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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Foxg1 Research INC Find a cure, find treatments, provide therapeutics, advocating for patients, and supporting families for… 82-5300929 · FY2024 Sands Point, NY $6.6M $3.7M $6.4M 90% 4% — 501(c)(3)
Jett Foundation INC JETT FOUNDATION empowers people and families impacted by duchenne muscular dystrophy through the development… 04-3563445 · FY2024 Norwell, MA $5.1M $3.4M $10.4M 74% 15% 14 501(c)(3)
United Mitochondrial Disease Foundation INC To promote research and education for the diagnosis, treatment and cure of MITOCHONDRIAL disorders and to… 25-1767180 · FY2023 Pittsburgh, PA $3.7M $4.7M $6.6M 77% 16% 20 501(c)(3)
Cure Jm Foundation To find better treatments and a CURE for juvenile myositis and improve the lives of families. 35-2222262 · FY2023 Leesburg, VA $2.3M $2.1M $2.4M 80% 15% 11 501(c)(3)
Cancer Research Foundation - Funding CANCER RESEARCH to find a cure 81-2771469 · FY2024 Chicago, IL $1.5M $1.7M $1.3M 89% 6% 4 501(c)(3)
Shoot for a Cure Raise funds for leukemia and lymphoma research and for other charitable nonprofit organizations. 80-0171936 · FY2024 Burbank, CA $1.2M $1.2M $131.0K 56% 44% — 501(c)(3)
Cancer Research Foundation Funding CANCER RESEARCH to find a cure 36-2385213 · FY2024 Chicago, IL $1.2M $1.6M $10.2M 88% 4% 1 501(c)(3)
Choroideremia Research Foundation INC To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a… 04-3511754 · FY2024 Springfield, MA $964.8K $819.1K $956.7K 80% 11% 8 501(c)(3)
American Association of the Order of Saint Lazarus INC Provides aid to numerous leprosaria while supporting medical research into Hanson's disease. Various organ… 23-7230009 · FY2024 Ridgefield, CT $872.0K $244.8K $4.3M 87% 0% — 501(c)(3)
Supporters of Families with Sickle Cell Disease To improve Self-efficacy, improve the overall quality of life for patients and their families living with… 74-3230851 · FY2024 Tulsa, OK $854.8K $882.5K $304.7K 96% 0% — 501(c)(3)
National Niemann-Pick Disease Foundation Supporting NIEMANN-PICK affected patients and families with education, collaboration, and research. 35-1844264 · FY2024 Fort Atkinson, WI $676.2K $589.3K $607.2K 75% 6% 3 501(c)(3)
The United Leukodystrophy Foundation INC The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and… 35-1557361 · FY2024 Chicago, IL $596.3K $553.0K $1.7M 69% 5% 2 501(c)(3)
Childrens Cancer Fund Funding research projects for a cure to childhood cancers. 13-4190313 · FY2024 Thornwood, NY $512.9K $369.7K $816.4K 88% 0% — 501(c)(3)
Leukemia Research Foundation of Delaware Funding for cancer research. 26-1215347 · FY2023 Middletown, DE $395.8K $2.9K $2.5M 0% 0% — 501(c)(3)
Ty Louis Campbell Foundation INC Tlc raises funds for innovative research and clinical trials for the treatment of childhood cancer 45-1858390 · FY2024 Pawling, NY $393.4K $393.6K $1.0M 72% 15% 5 501(c)(3)
Bardet Biedl Syndrome Foundation The organization's mission is to build a community of support for individuals and families, provide… 46-3343666 · FY2022 West Chester, PA $372.6K $172.2K $609.1K 100% 0% — 501(c)(3)
Foundation for a Cure for Mitochondrial Disease INC The FOUNDATION for a CURE for MITOCHONDRIAL DISEASE, INC. Exists to support research to find medical hope for… 06-1602020 · FY2024 Cheshire, CT $368.3K $383.4K $3.8M 92% 0% — 501(c)(3)
United Msd Foundation INC Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase… 81-3669443 · FY2024 Biloxi, MS $330.5K $388.2K $223.9K 67% 14% 8 501(c)(3)
