Person · officer / director

Penny Dacks

Sr Director of Scientific Initiatives · The Association for Frontotemporal Degeneration

Sr Director of Scientific Initiatives at The Association for Frontotemporal Degeneration. Listed as an officer, director, or key employee across 2 organizations on the Form 990 record.

This is me

Ambiguous identity This name matches 1 other individual we could not verify as the same person. Each is kept as a separate record below — treat them as distinct people unless an explicit match is confirmed.

Organizations

Roles reported

Reported compensation

$226K

Others who share this name

Who this is

Profile

The filed facts are verified from the IRS filings. The biography is compiled from public web sources and grounded to that filed record.

✓ Verified from filings

●

Reported as Sr Director of Scientific Initiatives of The Association for Frontotemporal Degeneration, based in Kng Of Prussa, PA.

●

Received $226K in total reported compensation on the most recent Form 990 (Part VII).

●

Also listed as President of Ftd Disorders Registry LLC, uncompensated.

Facts extracted directly from each organization's Form 990, Part VII.

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Affiliations

Organizations

Linked as the same person by IRS Schedule R, a shared officer mailing address, or shared fellow board members.

The Association for Frontotemporal Degeneration Sr Director of Scientific Initiatives · $14.4M revenue · Kng Of Prussa, PAPROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES (CONT'D IN SCH O)AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD);…pay $208K → $226KFiled FY2024 · Source: Form 990, Part VII

$226Kreported comp

Ftd Disorders Registry LLC President · $871K revenue · Kng Of Prussa, PAPROVIDE A PATIENT REGISTRY FOR THOSE AFFLICTED BY FTD, A DEVASTATING NEURODEGENERATIVE DISEASE.Filed FY2024, FY2023, FY2022 · Source: Form 990, Part VII

Disambiguation

Other people named Penny Dacks

Different individuals who share this name, separated by IRS Schedule R, mailing address, and shared-board evidence. The 990 carries no person identifier, so some may still be the same person.

Penny Dacks 1 organization · Chicago, ILAmerican Epilepsy Society

Network

Serves alongside

Other officers, directors & key employees at this person's organizations, by latest reported compensation.

Susan L-J Dickinson

Chief Executive Officer · FY2024

$320K

Mitch Appleson

Chief Operating Officer · FY2024

$255K

Christine Rogers Stevens

Director of Finance (thru 9/24) · FY2023

$183K

Sharon Denny

Sr Director of Programs · FY2024

$174K

Peter Witzleb

Director of It · FY2024

$169K

Benjamin Freeman

Dir of Dev & Comm (thru 1/24) · FY2023

$160K

Phillip John Weichel

Sr Director of Advancement · FY2024

$158K

Shana Dodge

Director of Research Engagement · FY2024

$153K

Carrie Milliard

Registry Director · FY2024

$149K

Dianna Wheaton Thru Jan 2023

Registry Director · FY2022

$118K

Dianna Wheaton

Registry Director · FY2020

$101K

Rita Choula

Chair · FY2024

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