Amanda Johnson
Director · Glade Run Foundation
Director at Glade Run Foundation. Listed as an officer, director, or key employee across 3 organizations on the Form 990 record.
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Amanda Johnson serves as the Executive Director of the ASXL Rare Research Endowment Foundation, a role she commenced in 2021 as the organization's first staff member. She is responsible for leading fundraising, programs, events, and partnerships to advance research and improve the quality of life for families affected by ASXL-related disorders.
A notable achievement includes supporting the development of the first GeneReviews article for Shashi-Pena Syndrome. Johnson brings over 15 years of experience in donor-centered fundraising, event management, and nonprofit administration, with prior roles at the Pulmonary Hypertension Association, DC Central Kitchen, and the ARVO Foundation for Eye Research.
She holds a BS in Organizational Communication from Ithaca College and an MA in Nonprofit Management from Notre Dame of Maryland University.
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- MA in Nonprofit Management from Notre Dame of Maryland University · BS in Organizational Communication from Ithaca College
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