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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
End Fund INC The END Fund's mission is to control and eliminate the most prevalent neglected diseases among the world's… 27-3941186 · FY2024 New York, NY $62.7M $74.2M $38.9M 90% 6% 45 501(c)(3)
The Foundation Fighting Blindness INC The urgent mission of the FOUNDATION FIGHTING BLINDNESS is to drive the research that will provide… 23-7135845 · FY2024 Columbia, MD $36.6M $49.5M $110.9M 75% 18% 68 501(c)(3)
Childrens Tumor Foundation The children's TUMOR FOUNDATION is dedicated to ending neurofibromatosis (nf). Our mission is to: a.) fund… 13-2298956 · FY2024 New York, NY $19.7M $19.0M $30.7M 84% 8% 43 501(c)(3)
Huntington S Disease Foundation To fund transformative research to find treatments, and ultimately a cure, for huntington's DISEASE. 23-7376197 · FY2024 New York, NY $7.9M $4.5M $23.1M 86% 7% 4 501(c)(3)
Melanoma Research Foundation To eradicate MELANOMA by accelerating medical RESEARCH while educating to and advocating for the MELANOMA… 76-0514428 · FY2024 Washington, DC $7.4M $6.9M $8.3M 71% 13% 21 501(c)(3)
Pediatric Brain Tumor Foundation of the United States INC Eliminate childhood BRAIN tumors and support families living with this devastating disease. 58-1966822 · FY2023 Winston Salem, NC $5.0M $6.7M $3.3M 78% 10% 38 501(c)(3)
Les Turner Amyotrophic Lateral Sclerosis Foundation To find a cure for als, provide patient and family support and increase public awareness. 36-2916466 · FY2024 Skokie, IL $4.5M $3.3M $4.4M 80% 13% 20 501(c)(3)
Creutzfeldt-Jakob Disease Foundation INC To support families affected by prion DISEASE, raise awareness, and support medical education and research. 65-0404623 · FY2024 Fairlawn, OH $2.9M $1.9M $9.2M 86% 5% 5 501(c)(3)
Cerebral Palsy Alliance Research Foundation Cparf funds US-based RESEARCH to change what's possible for people with CEREBRAL PALSY, implements proven… 47-4851754 · FY2024 New York, NY $1.9M $2.4M $1.4M 66% 28% 8 501(c)(3)
Spastic Paraplegia Foundation INC The FOUNDATION is dedicated to finding a cure and providing information and support services for two closely… 04-3594491 · FY2024 O Fallon, MO $1.7M $899.6K $3.1M 88% 4% 501(c)(3)
Livelikelou Foundation The organization's purpose is to promote and support charitable, scientific, literary and educational… 82-3524872 · FY2024 Oxford, OH $1.5M $2.2M $3.2M 72% 6% 501(c)(3)
Arms Wide Open Childhood Cancer Foundation To fund pediatric CANCER research, to support pediatric CANCER families who are suffering hardships, and to… 27-0811733 · FY2024 Marlboro, NJ $1.2M $1.1M $409.5K 81% 10% 2 501(c)(3)
Fore Batten Foundation This organization is organized exclusively for educational and charitable purposes, including to educate the… 82-2661656 · FY2024 Scottsdale, AZ $1.1M $2.7M $383.1K 98% 1% 1 501(c)(3)
Epidermolysis Bullosa Medical Research Foundation The primary purpose of the organization is to fund MEDICAL RESEARCH to find a cure for EPIDERMOLYSIS BULLOSA… 94-3130081 · FY2023 Los Angeles, CA $888.8K $400.7K $4.1M 86% 5% 501(c)(3)
Milas Miracle Foundation INC The mission of mila's MIRACLE FOUNDATION is to find and fund paths to a cure for batten and other… 81-4713372 · FY2024 Longmont, CO $706.9K $493.0K $484.0K 90% 2% 2 501(c)(3)
Hunters Cmt4b3 Research Foundation INC To fund scientific RESEARCH leading to the discovery, development and and clinical applications for… 85-3259676 · FY2025 New York, NY $608.7K $259.8K $1.5M 85% 6% 501(c)(3)
Batten Disease Support and Research Association Our long-term vision is a world without BATTEN DISEASE. Our mission is to SUPPORT BATTEN families, fund and… 91-1397792 · FY2024 Gahanna, OH $602.0K $967.3K $965.9K 71% 8% 6 501(c)(3)
Galactosemia Foundation To spread awareness of GALACTOSEMIA; to provide support for parents of children with GALACTOSEMIA through… 13-3349708 · FY2024 Albany, NY $385.6K $350.9K $818.6K 94% 0% 501(c)(3)
