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Filter view for IRS Form 990 organizations: name, EIN, NTEE, revenue, expenses, program share, and fiscal year.

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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
The Parent Project for Muscular Dystrophy Research INC End duchenne MUSCULAR DYSTROPHY through RESEARCH, advocacy, education, & optimal medical care. 31-1405490 · FY2024 Washington, DC $14.3M $12.9M $12.6M 88% 5% 19 501(c)(3)
Jett Foundation INC JETT FOUNDATION empowers people and families impacted by duchenne muscular dystrophy through the development… 04-3563445 · FY2024 Norwell, MA $5.1M $3.4M $10.4M 74% 15% 14 501(c)(3)
Fshd Society Find treatments and a cure for FSHD while empowering our families 52-1762747 · FY2024 Randolph, MA $4.9M $5.5M $5.6M 78% 12% 23 501(c)(3)
Les Turner Amyotrophic Lateral Sclerosis Foundation To find a cure for als, provide patient and family support and increase public awareness. 36-2916466 · FY2024 Skokie, IL $4.5M $3.3M $4.4M 80% 13% 20 501(c)(3)
Coming Together for a Cure INC Provide a renewed hope for people with muscular dystrophy and other life-threatening diseases by advancing… 47-2585356 · FY2024 Wichita, KS $4.0M $4.0M $51.4K 94% 0% — 501(c)(3)
Cure Duchenne Coordinating and funding research necessary to find a CURE for DUCHENNE muscular dystrophy. Also, improving… 20-0299958 · FY2024 Mission Viejo, CA $3.9M $9.2M $30.9M 80% 10% 30 501(c)(3)
Myotonic Dystrophy Foundation INC To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic… 20-5014628 · FY2024 Oakland, CA $3.7M $3.8M $5.8M 88% 7% 14 501(c)(3)
Dystonia Medical Research Foundation The mission of the dmrf is to advance RESEARCH for more effective treatments and ultimately a cure for… 95-3378526 · FY2024 Chicago, IL $3.2M $3.0M $6.4M 80% 8% 9 501(c)(3)
Collaborative Trajectory Analysis Project To advance understanding of disease progression in duchenne muscular dystrophy by fostering collaboration… 93-4558784 · FY2024 Cambridge, MA $1.9M $1.1M $952.4K 71% 11% — 501(c)(3)
Orthopaedic Foundation for Active Lifestyles INC Research concerning ORTHOPAEDIC surgery and musculoskeletal diseases to advance education, patient care, and… 06-1605002 · FY2024 Stamford, CT $1.6M $822.8K $6.1M 79% 0% 7 501(c)(3)
Foundation to Eradicate Duchenne INC The organization's mission is to provide research grants to fund aggressive research into treatments for… 71-0874241 · FY2024 Alexandria, VA $1.1M $827.9K $1.5M 79% 12% — 501(c)(3)
Cure Lbsl Provide funding to rare disease research & support affected families 46-2829156 · FY2024 Arlington, VA $1.1M $845.2K $955.6K 100% 0% 1 501(c)(3)
A Foundation Building Strength INC To find treatments for nemaline myopathy. 26-1761329 · FY2024 Palo Alto, CA $1.0M $1.2M $3.4M 90% 7% — 501(c)(3)
Team Joseph INC Our primary mission includes funding research to find a cure or treatment for duchenne muscular dystrophy. We… 80-0613664 · FY2024 W Bloomfield, MI $1.0M $1.4M $1.4M 78% 9% 3 501(c)(3)
Childrens Cardiomyopathy Foundation INC To accelerate the search for a cure by stimulating and supporting promising research on pediatric… 75-2986661 · FY2025 Tenafly, NJ $996.2K $714.5K $3.3M 71% 13% 5 501(c)(3)
Tylers Hope for Dystonia Cure INC The organization was established to advance research for a CURE, discover effective treatments, and to… 20-3733312 · FY2024 Alachua, FL $746.6K $640.9K $446.4K 93% 0% 1 501(c)(3)
Cure Cmd INC Cure CMD's mission is to bring research treatments and in the future a cure for Congenital Muscular… 26-2640975 · FY2024 Lakewood, CA $677.2K $442.5K $508.5K 68% 12% 5 501(c)(3)
Muscular Dystrophy Family Foundation INC We assist persons with neuromuscular diseases, including MUSCULAR DYSTROPHY. Each of the past 7 years, we… 35-1040153 · FY2024 Carmel, IN $635.1K $442.3K $1.0M 69% 12% 3 501(c)(3)
