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Person · officer / director

Lisa Sarfaty

VP Community Engagement · National Organization for Rare Disorders INC

VP Community Engagement at National Organization for Rare Disorders INC. Listed as an officer, director, or key employee across 1 organization on the Form 990 record.

This is me
Organizations
1
Roles reported
1
Reported compensation
$173K

Who this is

Profile

The filed facts are verified from the IRS filings. The biography is compiled from public web sources and grounded to that filed record.

✓ Verified from filings
●
Reported as VP Community Engagement of National Organization for Rare Disorders INC, based in Danbury, CT.
●
Received $173K in total reported compensation on the most recent Form 990 (Part VII).
Facts extracted directly from each organization's Form 990, Part VII.
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Affiliations

Organizations

National Organization for Rare Disorders INC VP Community Engagement · $66.4M revenue · Danbury, CTNORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.Filed FY2023 · Source: Form 990, Part VII
$173Kreported comp

Network

Serves alongside

Other officers, directors & key employees at this person's organizations, by latest reported compensation.

P
CEO · FY2025
$480K
K
Chief Strategy & Operations Officer · FY2025
$294K
P
VP Information Technology · FY2025
$293K
E
Chief Medical & Scientific Officer · FY2025
$271K
A
VP of Development · FY2025
$254K
A
VP of Development · FY2023
$235K
R
VP Policy & Regulatory Affairs · FY2021
$226K
P
VP Community & Corporate Affairs · FY2024
$207K
T
VP of Research & Clinical Programs · FY2025
$194K
J
VP Patient Services · FY2025
$188K
N
VP & CFO · FY2025
$186K
H
VP Policy & Regulatory Affairs · FY2022
$174K

Network

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Public data from IRS Form 990 e-file & the Business Master File. Individuals appear here because they were named as an officer, director, or key employee on a nonprofit's Form 990; people are grouped by name plus corroborating evidence (Schedule R, shared address, shared board members). · philanthropy.org