Cruisin for a Cure To procure contribution and support to KSK Cancer center of irvine an similar organizations to raise… 33-0927644 · FY2024 Mission Viejo, CA $321.7K $437.0K $1.3M 51% 0% 1 501(c)(3)
Cure Vcp Disease INC Research (Tools, Collaborations, Models and Convenings) 82-4368871 · FY2024 Warner Robins, GA $318.8K $369.8K $485.3K 75% 14% 2 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop Support families impacted by hdls/alsp 85-4152247 · FY2024 Myerstown, PA $300.1K $307.5K $32.3K 68% 0% 1 501(c)(3)
Curears Funding Mitochondrial Disease Research 86-3568273 · FY2024 Raritan, NJ $283.5K $241.9K $411.4K 90% 5% — 501(c)(3)
Believing for Bryleigh Foundation INC To provide relief, support and assistance to families affected by Metachromatic Leukodystrophy (MLD) and… 46-3448777 · FY2024 New Braunfels, TX $279.6K $205.0K $364.7K 82% 0% — 501(c)(3)
Walking Strong INC WALKING STRONG helps duchenne families with their over-bearing medical needs that are most often not covered… 47-1648097 · FY2024 West Hills, CA $279.2K $229.0K $425.9K 80% 11% 1 501(c)(3)
Cure Multiple Myeloma Corporation To raise funds for medical research for the treatment of muliple MYELOMA. 47-4309020 · FY2024 Novi, MI $250.8K $257.8K $21.2K 73% 27% — 501(c)(3)
Coalition to Cure Chd2 INC The Coalition to Cure CHD2 (CCC)'s mission is to improve the lives of those affected by CHD2-related… 85-4057370 · FY2024 Naperville, IL $250.1K $162.3K $362.8K 54% 21% 1 501(c)(3)
Sickle Cell Foundation of Arizona INC Promote education, research and services for families impacted by SICKLE CELL disease 46-0741040 · FY2024 Tucson, AZ $237.1K $228.0K $14.0K 72% 5% 6 501(c)(3)
Cure Lgmd2i Foundation Fund research for CURE of limb girdle muscular dystrophy 80-0680447 · FY2024 Columbia, PA $222.8K $415.5K $360.8K 95% 0% — 501(c)(3)
Cure Cdkl5 Epilepsy Foundation 99-1303165 · FY2024 New York, NY $192.3K — $178.3K — — — 501(c)(3)
Curenfwithjack Fund research for and educate public about Neurofibromatosis 46-5178351 · FY2024 Alpharetta, GA $179.3K $308.0K $869.4K 72% 22% — 501(c)(3)
Edward F Hardy Sickle Cell Foundation 27-4014487 · FY2020 Cleveland, OH $148.4K — $0 — — — 501(c)(3)
Cure Ahc Foundation Research project with aarhus university(denmark) 46-1475239 · FY2024 Rolesville, NC $145.5K $81.0K $580.6K 67% 7% — 501(c)(3)
Cure Tay-Sachs Foundation The CURE TAY-SACHS FOUNDATION has been created to fund the research initiatives that show promise to treat… 26-0256621 · FY2024 Phoenix, AZ $141.1K $251.2K $1.9M 90% 0% — 501(c)(3)
Mdds Balance Disorder Foundationinc To fund research to cure the MDDS BALANCE DISORDER. 20-5953110 · FY2024 Audubon, PA $139.3K $264.1K $666.4K 54% 42% — 501(c)(3)
Teal We Find a Cure INC FIND a CURE for cancer 82-5210142 · FY2025 Union, KY $133.2K $157.7K $105.3K 0% 100% — 501(c)(3)
Lupus Research Foundation 81-5446248 · FY2024 Ham Lake, MN $78.9K — $66.9K — — — 501(c)(3)
Champ Foundation The Champ Foundation supports research toward better treatments and a cure for diseases casued by… 47-5555752 · FY2024 Durham, NC $73.8K $130.3K $244.7K 98% 0% — 501(c)(3)
Childrens Gaucher Research Fund RESEARCH FUND to find cure for GAUCHER disease. 94-3326753 · FY2024 Granite Bay, CA $61.1K $17.2K $454.0K 90% 0% — 501(c)(3)
Leukemia Clinical Research Foundation To provide much needed financial assistance for CLINICAL RESEARCH in adult LEUKEMIA and lymphomas 41-1586846 · FY2024 Saint Paul, MN $0 — $1 — — — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org