Charleys Fund INC To accelerate the development of life-saving treatments for duchenne muscular dystrophy "dmd" 20-2014968 · FY2024 Gt Barrington, MA $628.5K $492.0K $1.1M 92% 2% 3 501(c)(3)
Little Hercules Foundation INC LITTLE HERCULES FOUNDATION works to improve the lives of those diagnosed with and families facing duchenne… 46-1427334 · FY2024 Dublin, OH $612.6K $620.6K $26.4K 75% 4% 5 501(c)(3)
Akari Foundation The Akari Foundation provides culturally and linguistically tailored education advocacy and support to… 82-2557369 · FY2024 San Antonio, TX $591.5K $554.5K $137.9K 93% 1% 5 501(c)(3)
Kindness Over Muscular Dystrophy INC The mission of the organization is to provide charitable giving to support MUSCULAR DYSTROPHY research as… 84-2603015 · FY2024 Ridgefield, CT $508.9K $401.9K $334.4K 92% 6% — 501(c)(3)
Jb's Keys to Dmd INC Jbs KEYS is dedicated to increasing awareness of duchenne muscular dystrophy (DMD) while appropriating funds… 27-1060320 · FY2024 Dover, MA $415.9K $339.4K $747.7K 70% 9% 1 501(c)(3)
Kicks for a Cure INC Raise money to support cancer research and awareness while inspiring young people to lead healthy lifestyles. 20-8105379 · FY2023 Omaha, NE $328.8K $342.9K $35.6K 88% 0% — 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Morgan Hoffmann Foundation To lead the race to find a cure for muscular dystrophy through research and the establishment of health &… 82-4228151 · FY2024 Cleveland, OH $291.4K $463.6K $2.1M 11% 0% — 501(c)(3)
Tall Cedars Foundation Raise money and awareness for muscular dystrophy assoc 23-2129677 · FY2024 Harrisburg, PA $267.1K $158.4K $2.6M 62% 7% — 501(c)(3)
Michaels Cause INC To promote awareness of the disease duchenne muscular distrophy and to provide funds for additional research… 45-2808761 · FY2024 Staten Island, NY $257.6K $248.9K $876.6K 71% 13% — 501(c)(3)
Finns Friends To enhance the quality of life for the families affected by duchenne muscular dystrophy. 85-0509538 · FY2024 Longview, TX $233.1K $207.9K $178.9K 78% 1% — 501(c)(3)
Cure Lgmd2i Foundation Fund research for CURE of limb girdle muscular dystrophy 80-0680447 · FY2024 Columbia, PA $222.8K $415.5K $360.8K 95% 0% — 501(c)(3)
Giving Strength INC GIVING STRENGTH is a non-profit organization dedicated to funding research grants while increasing awareness… 88-0835023 · FY2024 Fulton, MD $203.9K $130.0K $1.2M 95% 0% 2 501(c)(3)
Fishing for MD Foundation INC To utilize fundraising activities, offshore FISHING sponsorships and tournament winnings to directly… 81-3450854 · FY2024 Dayton, MD $184.8K $260.5K $450.7K 82% 0% 3 501(c)(3)
Ryan's Quest INC The mission of RYAN'S QUEST is to increase awareness of duchenne muscular dystrophy with the purpose of… 26-1890529 · FY2024 Hamilton, NJ $161.0K $83.8K $1.5M 90% 0% — 501(c)(3)
Mdds Balance Disorder Foundationinc To fund research to cure the MDDS BALANCE DISORDER. 20-5953110 · FY2024 Audubon, PA $139.3K $264.1K $666.4K 54% 42% — 501(c)(3)
Spinal Muscular Atrophy Research Team Various activities in order to raise awareness and funds to support RESEARCH and a cure for SPINAL MUSCULAR… 32-0284955 · FY2024 Lackawanna, NY $83.0K $11.1K $91.2K 11% 0% — 501(c)(3)
Jordan Hays Foundation The foundation's mission is to organize fund raising activites to provide funds for research to find a cure… 27-2874778 · FY2024 Wentzville, MO $82.3K — $13.1K — — — 501(c)(3)
Zack Heger Foundation INC The Zack Heger Foundation is a 501c3 charitable foundation started in honor of our son Zack who was diagnosed… 56-2656657 · FY2024 Norwell, MA $68.9K — $446.8K — — — 501(c)(3)
Hunters Hope for Duchenne and Degs1 Leukodystrophy INC 84-4970811 · FY2021 Hickman, NE $60.8K — $0 — — — 501(c)(3)
Heal Dmd To ignite a movement of compassion, hope and love that will defeat Duchenne Muscular Dystrophy DMD. 92-2757865 · FY2025 Scottsdale, AZ $56.3K $5.0K $202.8K 0% 8% — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org