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Organization
Location
Revenue
Expenses
Assets
Program
Fundr. cost
Employees
Type
Follow
End Fund INCThe END Fund's mission is to control and eliminate the most prevalent neglected diseases among the world's…27-3941186 · FY2024
New York, NY
$62.7M
$74.2M
$38.9M
90%
6%
45
501(c)(3)
The Foundation Fighting Blindness INCThe urgent mission of the FOUNDATION FIGHTING BLINDNESS is to drive the research that will provide…23-7135845 · FY2024
Columbia, MD
$36.6M
$49.5M
$110.9M
75%
18%
68
501(c)(3)
Childrens Tumor FoundationThe children's TUMOR FOUNDATION is dedicated to ending neurofibromatosis (nf). Our mission is to: a.) fund…13-2298956 · FY2024
New York, NY
$19.7M
$19.0M
$30.7M
84%
8%
43
501(c)(3)
Huntington S Disease FoundationTo fund transformative research to find treatments, and ultimately a cure, for huntington's DISEASE.23-7376197 · FY2024
New York, NY
$7.9M
$4.5M
$23.1M
86%
7%
4
501(c)(3)
Melanoma Research FoundationTo eradicate MELANOMA by accelerating medical RESEARCH while educating to and advocating for the MELANOMA…76-0514428 · FY2024
Creutzfeldt-Jakob Disease Foundation INCTo support families affected by prion DISEASE, raise awareness, and support medical education and research.65-0404623 · FY2024
Spastic Paraplegia Foundation INCThe FOUNDATION is dedicated to finding a cure and providing information and support services for two closely…04-3594491 · FY2024
O Fallon, MO
$1.7M
$899.6K
$3.1M
88%
4%
—
501(c)(3)
Livelikelou FoundationThe organization's purpose is to promote and support charitable, scientific, literary and educational…82-3524872 · FY2024
Oxford, OH
$1.5M
$2.2M
$3.2M
72%
6%
—
501(c)(3)
Arms Wide Open Childhood Cancer FoundationTo fund pediatric CANCER research, to support pediatric CANCER families who are suffering hardships, and to…27-0811733 · FY2024
Marlboro, NJ
$1.2M
$1.1M
$409.5K
81%
10%
2
501(c)(3)
Fore Batten FoundationThis organization is organized exclusively for educational and charitable purposes, including to educate the…82-2661656 · FY2024
Milas Miracle Foundation INCThe mission of mila's MIRACLE FOUNDATION is to find and fund paths to a cure for batten and other…81-4713372 · FY2024
Longmont, CO
$706.9K
$493.0K
$484.0K
90%
2%
2
501(c)(3)
Hunters Cmt4b3 Research Foundation INCTo fund scientific RESEARCH leading to the discovery, development and and clinical applications for…85-3259676 · FY2025
Apbd Research FoundationTo fund medical RESEARCH for the treatment and public education of adult polyglucosan body disease.20-3609790 · FY2024
New York, NY
$363.8K
$410.8K
$513.4K
96%
0%
—
501(c)(3)
The Jp4 FoundationTo serve and provide opportunity to youth and young adults via scholarship and education to inspire them to…81-2968738 · FY2023
Vadnais Hts, MN
$360.3K
$323.4K
$334.0K
72%
15%
1
501(c)(3)
L-Cmd Research FoundationL-CMD RESEARCH foundation's purpose is to urgently translate available technologies into impactful treatments…85-2640499 · FY2024
Houston, TX
$354.8K
$309.4K
$2.0M
99%
0%
—
501(c)(3)
Innovation to End Neglected DiseasesOur mission is to develop and ensure accessibility of safe and effective new medicines and diagnostics for…47-1056489 · FY2024
E Palo Alto, CA
$346.4K
$346.4K
$0
100%
0%
—
501(c)(3)
Stroke Awareness FoundationOm improve community AWARENESS of cerebrovascular disease and associated treatment and health issues through…81-0566416 · FY2025
Campbell, CA
$337.1K
$303.9K
$200.7K
78%
3%
—
501(c)(3)
Childrens Skin Disease FoundationChildrens Skin Disease Foundation is a non-profit corporation dedicated to improving the lives of children…68-0456098 · FY2024
Pleasanton, CA
$331.1K
$391.6K
$711.3K
89%
3%
3
501(c)(3)
United Msd Foundation INCGenerate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase…81-3669443 · FY2024
Biloxi, MS
$330.5K
$388.2K
$223.9K
67%
14%
8
501(c)(3)
Fbxo31 FoundationThe FBXO31 Foundation was formed to eradicate FBXO31-related cerebral palsy by raising awareness and funds to…93-4038299 · FY2024
Austin, TX
$324.7K
$153.6K
$174.8K
88%
0%
—
501(c)(3)
Rare Sisters Batten Foundation INCThe RARE SISTERS BATTEN FOUNDATION aims to help further the development of medical research for treatments…84-4406415 · FY2024
Charlotte and Gwenyth Gray FoundationTo improve and save the lives of all children impacted by Batten disease and other neurodegenerative…83-1459499 · FY2024
Rory David Deutsch FoundationThe mission of the RORY DAVID DEUTSCH FOUNDATION is to eradicate pediatric brain tumors and other devastating…36-4242498 · FY2024
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported
financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the
latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org
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