Person · officer / director

Stephanie Smith Lee

Policy/Advocacy Co-Director · National Down Syndrome Congress

Policy/Advocacy Co-Director at National Down Syndrome Congress. Listed as an officer, director, or key employee across 1 organization on the Form 990 record.

Organizations

Roles reported

Reported compensation

$112K

Who this is

Profile

Everything on the left is verified from the IRS filings. The biography on the right is compiled from public web sources and grounded to that filed record.

✓ Verified from filings

●

Reported as Policy/Advocacy Co-Director of National Down Syndrome Congress, based in Cincinnati, OH.

●

Received $112K in total reported compensation on the most recent Form 990 (Part VII).

Facts extracted directly from each organization's Form 990, Part VII.

Biography In progress

We're building a sourced biography for every person — from filings, news, and public records, citing where each fact comes from. Person-name searches are our single largest source of demand, so this is what we're shipping next.

Affiliations

Organizations

National Down Syndrome Congress Policy/Advocacy Co-Director · $1.7M revenue · Cincinnati, OHTHE MISSION OF THE NATIONAL DOWN SYNDROME CONGRESS IS TO PROVIDE INFORMATION, ADVOCACY, AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS…Filed FY2024 · Source: Form 990, Part VII

$112Kreported comp

Network

Serves alongside

Other officers, directors & key employees at this person's organizations, by latest reported compensation.

James Hudson

Executive Director · FY2025

$157K

David Tolleson

Executive Director · FY2021

$134K

Jordan Kough

Executive Director · FY2023

$131K

Sean Smith

President · FY2025

Anthony Zanfordino

1st Vice President · FY2025

Beau Brooks

2nd Vice President · FY2025

Nicole Baumer

3rd Vice President · FY2025

Zachary Carroll

4th Vice President · FY2025

Andre Pineda

Treasurer · FY2025

David Chaplin

Secretary · FY2025

Kishore Vellody

Past President · FY2025

Bradley Carlisle

Director · FY2025

Network

Recommendations

Written by other verified members of the network — visible once you're a verified person yourself.

Loading…

Explore

Similar organizations

Nonprofits working in the same field — explore who else operates in this space.

Space Coast Discovery INC$2.2M revenue · West Melbourne, FL

The Down Syndrome Connection of the Bay Area$1.4M revenue · Danville, CA

Puerto Rico Down Sindrome Foundation INC$1.4M revenue · San Juan, PR

Down Syndrome Association of Minnesota$885K revenue · Saint Paul, MN

Central Oregon Disablility Support Network INC$879K revenue · Bend, OR

Miracle Mullen Downs Foundation$718K revenue · Birmingham, AL

People like this

Similar leaders

Leaders at organizations in the same field, by reported compensation.

Liliana C Goumnerova MD

Physician · Boston Pediatric Neurosurgical Foundation INC

$4.8M

Nancy Brown

CEO · American Heart Association INC

$4.5M

Richard W Brown

Director/Chair/Pres/CEO · Stowers Resource Management INC

$3.0M

John C Mahler JR

Chief Investment Officer · Cystic Fibrosis Foundation

$2.7M

Jack Mahler MD

Chief Investment Officer · Cystic Fibrosis Foundation

$2.5M

Balagopalan Nair MD

Medical Oncology · Central Arkansas Radiation Therapy

$2.1M