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Organization	Location	Revenue	Expenses	Assets	Program	Fundr. cost	Employees	Type
Pancreatic Cancer Action Network INC To advance research, support patients, and create hope for people who have PANCREATIC CANCER. 33-0841281 · FY2024	El Segundo, CA	$42.2M	$47.6M	$41.0M	55%	13%	191	501(c)(3)
Frontier Science and Technology Research Foundation INC Our mission at Frontier Science is to collaborate with investigators and sponsors to conduct scientifically… 16-1056814 · FY2024	Amherst, NY	$30.3M	$31.4M	$19.6M	74%	0%	260	501(c)(3)
Sage Bionetworks Sage Bionetworks is a strategic research organization with a mission to coordinate and link academic and… 26-4489946 · FY2024	Seattle, WA	$24.5M	$24.7M	$8.2M	92%	0%	138	501(c)(3)
Precision Ocular Network We enhance lives by restoring eyesight in our local and global communities through a NETWORK of partnerships. 63-0880135 · FY2024	Birmingham, AL	$15.2M	$15.5M	$17.4M	75%	1%	81	501(c)(3)
Rett Syndrome Research Trust INC The organization's mission is focused on the development of treatments and cures for RETT SYNDROME and… 26-0687439 · FY2024	Trumbull, CT	$9.3M	$11.7M	$20.8M	92%	6%	7	501(c)(3)
Rhode Island Parent Information Network INC 05-0457336 · FY2024	Warwick, RI	$9.0M	$9.1M	$6.3M	83%	0%	143	501(c)(3)
Society for Research in Child Development INC The Society for Research in Child Development advances the developmental sciences and promotes the use of… 35-6005842 · FY2024	Washington, DC	$7.4M	$6.9M	$21.7M	86%	1%	18	501(c)(3)
Global Virus Network INC The gvn mission is to strengthen medical research and response to viral disease including pandemics. 45-2734306 · FY2024	Tampa, FL	$6.6M	$1.7M	$5.8M	51%	16%	9	501(c)(3)
American Society for Bone and Mineral Research The mission of the asbmr is to advance BONE, MINERAL, and musculoskeletal science worldwide and to promote… 43-1123207 · FY2024	Washington, DC	$5.7M	$4.8M	$8.9M	71%	0%	—	501(c)(3)
Allegheny Family Network Our mission is to support and partner with families rearing children who have emotional and mental health… 20-2080261 · FY2024	Pittsburgh, PA	$4.7M	$4.7M	$4.7M	83%	0%	70	501(c)(3)
Georgia Health Information Network INC THE ORGANIZATION'S MISSION IS To facilitate a statewide health information network for Georgia that is… 20-4374198 · FY2023	Atlanta, GA	$4.6M	$6.5M	$1.5M	84%	0%	—	501(c)(3)
Human Response Network INC Hrn provides advocacy, education, and programs that promote personal empowerment, support vulnerable… 68-0032176 · FY2023	Weaverville, CA	$4.3M	$4.0M	$5.3M	93%	0%	35	501(c)(3)
Civitas Networks for Health To activate and support regional HEALTH improvement collaboratives by increasing collab & shared learning… 45-1754340 · FY2024	Sanford, NC	$3.2M	$3.2M	$3.0M	71%	0%	7	501(c)(3)
Parkinson Research Foundation INC The MISSION of the PARKINSON RESEARCH FOUNDATION is to help find a cure for Parkinsons disease through… 20-0205035 · FY2024	Sarasota, FL	$3.2M	$2.2M	$4.6M	60%	24%	5	501(c)(3)
Greater Rochester Regional Healthinformation Organization INC The mission of the ROCHESTER rhio is to provide the ROCHESTER medical service area with a system for a secure… 20-4669094 · FY2025	Rochester, NY	$2.6M	$2.8M	$10.6M	92%	0%	46	501(c)(3)
United States Association for the Study of Pain INC The mission of the UNITED STATES ASSOCIATION for the STUDY of PAIN is to promote scientific advances that… 84-4008678 · FY2024	Annapolis, MD	$1.1M	$886.4K	$1.2M	91%	0%	1	501(c)(3)
Children's Cancer Network We support children and families throughout their cancer journey with programs and services designed to… 20-2129902 · FY2024	Chandler, AZ	$1.1M	$1.1M	$1.3M	76%	9%	8	501(c)(3)
Grace Science Foundation The mission of the Foundation is to support and fund the development of life-saving treatment for 46-5727883 · FY2024	Menlo Park, CA	$943.0K	$1.5M	$2.2M	92%	0%	—	501(c)(3)
Spondyloarthritis Research and Treatment Network Our mission is to foster SPONDYLOARTHRITIS RESEARCH and education in north america. We accomplish this… 46-4072112 · FY2023	Portland, OR	$669.1K	$598.0K	$2.4M	83%	0%	—	501(c)(3)
North American Strasbourg Osteosynthesis Research Group INC To strengthen the discipline of surgery through education and research. 27-3339703 · FY2024	Jacksonville, FL	$621.1K	$612.9K	$28.4K	94%	0%	—	501(c)(3)
