

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Reported as Chair of Everylife Foundation for Rare Diseases, based in Washington, DC.

Facts extracted directly from each organization's Form 990, Part VII.

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Everylife Foundation for Rare Diseases Chair · $7.5M revenue · Washington, DCINFORMATION REGARDING THE FOUNDATION'S PROGRAMS CAN BE OBTAINED AT WWW.EVERYLIFEFOUNDATION.ORG.Filed FY2025 · Source: Form 990, Part VII

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Serves alongside

Other officers, directors & key employees at this person's organizations, by latest reported compensation.

Michael Pearlmutter

CEO · FY2025

$278K

Anne Kennedy

Policy & Advocacy · FY2025

$275K

Julia Jenkins

President & Executive Dir. · FY2023

$274K

Annie Kennedy

Policy & Advocacy · FY2022

$233K

William Nolan

Chief Marketing · FY2025

$195K

Megan Pinegar

COO · FY2024

$192K

Jamie Sullivan

Sr. Dir of Policy · FY2025

$158K

Edward Brasfield

Sr Dir of Develop · FY2025

$140K

Shannon Von Felden

Sr Director of Adv · FY2025

$139K

Carol Kennedy

Development · FY2020

$129K

Mary Roth

Communications · FY2022

$123K

Britta Dornan

Communications · FY2022

$113K

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