Foundation for a Cure for Mitochondrial Disease INC The FOUNDATION for a CURE for MITOCHONDRIAL DISEASE, INC. Exists to support research to find medical hope for… 06-1602020 · FY2024 Cheshire, CT $368.3K $383.4K $3.8M 92% 0% 501(c)(3)
Apbd Research Foundation To fund medical RESEARCH for the treatment and public education of adult polyglucosan body disease. 20-3609790 · FY2024 New York, NY $363.8K $410.8K $513.4K 96% 0% 501(c)(3)
The Jp4 Foundation To serve and provide opportunity to youth and young adults via scholarship and education to inspire them to… 81-2968738 · FY2023 Vadnais Hts, MN $360.3K $323.4K $334.0K 72% 15% 1 501(c)(3)
L-Cmd Research Foundation L-CMD RESEARCH foundation's purpose is to urgently translate available technologies into impactful treatments… 85-2640499 · FY2024 Houston, TX $354.8K $309.4K $2.0M 99% 0% 501(c)(3)
Innovation to End Neglected Diseases Our mission is to develop and ensure accessibility of safe and effective new medicines and diagnostics for… 47-1056489 · FY2024 E Palo Alto, CA $346.4K $346.4K $0 100% 0% 501(c)(3)
Stroke Awareness Foundation Om improve community AWARENESS of cerebrovascular disease and associated treatment and health issues through… 81-0566416 · FY2025 Campbell, CA $337.1K $303.9K $200.7K 78% 3% 501(c)(3)
Childrens Skin Disease Foundation Childrens Skin Disease Foundation is a non-profit corporation dedicated to improving the lives of children… 68-0456098 · FY2024 Pleasanton, CA $331.1K $391.6K $711.3K 89% 3% 3 501(c)(3)
United Msd Foundation INC Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase… 81-3669443 · FY2024 Biloxi, MS $330.5K $388.2K $223.9K 67% 14% 8 501(c)(3)
Fbxo31 Foundation The FBXO31 Foundation was formed to eradicate FBXO31-related cerebral palsy by raising awareness and funds to… 93-4038299 · FY2024 Austin, TX $324.7K $153.6K $174.8K 88% 0% 501(c)(3)
Rare Sisters Batten Foundation INC The RARE SISTERS BATTEN FOUNDATION aims to help further the development of medical research for treatments… 84-4406415 · FY2024 Arvada, CO $297.8K $242.7K $197.4K 67% 31% 501(c)(3)
Alternating Hemiplegia of Childhood Foundation INC Our mission is to find the cause(s) of Alternating AHC), develop effective treatments and ultimately find a… 38-3225425 · FY2024 Southfield, MI $283.3K $201.0K $1.7M 60% 0% 501(c)(3)
Charlotte and Gwenyth Gray Foundation To improve and save the lives of all children impacted by Batten disease and other neurodegenerative… 83-1459499 · FY2024 Pacific Plsds, CA $252.0K $45.3K $243.6K 45% 0% 501(c)(3)
United Cerebral Palsy of Southernalleghenies Region Foundation To provide medical, therapeutic, psychological and other assistance to those individuals with CEREBRAL PALSY… 20-4214922 · FY2024 Johnstown, PA $196.3K $206.8K $1.5M 501(c)(3)
Rory David Deutsch Foundation The mission of the RORY DAVID DEUTSCH FOUNDATION is to eradicate pediatric brain tumors and other devastating… 36-4242498 · FY2024 Highland Park, IL $167.2K $142.4K $2.3M 70% 0% 1 501(c)(3)
Childrens Interstitial Lung Disease Foundation INC The child FOUNDATION is a 501(c)(3) non-profit organization whose mission is to accelerate research to cure… 20-1211828 · FY2024 Cincinnati, OH $131.5K $1.3M 1 501(c)(3)
Cade R Alpard Foundation for Pediatric Disease 33-1067517 · FY2025 Houston, TX $112.2K $56.1K 501(c)(3)
Forgotten Diseases Research Foundation 45-4470463 · FY2024 Santa Clara, CA $87.1K $156.9K 501(c)(3)
Foundation for Usp7 - Related Diseases To cure USP7-RELATED DISEASES by funding research and identifying more patients. 82-1697564 · FY2024 Falmouth, ME $76.0K $37.8K $234.1K 58% 31% 501(c)(3)
Champ Foundation The Champ Foundation supports research toward better treatments and a cure for diseases casued by… 47-5555752 · FY2024 Durham, NC $73.8K $130.3K $244.7K 98% 0% 501(c)(3)
Childrens Gaucher Research Fund RESEARCH FUND to find cure for GAUCHER disease. 94-3326753 · FY2024 Granite Bay, CA $61.1K $17.2K $454.0K 90% 0% 501(c)(3)
Dent Disease Foundation 46-2912070 · FY2024 Kamas, UT $60.1K $204.4K 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org
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