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Filter view for IRS Form 990 organizations: name, EIN, NTEE, revenue, expenses, program share, and fiscal year.

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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
The Assistance Fund INC To help insured people with life-changing diseases overcome the financial barriers preventing them from… 27-0270731 · FY2024 Orlando, FL $341.7M $193.4M $565.6M 94% 1% 127 501(c)(3)
Patient Access Network Foundation To help underinsured people with life-threatening, chronic and rare diseases get the medications and… 20-1184743 · FY2024 Washington, DC $203.0M $164.3M $471.3M 89% 1% 31 501(c)(3)
National Organization for Rare Disorders INC Nord strives to improve the health and well-being of people with RARE diseases by driving advances in care… 13-3223946 · FY2024 Norwell, MA $50.7M $43.0M $66.9M 83% 7% 116 501(c)(3)
Autism Opportunities Foundation We improve the lives of the people in our care affected by AUTISM. 41-1847652 · FY2024 Minnetonka, MN $29.4M $30.4M $23.0M 84% 1% 587 501(c)(3)
Children's Health Care Foundation The FOUNDATION champions raising funds in support of special HEALTH needs of children. 41-1814223 · FY2024 Minneapolis, MN $25.5M $22.3M $106.6M 75% 14% 28 501(c)(3)
Healthtree Foundation INC Providing patient-centered tools, education, and support to those with rare diseases using a… 45-5354811 · FY2024 South Jordan, UT $7.5M $7.3M $2.9M 85% 1% 56 501(c)(3)
Everylife Foundation for Rare Diseases The EVERYLIFE FOUNDATION for RARE DISEASES is dedicated to advancing the development of treatment and… 26-4614274 · FY2024 Washington, DC $7.0M $6.8M $6.2M 70% 8% 18 501(c)(3)
Foundation for Prader Willi Research Supports RESEARCH to advance the understanding and treatment of PRADER-WILLI syndrome 31-1763110 · FY2024 Covina, CA $6.2M $6.1M $8.9M 87% 6% 11 501(c)(3)
Childrens Diabetes Foundation To support diabetes research and provide clinical and educational programs. 84-0745008 · FY2024 Aurora, CO $5.7M $4.6M $11.4M 50% 33% 13 501(c)(3)
Rare Village Foundation To fight for cures for RARE diseases and empower individuals with RARE diseases to live their best lives… 83-4699994 · FY2024 McKinney, TX $3.5M $3.1M $3.3M 97% 1% 1 501(c)(3)
Rare Cancer Research Foundation The RARE CANCER RESEARCH FOUNDATION is dedicated to curing RARE cancers through strategic investments and… 46-3405526 · FY2024 Durham, NC $1.8M $2.2M $1.4M 74% 7% 9 501(c)(3)
Phelan McDermid Syndrome Foundation The mission of the Phelan-McDermid Syndrome Foundation is to improve the quality of life of people affected… 04-3673104 · FY2025 Osprey, FL $1.2M $1.1M $2.2M 66% 18% 11 501(c)(3)
Uplifting Athletes INC The mission of UPLIFTING ATHLETES is to inspire the rare disease community with hope through the power of… 34-1986485 · FY2023 Doylestown, PA $1.2M $1.4M $285.0K 77% 9% 4 501(c)(3)
Alport Syndrome Foundation INC To improve the lives of those affected by ALPORT SYNDROME through education, empowerment, advocacy, and… 20-8237159 · FY2024 Phoenix, AZ $1.2M $1.0M $2.8M 91% 3% 1 501(c)(3)
Asxl Rare Research Endowment Foundation A family-led organization that supports research to increase the understanding of the ASXL gene family and… 82-3890665 · FY2024 Gorham, ME $887.6K $474.9K $1.1M 80% 5% 1 501(c)(3)
Praed Foundation Our mission is to support transformational activities in human services with special emphasis on improving… 36-4322205 · FY2024 Chicago, IL $843.9K $1.2M $1.3M 97% 0% — 501(c)(3)
Diabetes Foundation of the High Plains To support families with children who have DIABETES. These efforts will include immediate assistance for… 47-1596568 · FY2024 Amarillo, TX $819.4K $524.4K $2.8M 98% 0% 1 501(c)(3)
