Person · officer / director

Kari Luther Rosbeck

President & CEO · National Tuberous Sclerosis Association INC

President & CEO at National Tuberous Sclerosis Association INC. Listed as an officer, director, or key employee across 2 organizations on the Form 990 record.

This is me

Ambiguous identity This name matches 1 other individual we could not verify as the same person. Each is kept as a separate record below — treat them as distinct people unless an explicit match is confirmed.

Organizations

Roles reported

Reported compensation

$255K

Others who share this name

Who this is

Profile

The filed facts are verified from the IRS filings. The biography is compiled from public web sources and grounded to that filed record.

✓ Verified from filings

●

Reported as President & CEO of National Tuberous Sclerosis Association INC, based in Silver Spring, MD.

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Received $255K in total reported compensation on the most recent Form 990 (Part VII).

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Also listed as President & CEO of Tsc Alliance Endowment Fund INC, uncompensated.

Facts extracted directly from each organization's Form 990, Part VII.

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Affiliations

Organizations

Linked as the same person by IRS Schedule R, a shared officer mailing address, or shared fellow board members.

National Tuberous Sclerosis Association INC President & CEO · $9.8M revenue · Silver Spring, MDFINDING A CURE FOR TUBEROUS SCLEROSIS COMPLEX WHILE IMPROVING THE LIVES OF THOSE AFFECTED.pay $218K → $255KFiled FY2025, FY2024, FY2023, FY2022 · Source: Form 990, Part VII

$255Kreported comp

Tsc Alliance Endowment Fund INC President & CEO · $830K revenue · Silver Spring, MDINVEST GIFTS TO GENERATE AN INCOME STREAM TO HELP FULFILL THE MISSION OF THE TSC ALLIANCE.pay $3K → $2KFiled FY2025, FY2024, FY2023, FY2022 · Source: Form 990, Part VII

Disambiguation

Other people named Kari Luther Rosbeck

Different individuals who share this name, separated by IRS Schedule R, mailing address, and shared-board evidence. The 990 carries no person identifier, so some may still be the same person.

Kari Luther Rosbeck 1 organization · New York, NYKaren Collishaw Executive Director

Network

Serves alongside

Other officers, directors & key employees at this person's organizations, by latest reported compensation.

Steven Roberds

Chief Scientific Officer · FY2025

$256K

Steven L Roberds

Chief Scientific Officer · FY2021

$229K

Kari L Rosbeck

President & CEO · FY2021

$215K

Dean Rager-Aguiar

Vice President, Translatio · FY2025

$192K

Cynthia Arcuri

Chief Financial Officer · FY2024

$184K

Jaye Isham

Chief Outreach Officer · FY2024

$154K

Jamie Saylor

Chief Financial Officer · FY2025

$143K

Lisa Moss

Vice President, Donor Rela · FY2025

$136K

Jaye D Isham

VP, Communications Strategy · FY2021

$122K

Heather Radtke

Director, Clinical Programs · FY2025

$120K

Ashley Pounders

Director of Medical Affairs · FY2023

$115K

April Cooper

Vice President, Community Programs · FY2022

$114K

Network

Recommendations

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