Tango2 Research Foundation Incorporated Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to… 82-3667557 · FY2024	Hadlyme, CT	$603.9K	$626.2K	$600.3K	89%	4%	1	501(c)(3)
Pediatric Epilepsy Research Consortium INC Our mission is to provide a network and infrastructure to facilitate collegial, collaborative… 88-1162919 · FY2024	Chicago, IL	$569.8K	$287.9K	$628.5K	85%	5%	1	501(c)(3)
U S Human Proteome Organization Assist with the coordination of research on the human proteome; promote the exchange of knowledge on the… 30-0047334 · FY2024	Portland, OR	$545.8K	$432.4K	$1.1M	98%	0%	—	501(c)(3)
American Federation for Medical Research The mission of the FEDERATION is to develop and mentor tomorrow's leaders in MEDICAL RESEARCH. 52-6056060 · FY2024	Beverly, MA	$498.8K	$438.0K	$543.4K	74%	0%	—	501(c)(3)
Urological Research Network Foundation The UROLOGICAL NETWORK FOUNDATION is a scientific organization that aims to support patient's awareness… 86-3560723 · FY2024	Hialeah, FL	$436.6K	$220.5K	$631.3K	100%	0%	—	501(c)(3)
Healthspan Action Coalition INC The mission is to advance biomedical research related to aging, longevity and healthspan. Further, to… 92-0511095 · FY2024	Wellington, FL	$405.0K	$387.9K	$26.2K	92%	0%	—	501(c)(3)
C C H S Network INC The CCHS family network's mission is to promote communication across physician/patient communities in the… 22-3634814 · FY2024	New York, NY	$357.2K	$436.8K	$1.5M	81%	0%	—	501(c)(3)
Arthritis Research Coalition The mission of the organization is to improve the quality of life of people living with arthritis through… 86-2752635 · FY2024	Pacific Grove, CA	$354.9K	$283.0K	$157.1K	98%	1%	—	501(c)(3)
Undiagnosed Diseases Network Foundation The udnf's mission is to improve access to diagnosis, research, and care for all with UNDIAGNOSED and… 87-3474254 · FY2024	Washington, DC	$329.0K	$1.4M	$410.5K	98%	1%	—	501(c)(3)
Ddx3x Foundation Our mission is to connect families, resources, and the medical community to advance research for a cure to… 81-1159359 · FY2023	Wilmington, DE	$269.3K	$446.1K	$74.5K	75%	0%	2	501(c)(3)
Down Syndrome Network INC DBA Dsnetwork 1) Promote lifelong health and improve quality of life for people with DS; 2) Help caregivers navigate the… 61-1409048 · FY2024	Tempe, AZ	$234.1K	$269.6K	$240.9K	76%	7%	7	501(c)(3)
Team Sanfilippo Foundation Research for treatment of Sanfilippo Syndrome Mission is to facilitate lab work and research needed to bring… 46-4027239 · FY2024	Wilmington, DE	$215.9K	$298.0K	$1.2M	99%	0%	3	501(c)(3)
Real Dads Network Our mission is to support and strengthen fathers and families through access to resources, education, and… 54-2187114 · FY2024	Peekskill, NY	$172.6K	$132.1K	$40.5K	0%	0%	—	501(c)(3)
Ryan's Quest INC The mission of RYAN'S QUEST is to increase awareness of duchenne muscular dystrophy with the purpose of… 26-1890529 · FY2024	Hamilton, NJ	$161.0K	$83.8K	$1.5M	90%	0%	—	501(c)(3)
Pituitary Network Association INC The organizations mission is to support, promote, pursue and encourage fund research on pituitary disorder in… 33-0530465 · FY2024	Thousand Oaks, CA	$156.1K	$235.7K	$293.2K	78%	0%	3	501(c)(3)
Healthy Networks Design & Research INC Healthy Networks Design and Research's mission is to improve the wellness of children and adults by assisting… 46-1050267 · FY2024	Williamsburg, VA	$145.3K	$185.8K	$475.3K	100%	0%	—	501(c)(3)
American Nystagmus Network INC To improve the quality of life for all persons and families affected by nystagmus, through organized… 36-4279736 · FY2025	Decatur, AL	$118.4K	$96.5K	$60.7K	88%	0%	—	501(c)(3)
Spinal Muscular Atrophy Research Team Various activities in order to raise awareness and funds to support RESEARCH and a cure for SPINAL MUSCULAR… 32-0284955 · FY2024	Lackawanna, NY	$83.0K	$11.1K	$91.2K	11%	0%	—	501(c)(3)
Foundation for Usp7 - Related Diseases To cure USP7-RELATED DISEASES by funding research and identifying more patients. 82-1697564 · FY2024	Falmouth, ME	$76.0K	$37.8K	$234.1K	58%	31%	—	501(c)(3)

2,046,138

nonprofits

212,946

funders

12,515,252

grants

22,549,931

directors

214,365

service providers

549,896,012

financial lines

Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org