Burning Limb Foundation We provide financial assistance for those with rare disease. 81-4780623 · FY2024 Frisco, TX $802.1K $1.1M $132.6K 100% 0% — 501(c)(3)
Dion Foundation for Children with Rare Diseases INC The mission is to increase awareness of rare and ultra-rare diseases that affect children with the intention… 92-2280592 · FY2024 Marshfield, MA $776.0K $937.3K $173.5K 97% 0% — 501(c)(3)
Foundation for Rare Disease Research INC Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare… 92-0534021 · FY2024 Silver Spring, MD $668.5K $1.5M $2.4M 100% 0% — 501(c)(3)
Charity of the Eye Care Network We make access to vision CARE possible for the underserved population in the united states through advocacy… 85-2522421 · FY2023 Aliso Viejo, CA $406.1K $525.3K $2.7M 66% 19% 4 501(c)(3)
To Cure a Rose Foundation Mission is to facilitate bringing genetic therapies to children with hnrnph2, and to those children with rare… 86-2919742 · FY2024 Dripping Spgs, TX $401.1K $426.6K $178.8K 80% 0% — 501(c)(3)
Sophies Hope Foundation INC to raise awareness and funding for research in three areas related to Glycogen Storage Disease Type 1 84-5014314 · FY2025 Hopkinton, MA $346.1K $337.5K $844.1K 96% 2% — 501(c)(3)
The Vision of Children Our mission is to cure hereditary childhood blindness and other Vision disorders and to improve the lives of… 95-4271785 · FY2024 San Diego, CA $344.9K $115.2K $1.5M -93% 114% 3 501(c)(3)
Supportsight Foundation Empower and educate sight-impaired individuals and their families with disease education knowledge, tools and… 83-1475951 · FY2023 Bala Cynwyd, PA $329.2K $289.8K $357.4K 71% 11% 3 501(c)(3)
Mycare Foundation Leverage proven advocacy strategies to educate and support patients and those who care for them in disease… 99-0942343 · FY2025 Colorado Springs, CO $283.8K $250.4K $40.9K 100% 0% — 501(c)(3)
The Tanner Foundation for Neurological Enhance lives of individuals with NEUROLOGICAL diseases 20-0417645 · FY2024 Birmingham, AL $264.9K $289.3K $159.1K 70% 26% 2 501(c)(3)
Leptomeningeal Cancer Foundation To improve quality and extend quantity of life of all people diagnosed with LEPTOMENINGEAL CANCER. 99-4028085 · FY2025 Broomfield, CO $216.3K $21.6K $196.3K 78% 14% — 501(c)(3)
Angels Hands Foundation INC To improve the quality of life for individuals living with rare diseases. 87-0674033 · FY2025 South Jordan, UT $204.3K $175.4K $606.7K 93% 0% — 501(c)(3)
Rarerising Deliver patient-centered, evidence-based research, incubate emerging rare disease entities on their journey… 85-3253125 · FY2024 Menomonee Falls, WI $182.3K $244.6K $89.2K 94% 0% 1 501(c)(3)
Rowland Ward Foundation 85-3857454 · FY2024 Colorado Spgs, CO $176.1K — $88.7K — — — 501(c)(3)
Dhps Foundation C/O Sterling Foundation Management LLC The mission is to help identify and assist individuals with rare genetic disorders, and to work with… 82-4444634 · FY2024 Reston, VA $160.0K $126.0K $17.3K 96% 0% — 501(c)(3)
Childrens Rare Disorders Fund 88-3452294 · FY2023 East Hampton, NY $126.2K — $0 — — — 501(c)(3)
Hearts for Sight Foundation 81-2457848 · FY2024 Temple City, CA $122.6K — $54.6K — — — 501(c)(3)
Warda Foundation 83-2479008 · FY2024 Fenton, MI $121.3K — $16.6K — — — 501(c)(3)
Health Support Foundation 37-1709671 · FY2025 Haymarket, VA $119.3K — $31.8K — — — 501(c)(3)
Rare Trait Hope Fund The mission and primary exepmt purpose is to facilitate research, raise funds and support development of… 46-2762646 · FY2024 Belle Chasse, LA $103.8K — $56.0K — — — 501(c)(3)
Childrens Psc Foundation The Childrens PSC Foundations mission is to fund medical research into the causes and cure for Primary… 26-4814733 · FY2024 Menlo Park, CA $48.1K $113.2K $624.4K 99% 0% — 501(c)(3)
Indo US Organization for Rare Diseases 84-3794099 · FY2024 Herndon, VA $37.7K — $54.6K — — — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org